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Documentary About Celiac Disease


celiacstudent

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celiacstudent Newbie

Hello Dear Members

I just recently finished this documentary about Celiac Disease. And I want to share it with the world. There are very few documentary's out there and that's the reason I made one. LETS SPREAD OUR STORIES

Let me know what you think about it :)

Click on the link to watch it in high definition on youtube if you want :)

Thanks


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celiacstudent Newbie

Did anybody like it? No Feedback?

Greetings

Marilyn R Community Regular

I absolutely loved it!

You produced a wonderful documentary, and I'm going to share it with everyone I know, most importantly relatives. Well done! I think your documentary will make a difference in their understanding of the disease.

Fire Fairy Enthusiast

I think it's great. I was just diagnosed in November so I'm not a very informative critic. I must say you could add Migraines to your list of symptoms. And you could mention other problems that are linked to celiac besides thyroid. For example some people develop type 1 diabetes from years of untreated celiac disease. Many women have miscarriages. Etc.

Sometimes you have to give posts on this forum time for everyone to read them. Give it more time and I suspect you will have more feedback.

PS I too will share it with the world.

Kimbalou Enthusiast

Thank you for your post...great video. Do you have Celiac too?

SaraKat Contributor

I just watched it- very nice! I'd be interested to hear more about the vaccine they are working on! Interesting at the end asking random people if they have heard of it! I ask people that question a lot and surprisingly a lot of people have heard of it.

I hadn't heard of it until I got diagnosed though (well, I should say until I started researching what could be wrong with me)!

Mama Melissa Enthusiast

Great Job!!!!!Very informative,i must say it feels good to have someone acknowledge our disease as a serious medical problem than just a minor allergy! 2 thumbs up


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Terri O Rookie

Great Job!!!!!Very informative,i must say it feels good to have someone acknowledge our disease as a serious medical problem than just a minor allergy! 2 thumbs up

I liked it too...I will definitely send it to my family! Thanks!

celiacstudent Newbie

Thanks for your responses :)

I really appreciate your feedback. I could add some more information about the symptoms...

The important thing now, is to make our issue popular! I am right now in Malaga Spain and it is really nice hear to eat gluten-free ( lots of stuff has label on it "sin gluten") but however in the restaurants nobody has a real appreciation for it..

Thank you for your post...great video. Do you have Celiac too?

Yes i am a celiac as well.

Thanks again :)

Camp Laffalot Newbie

Thanks for your responses :)

I really appreciate your feedback. I could add some more information about the symptoms...

The important thing now, is to make our issue popular! I am right now in Malaga Spain and it is really nice hear to eat gluten-free ( lots of stuff has label on it "sin gluten") but however in the restaurants nobody has a real appreciation for it..

Yes i am a celiac as well.

Thanks again :)

BRAVO! If I could give you an Oscar for this, I would! Well done....and thank you!

GFinDC Veteran

Really well done video! I just have one little nit-pick. In the narration at about 6 minutes and 20 seconds is is stated that "when gluten is eaten the bowel will get infected". It is in the section where the body outline is shown. We don't get infected by gluten though, as it is not a living organism. Gluten does trigger an immune system reaction that creates antibodies that damage the small intestine.

celiacstudent Newbie

Really well done video! I just have one little nit-pick. In the narration at about 6 minutes and 20 seconds is is stated that "when gluten is eaten the bowel will get infected". It is in the section where the body outline is shown. We don't get infected by gluten though, as it is not a living organism. Gluten does trigger an immune system reaction that creates antibodies that damage the small intestine.

Thanks your are absolutely right my interviewed specialist already noticed that. In 10 Minutes time I didn't want to go too deep in the medical aspect. Though it is wrong, but an infection may have a similar effect. Anyway I might correct this.

Thanks

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
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