Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nausea

cO-ol

By cO-ol
in Coping with Celiac Disease

Recommended Posts

cO-ol Explorer
cO-ol
Posted

I've been nauseous the past 3 days--it's been so bad I had to miss work. On top of that, I have the mood swings from hell. My belly hurts a little. Admittedly, I'd been eating a lot of candy, but I had none yesterday, nor today, and the nausea is still there, as bad as ever. Although yesterday and today I ate some bacon (which didn't cause any mood swings like it did a couple weeks ago). It's less when I've not eaten for hours and hours. I've eaten very little because I just feel so icky. Today I had rice cakes and the nausea is now MUCH worse. But it seems like no matter what I eat, I get nauseous. I had grapefruit today; I felt nauseous afterwards. I felt nauseous after drinking a Sierra Mist yesterday.

Obviously my digestive system is really unhappy right now. But I don't know why or what I can do to stop feeling so icky without starving myself. Help, please? Also, could something else be going on to cause this?

I'm starting to wonder if maybe I need professional help with this, because I'm just not figuring this out on my own. It's just such a pain in the ### to find someone who'll take me seriously though!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenngolightly Contributor
jenngolightly
Posted

I've been nauseous the past 3 days--it's been so bad I had to miss work. On top of that, I have the mood swings from hell. My belly hurts a little. Admittedly, I'd been eating a lot of candy, but I had none yesterday, nor today, and the nausea is still there, as bad as ever. Although yesterday and today I ate some bacon (which didn't cause any mood swings like it did a couple weeks ago). It's less when I've not eaten for hours and hours. I've eaten very little because I just feel so icky. Today I had rice cakes and the nausea is now MUCH worse. But it seems like no matter what I eat, I get nauseous. I had grapefruit today; I felt nauseous afterwards. I felt nauseous after drinking a Sierra Mist yesterday.

Obviously my digestive system is really unhappy right now. But I don't know why or what I can do to stop feeling so icky without starving myself. Help, please? Also, could something else be going on to cause this?

I'm starting to wonder if maybe I need professional help with this, because I'm just not figuring this out on my own. It's just such a pain in the ### to find someone who'll take me seriously though!

Could you be pregnant? :-) That's the first sign for me. Or you could have a case of food poisoning or the flu. If I were you, I'd go see my doctor. But I have a lovely doctor and I know that a lot of people on this board feel differently.

mareahf Apprentice
mareahf
Posted

I too have very debilitating nausea when I get glutened. It is the main symptom that holds me down. At time I even throw-up. I also get more nauseous after I eat, I think it has to do with the inflammation and/or destruction of the tissue in the duodenum. The duodenum the start of the small intestine just below the stomach. So when you eat even though it is gluten-free it might be irritating the sensitive areas in the duodenum. That is my theory.

As days go by and I am on a strict gluten-free diet the nausea gets better. I have tried ginger (teas and natural ginger candies) to ease the nausea but it does not help. I went to my doctor to ask for anti-nausea medicine and although it works it makes me tired and triggers my anxiety, so I don't take it often. If you live in a state that offers medical marijuana that is probably your best bet. You don't need much and it gets rid of the nausea and makes you hungry so you can eat. I know it is taboo but it really works. Just don't abuse it.

I hope this helps. O'yeah a long hot shower always makes me feel a little better.

Good Luck.

Financialman Newbie
Financialman
Posted

I fight with nausea just about every day also. The only thing that has been helping me is "crystalized ginger" which I buy at the local health food store. Medical marijuana is supposedly the best thing for nausea but I have never tried it. You really should talk with your doctor and insist they listen to you. Be diplomatic but aggressive with your doctor. Most of them don't have a real clue on what we go through. :)

MNMAC Apprentice
MNMAC
Posted

I too feel nauseous after I eat. I have only been on the gluten-free diet for 2 weeks and people tell me it will get better as time goes on. For now I am eating what I can (gluten-free bread w/peanut butter and ensure) and hope it will get better. I have lost alot of weight but am trying to focus on proteins now instead of calories as someone suggested. Hang in there and please let me know how your doing and what may be working for you.

rachbomb Rookie
rachbomb
Posted

Nausea is/was my main symptom too - it is definitely THE WORST! You are probably getting "glutened" by something (last week I discovered that generic Tylenol from Target was a BAD idea - it took 2 days for me to figure out what was making me sick and then 5 more days before my stomach felt ok again). Eat small amounts of food throughout the day and scrutinize everything. It will get better!

Nor-TX Enthusiast
Nor-TX
Posted

If you have trouble with nausea, you might want to ask your doctor for Zofran. It is a sub-lingual (melts on the tongue) little pill. Tastes a little like a baby asprin. Ask for the generic though. It is hundreds of dollars cheaper. It is called Ondansetron. It is perfectly safe even if you are pregnant. It is often given to pregnant patients. It comes in 4 mg and 8 mg. I take the strength I need depending on how severe my nausea is. It works in 3 to 4 minutes. The only side effect I get is a little blurry eyed if I take more than 3 a day.

I keep them stashed everywhere. In every jacket pocket, pants pocket, at work, in the car, and even in the potty at home where nausea seems to hit suddenly.

This medication is given to people on chemo. I know it is a life saver for me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


healinginprogress Enthusiast
healinginprogress
Posted

wow, I didn't think my nausea and vomiting could be explained by celiac! My bloodwork showed gluten sensitivity, just waiting to see specialist, more tests, and get things confirmed; but I was very worried that something worse was going on because I get nauseous and puke a lot after eating....or did while consuming gluten. I've puked two, maybe three times since going gluten-free last week. I'm assuming it will take a while to heal. But I'm glad that this terrible symptom may not necessarily mean something worse is going on. And if it continues I will be asking about that medication for sure.

(*my doc told me to go gluten-free for now because it is quite a wait to get in for a colonoscopy/gastroscopy and if the specialist needs me to go back on gluten at that time then I will)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
    2. Scott Adams
      0

      Gluten-Free Peanut Butter Cup Swirl Brownies

    3. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    4. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    5. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,254
    • Most Online (within 30 mins)
      7,748
    Jessica Randle
    Newest Member
    Jessica Randle
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.