Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Contamination Symptoms


AerinA

Recommended Posts

AerinA Rookie

Hi everyone :)

I was just wondering what some of you all experience when you get glutened.

I've been gluten free a month now, and I'm not sure if that's long enough to be able to tell when I've been contaminated, but I feel so much better now that I think it's likely I'll feel different if I eat gluten. Not sure how sensitive I am, either. Is there a good way to "test" how sensitive I am and find out what symptoms I have without intentionally eating gluten? And how long do I have to be on the diet before I will be able to tell?

I've had some very strange stomach cramps in the last two weeks, almost like period cramps but in my guts, I'm not sure if it's adjusting, healing, or just confused--or whether that's a sign I've eaten wheat by accident. Would really help me know what I have to do to avoid gluten if I could tell when I'd eaten it.

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AerinA Rookie

I have to update this... I'm pretty sure I got contaminated pretty hard at some point over the last few days. I've been having bouts of extreme stomach pain, it seems like my guts are clamping or something, it's extremely painful, and there is a really sharp cramp that I get to the right of the middle of my lower abdomen (if that makes sense.) Sometimes it sort of spasms and sends shocks all the way up my lower back toward my kidneys. Last night I ended up on the couch unable to move for about an hour... I feel better this morning but I can feel that it's still "there." Is this what happens when you get cc? I'm terrified there's something in my diet that has gluten that I don't know about, might have been my latte even... anybody feel like this? Know how much cc it would take to cause this? (I don't think I could possibly have gotten much,) or know how long this will take to go away? Or how long ago I would have gotten cc'd before the symptoms start?

Help please :(

SaraKat Contributor

My symptom happens a few days later and it is a really sharp pain under the left ribcage and sometimes it will wrap around to the side and back. The last time it happened I had been eating Hershey's mini candy bars (maybe 5 a day for a week straight). I thought they were gluten-free and they weren't. It took about a month to have that left sided pain go away again.

As far as lattes go- I do order them from Starbucks occasionally and have never had a problem.

Terri O Rookie

I have to update this... I'm pretty sure I got contaminated pretty hard at some point over the last few days. I've been having bouts of extreme stomach pain, it seems like my guts are clamping or something, it's extremely painful, and there is a really sharp cramp that I get to the right of the middle of my lower abdomen (if that makes sense.) Sometimes it sort of spasms and sends shocks all the way up my lower back toward my kidneys. Last night I ended up on the couch unable to move for about an hour... I feel better this morning but I can feel that it's still "there." Is this what happens when you get cc? I'm terrified there's something in my diet that has gluten that I don't know about, might have been my latte even... anybody feel like this? Know how much cc it would take to cause this? (I don't think I could possibly have gotten much,) or know how long this will take to go away? Or how long ago I would have gotten cc'd before the symptoms start?

Help please :(

Hi! I too am only gluten-free for a short time and I wondered this too. Your symptoms sound exactly like what I get if I get a little bit of gluten! What I find odd is that it seems to affect me so much more now that I have been gluten free! This is a very frustrating time for us to be sure! Sometimes I dont want to eat ANYTHING at all for fear that cramping will come back! T

AerinA Rookie

I get lattes from Caribou all the time, their syrups are gluten free... last night I ordered a caramel high rise, which has caramel SAUCE on it (sometimes). I didn't notice whether they had put the drizzle on this time or not, but I hadn't even thought about it. I've heard a lot of people have delayed reactions and I have NO idea what could have done this if it wasn't that latte... which is pretty frightening. I have considered it might have been multiple exposures, since I had some problems the day before yesterday, but it intensified last night. I'm afraid to eat :(

AerinA Rookie

Hi! I too am only gluten-free for a short time and I wondered this too. Your symptoms sound exactly like what I get if I get a little bit of gluten! What I find odd is that it seems to affect me so much more now that I have been gluten free! This is a very frustrating time for us to be sure! Sometimes I dont want to eat ANYTHING at all for fear that cramping will come back! T

I'm so glad it's not just me, I really thought I was going to have to go to the hospital, except it started feeling a LITTLE better so I figured I probably wasn't dying, haha. I knew I'd get more sensitive but holy cow... did not expect that violent of a reaction. I figured that had to be it because I've never felt that kind of pain before.

One other thing I thought of though, I bought some trader joe's stuff with the G symbol on it, but one of the things says something about manufactured in a facility that processes wheat products... but that they use good manufacturing procedures... does anybody know whether this stuff is safe? I mean... I was told anything with the G was okay, but this sounds really sketchy to me. Maybe I accidentally ate something like that without noticing?

patylu Rookie

I'm so glad you guys are posting about this! I was about to post something very similar. I have also been gluten-free for about a month and have problems here and there. I think I'm eating gluten-free but maybe I ate something with gluten and didn't know? Last night I felt terrible and today I feel a little better but just sort of blah and tired. I thought it was maybe something I had eaten at lunch yesterday afternoon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SusanJ replied to Jillian83's topic in Coping with Celiac Disease
      5

      Celiac and dermatitis herpetiformis has taken Me from Me

    2. - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    4. - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    5. - knitty kitty replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,981
    • Most Online (within 30 mins)
      7,748

    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.