Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Must Apologize

jenngolightly

By jenngolightly
in Coping with Celiac Disease

Recommended Posts

jenngolightly Contributor
jenngolightly
Posted

I have always had tough side effects from gluten. I'd writhe in pain and have to stay home for days because I couldn't be 20 feet away from the toilet. Migraines, vomiting, cold sweats, etc.

But the other day it happened. I was in such terrible pain that I had my son take me to the ER. I tried to wait it out, but it kept getting worse and worse. By the time he took me, it felt like I was having contractions!

I used to read posts from some of you who would talk about going to the ER for post-glutening symptoms and I'd always think to myself, "Geesh, suck it up!"

Now I can be so much more sympathetic!

So here's my interesting story...

I ended up getting a CT scan of my abdomen. They needed me to drink about a quart of this liquid "contrast" so they could see what was wrong. Fine. No problem. I'm dying, but I'll drink your liquid contrast.

They bring me this red drink and I drink two sips and throw up. I TOLD them that I don't eat gluten, sugar, dairy, corn, soy, preservatives, artificial stuff, etc. It's been out of my system for so long that my body expelled it as soon as it got to my stomach. It was actually quite funny now that I think back. :-)

I asked to see the ingredients of the drink they gave me. Of course it was fruit punch with the contrast mixed in. Supposedly this contrast stuff is awful tasting. So I told them again about what I do and don't eat. So they bring me some kind of powdered juice drink with no sugar mixed with the contrast in it. The doctor came in to give it to me. By then I was out of my mind in pain and screaming that I don't drink that sh*t and just bring me the g*d d*mn contrast and I'll drink it straight from the bottle!!!! The doctor was furious with me and telling me that it tastes terrible and he's sure I won't drink it. I'm telling him that I threw it up when it was mixed with the juice, so how much worse could it be? He STORMED out of the room. A nurse brought me water with the contrast. Wouldn't you know? It tasted fine.

All ended well. I was given some super-duper laxatives and sent home that night on Oxycontin.

I'm still mad at that doctor for getting angry that I wouldn't drink fruit punch or diet fruit punch, so I'm not tempted to go back to the ER anytime soon. Having food issues is tough and when you're in a confined space like an ER, it's more difficult.

So a big I'M SORRY to all of you who've gone to the ER when you've suffered from gluten poisonings! I'll read your posts with sympathy from now on. :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kwylee Apprentice
kwylee
Posted

So glad you stood up for yourself. Isn't it doctors who are supposed to go by the adage, "First do no harm"????

I had to smile at your story. Would have been great if you would have barfed on his shoes!! Hope you're feeling much better.

Roda Rising Star
Roda
Posted

We don't give our patients the contrast with anything BUT water. On occasion when we have a child we may mix it with some kind of punch, but water is usually the only option at my facility. Glad you survived the glutening!

K8ling Enthusiast
K8ling
Posted

Oh my goodness, that's like when I went to the ER for an IV from my morning sickness and he ran a Pregnancy test (not quant, just one to see if I was pregnant!!) and gave me a bunch of tests before even getting me an IV! And then he gave me the wrong anti nausea!! I had told them when I came in that Ineeded an IV and some IV zofran and he totally ignored me. And brought me CRACKERS! After I told him I had Celiac!!

My OB said ER doctors hate to be told what to do, I bet this was the case here too. I hope you never have to go back!!!!!

jenngolightly Contributor
jenngolightly
Posted
  • Author

I've found that most times people are pretty nice about my diet, but I wonder if deep down they don't really believe that you can be THAT resolute about not eating things that you can't tolerate. Especially for medical reasons. As if the doctor was SURE I'd drink fruit punch at that moment because it was medically necessary (thanks Roda for clearing that up for me). It's not that I wouldn't drink it, but I clearly couldn't drink it because I vomited my lunch all over the poor nurse (yes, kwylee - would have been great if the doc had been next to me at that specific time). I should have known to ask what that fake pink stuff was that they were shoving in front of me, but I was in so much pain that I trusted the medical staff. They're always in a hurry with too many patients. I wonder how I could handle it better next time? If I have to go back, that is. I'd rather be prepared - but I hope I never have to go - thanks for the story K8ling! :D

cyberprof Enthusiast
cyberprof
Posted

My OB said ER doctors hate to be told what to do, I bet this was the case here too. I hope you never have to go back!!!!!

Ha ha LOL! My "baby" brother is an ER doc.

  • 1 month later...
hammergirl Newbie
hammergirl
Posted

This is a random comment: but I seriously hope that I can get my body to immediately react to gluten the ways yours did! I would much rather take a momentary vomit rather than dealing with the pain and cramping and serious D!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenngolightly Contributor
jenngolightly
Posted
  • Author

This is a random comment: but I seriously hope that I can get my body to immediately react to gluten the ways yours did! I would much rather take a momentary vomit rather than dealing with the pain and cramping and serious D!

I'm quite sure I threw up because of the sticky-sweetness of the punch because I don't eat sugar or artificial sweeteners. The mixture was gluten-free. Yes, it would be great if I could immediately vomit from gluten.

It's funny you wrote this now because I was at the grocery store and in the juice isle yesterday for some reason. I saw a jug of Hawaiian punch and I felt distinctly nauseous and had to quickly exit towards the meat department. :-)

WhenDee Rookie
WhenDee
Posted

Oh, lovely. A doctor who knows FAR LESS than he THINKS he knows. Always a delight. ;)

Too bad this kind of doctor is so darned commonplace.

sandrad Newbie
sandrad
Posted

Funny...when i had my ct scan a few years ago the contrast was mixed in water and it tasted fine...now barium is another thing ;p

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    2. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    5. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748
    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.