Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Really Know?


pacificfords

Recommended Posts

pacificfords Newbie

My question is about "gluten free" products on the market. Are they trustworthy? I am newly diagnosed, learning a great deal everyday, but wondering how much I can trust the accuracy of a product labeled gluten free. Things like Bob's Red Mill seem to be something that I can trust... and Amy's meals, but I wonder from those that have experience... can I really trust them? Are gluten free oats really okay? And packages foods labeled gluten free?

I would really love some advice. It is important that I am strict gluten free because this disease has affected my kidneys. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Many companies now have gluten-free plants or buildings to process only gluten-free . Others use the same lines to do wheat & gluten-free products but generally they are cleaned before & or after each use. Some gluten-free people will only buy from places that only do gluten-free, others who are not quite as sensitive will buy products from lines that produce wheat & gluten-free. It is a personal choice depending on how sensitive you are or will be. The rule of thumb is no more that 20ppm....to beconsidered safe....

Also some can't eat certain brands of products even if it is gluten-free.because of one or more of the other ingredients IE:some react to corn, tapioca, soy so if that is in say a Bob'sRed Mill product they would not use that product.

It is a learning curve for each person...I personally use Pamela's, some Amy's but I react to Bob's Red Mill so I don't use that ... others use Bob's with no problems at all....

Take your time & try a new item every few days that way you will beableto pinpointwhatmay or may not cause yourbody problems...

Oats gluten-free is again another choice. I never reacted to oats gluten-free or not but others cannot tolerate any oats gluten-free or not. If you are newt o the gluten-free diet you may want to hold off on oats for a year or so to give your system time enough to heal before adding oats..For some fiber & lots of protein causes problems when starting out on the gluten-free lifestyle.

I strongly believe in digestive enzymes & probiotics on the gluten-free lifestyle.

Take your time to learn all you can &you will do fine & have better restored health...

cassP Contributor

people say they have issues with Amy's because of cc... but i dont think i have... while i was itching one time from Blue Diamond Pecan Thins...

the thing is- some of these places could have cc... BUT- i think a big problem is just overdoing the gluten free substitutes- because many of these products are tested at <20ppm... and if you're really sensitive and you're eating too much- the cumulative amount of gluten may be too much for you.

the other issue- is that a lot of us Celiacs and gluten intolerants cannot handle too many grains or starches... ie: potato starch, corn starch , corn flour, tapioca, garbanzo bean flour, etc, etc, etc... it's just too much..

right now im eating certified gluten free oatmeal (premade in packets- this one is maple raisin)- but i picked most of the raisins out cause of my fructose issues. and i havent had any problems with it

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,828
    • Most Online (within 30 mins)
      7,748

    Vernice Hughes
    Newest Member
    Vernice Hughes
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lookingforanswersone
      Thanks everyone. I've decided to do a gluten challenge (4 slices of bread a day for 3 months) and then do a full gluten panel of all the tests that can be done, just to rule it in or out for sure. I think otherwise psychologically it will keep bothering me 
    • Suze046
      Thanks Scott. Those articles are really interesting. I’m cutting out gluten for 6 weeks but honestly I’m not sure I even want to reintroduce it! I ate at a restaurant for the first time on Wednesday and then Thursday was really uncomfortable and had a few trips to the loo.. wonder if there was some cross contamination 🤷‍♀️ if that’s how my body reacts after not eating it for 3 weeks I’m not sure it’s worth reintroducing it and re testing for celiac! It might have been a coincidence I realise that I’m not going to feel better all of a sudden and my gut is probably still trying to heal. Thanks for your supportive message! 
    • RMJ
      Reference range 0.00 to 10.00 means that within that range is normal, so not celiac. There are other antibodies that can be present in celiac disease and they don’t all have to be positive to have celiac.  I’m sure someone else will post a link to an article describing them! Plus, if you are IgA deficient the celiac IgA tests won’t be accurate.
    • cristiana
      Great to have another UK person on the forum!   Re: blood tests, it sounds as if you are being well monitored but if you have any further concerns about blood tests or anything else, do not hesitate to start a new thread. Cristiana  
    • Lori Lavell
      Julia530 - I have the same gene structure and most of the symptoms you have experienced plus more.....I agree with you whole heartedly!! There are approximately 10 (NOT TWO) genes that can predispose a person to having Celiac Disease. I read in Pub Med that HLA DQA1:05  can result in Celiac Disease in approximately 1 in 875 people. While it is obviously more rare it is NOT BENIGN and should not go unnoticed. Go get the book "NO GRAIN, NO PAIN" and I highly suggest you read it cover to cover. It is written by a Chiropractor who quit his medical education when the VA wouldn't allow him to treat the Veterans with debilitating arthritis with a grain free diet. I have been grain free for over 10 years now.....the facts are we are being lied to! There is a form or gluten in every protein in every grain on the planet of which there are 1000 or more. Just because all they are testing for is the Gliadin in wheat is no excuse to report only partial facts. I became a Certified Function Nutrition Counselor who specializes in Celiac Disease other Autoimmune conditions. Lavell Krueger, CFNC - lavellnutrition    aol
×
×
  • Create New...