Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Develop Other Food Allergies Besides Gluten?

Juls

By Juls
in Food Intolerance & Leaky Gut

Recommended Posts

Juls Newbie
Juls
Posted

Since I have become diagnosed with Celiac, (two weeks ago), and started eating gluten free I have noticed that dairy is as bad as gluten for me now. Is this common for others? Regular milk, even soy, is affecting my entire system. Is this something else I should be avoiding? I really can't afford to lose any more weight, so any suggestions would be very welcoming! I am so new at this, and it is very frustrating. Being hungry almost all of the time makes me near impossible to live with!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

Newly diagnosed celiacs often have to avoid dairy. The enzyme to digest lactose (milk sugar) is produced in the villi--the same part of the small intestine that is damaged by the autoimmune reaction in celiac disease. Many of us are able to resume eating dairy products once the villi heal. Some of us have an issue with casein (milk protein) and must stay dairy-free.

mushroom Proficient
mushroom
Posted

And yes, some of us have issues with soy as well. There are lots of different milks out there - almond, hemp, rice (but not Rice Dream - processed with barley).

sa1937 Community Regular
sa1937
Posted

I use Lactaid milk (100% lactose free) and have for the past 10 months. I'm not casein intolerant. One of these days I'm going to test the lactose theory again...probably with a pint of Ben & Jerry's!

shopgirl Contributor
shopgirl
Posted

When I first went gluten-free, I was fine with dairy. About two months later, lactose intolerance kicked in. I think I had started to just overdo it with the dairy and my body said, "Okay, no more of that." I kicked out soy at the same time because I don't like the things I've read about it.

I miss dairy and hope to get it back at some point but I love the Silk Pure Almond milks that I drink. Delish. :)

Juls Newbie
Juls
Posted
  • Author

When I first went gluten-free, I was fine with dairy. About two months later, lactose intolerance kicked in. I think I had started to just overdo it with the dairy and my body said, "Okay, no more of that." I kicked out soy at the same time because I don't like the things I've read about it.

I miss dairy and hope to get it back at some point but I love the Silk Pure Almond milks that I drink. Delish. :)

Thank you for the information. I am trying so hard, if I was a meat eater I wouldn't really care about not being able to tolerate dairy. But I am trying to get proteins in my body, and always have depended on cheese and nuts. Since neither of these like me anymore, I am having to figure out other options. I used to love food, now I wish I didn't have to eat. Just never know if you're going to feel bad everytime you eat! I feel bad for everybody with this disease, it is very hard to learn to live with. I know in time I will adjust, it changes your entire life. Thank you again for the input!

cahill Collaborator
cahill
Posted

Thank you for the information. I am trying so hard, if I was a meat eater I wouldn't really care about not being able to tolerate dairy. But I am trying to get proteins in my body, and always have depended on cheese and nuts. Since neither of these like me anymore, I am having to figure out other options. I used to love food, now I wish I didn't have to eat. Just never know if you're going to feel bad everytime you eat! I feel bad for everybody with this disease, it is very hard to learn to live with. I know in time I will adjust, it changes your entire life. Thank you again for the input!

I understand, I was vegan or vegetarian for most of my adult life.My body at this point is unable to tolerate those sources of non meat protein I have depended on in the past. I also am not a meat eater but because meat,veggie and fruits are what my body can currently tolerate that is what I eat..I hope that after my gut has healed to be able to reintroduce dairy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shopgirl Contributor
shopgirl
Posted

Thank you for the information. I am trying so hard, if I was a meat eater I wouldn't really care about not being able to tolerate dairy. But I am trying to get proteins in my body, and always have depended on cheese and nuts. Since neither of these like me anymore, I am having to figure out other options. I used to love food, now I wish I didn't have to eat. Just never know if you're going to feel bad everytime you eat! I feel bad for everybody with this disease, it is very hard to learn to live with. I know in time I will adjust, it changes your entire life. Thank you again for the input!

I've struggled with this too. A lot of us here have.

In addition to making sure I have enough things to eat in a well-rounded diet, I've been working on my mind at the same time: trying to minimize the importance of food in my life. Until I'm able to enjoy the things I want when I want them, I'm trying to train myself to view food as a necessary nuisance and focus on other things.

I'm not sure how successful I've been at this point but I'm working on it.

Lalama Apprentice
Lalama
Posted

The same thing just started happening to me. Over the last month I began breaking out in hives while eating eggs and a couple of other foods that have never bothered me before. I am still trying to pinpoint what other foods I need to stay away from. I think I am going to start a rotation diet and plan what I am going to have each day to so I can more easily figure it out. I am going to have to go very bland and simple and simple. It's not going to be easy but I know I have to do it, so I can try to heal this leaky gut issue. It definitly does give you a new mindset...no more looking to food to satisfy but rather to nurture and fuel the body-that's how I should be looking at it anyhhow ;)

cahill Collaborator
cahill
Posted

The same thing just started happening to me. Over the last month I began breaking out in hives while eating eggs and a couple of other foods that have never bothered me before. I am still trying to pinpoint what other foods I need to stay away from. I think I am going to start a rotation diet and plan what I am going to have each day to so I can more easily figure it out. I am going to have to go very bland and simple and simple. It's not going to be easy but I know I have to do it, so I can try to heal this leaky gut issue. It definitly does give you a new mindset...no more looking to food to satisfy but rather to nurture and fuel the body-that's how I should be looking at it anyhhow ;)

I agree it definitely gives you a new perspective :P

I have found that by going very,(very,very :lol: ) basic and simple that foods taste amazing. I am tasting and enjoying food as I never have before.. It is as if without gluten and the others problem foods in my diet I am ACTUALLY tasting food for the first time. :D

Lalama Apprentice
Lalama
Posted

I agree it definitely gives you a new perspective :P

I have found that by going very,(very,very :lol: ) basic and simple that foods taste amazing. I am tasting and enjoying food as I never have before.. It is as if without gluten and the others problem foods in my diet I am ACTUALLY tasting food for the first time. :D

I totally agree with you! It's like tastebud heightened sensitivity has kicked in :D

jenngolightly Contributor
jenngolightly
Posted

Me too. I went on my elimination diet last May and introduced one food every 4-7 days. Since I found that I'm intolerant to many of the "staples" of my previous diet, I've been trying foods that I've never had before. I used to be a really picky eater, but since I'm forced to try new foods, I'm learning to enjoy the experience and the tastes of things that I didn't know existed. There are a lot of interesting tastes out there!

  • 2 weeks later...
kitchen-chemist Newbie
kitchen-chemist
Posted

I don't have an official diagnosis. I tested negative for top 2 Ab, and it would cost a ton of money to run the whole panel and do the biopsy. My grandmother WAS officially diagnosed, as was her sister. Both my sister and myself share similar symptoms, but mine had progressed to the point where I was nearly always nauseous, bloated, and chronic stomach cramps. I eliminated gluten and felt loads better. Personally, I have no doubt. Accidentally eating a granola bar with wheat and barley and w/in 30min I was sick to my stomach. My question regards cheese. I've known for years that I don't make much lactase (the enzyme that metabolizes milk sugar). A little lactose free milk with cereal doesn't seem to bother me. I eat yogurt all the time with no problem, and as long as I've not pissed off my innards by accidentally ingesting wheat, I can even eat a small bowl of ice cream w/o taking a lactase pill. I will get gassy if I over-do. 2x now I've eaten Chipolte flavored white cheddar (Kroger's Private selections) and it's caused a gluten-like reaction. It isn't as severe as if I went and ate a piece of bread, but still all the same symptoms. Wheat isn't listed and no other suspect ingredients, so I'm flummoxed. I REALLY HATE being ill. Until I went gluten free, it was a whole year of intestinal roller coaster that had only gotten worse and worse. Do I avoid all cheese for awhile? Stick to the white cheeses? How would I find out if I have a casein cross-allergy?

cahill Collaborator
cahill
Posted

2x now I've eaten Chipolte flavored white cheddar (Kroger's Private selections) and it's caused a gluten-like reaction. It isn't as severe as if I went and ate a piece of bread, but still all the same symptoms. Wheat isn't listed and no other suspect ingredients, so I'm flummoxed. I REALLY HATE being ill. Until I went gluten free, it was a whole year of intestinal roller coaster that had only gotten worse and worse. Do I avoid all cheese for awhile? Stick to the white cheeses? How would I find out if I have a casein cross-allergy?

do you react to plain cheddar cheese?? Do you react to nightshades ?( chipolte chile in the cheddar cheese )

  • 2 weeks later...
kitchen-chemist Newbie
kitchen-chemist
Posted

I've seen my lactase production decrease over the past decade, and used lactase pills or lactase free products to compensate. No doubt, this was due to the damage the Celiacs was causing, of which I was unaware. I've been gluten free for about a month (a couple of glutenation incidents aside) and realized that even with gluten free/lactose free dairy products (other than yogurt...seems not to bother me), I'd still feel like I'd been mildly glutenated. Generally, I'm fine by the next day, but it's still unpleasant. So, I decided to ditch dairy for awhile after reading about other folks how were sensitive to the casein. I think that's my problem. :( Soy milk plus a certified gluten free granola cereal and I'm fine. The same cereal plus lactose free milk gives me a mild nauseous feeling and gas.

I decided, since I'm very fond of cheese and ice cream, that I'd give it up for Lent (2 birds, one stone) lol. So, it'll be awhile before I can test goat cheese to see if it is different enough that my body doesn't see it as antibody target. I hope so, b/c life w/o cheese would be very sad. Next question I'll have to test is whether I can handle frozen yogurt, or if that too is off limits now. :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.