Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help Me With Diarrhea Tired Of The Er!


maelenebaby

Recommended Posts

maelenebaby Newbie

Hi everyone i have been on a gluten free diet for 2 weeks and havent noticed an improvement. Im tired of eating rice but am trying to be patient. In the meantime I have been going to the ER once a week due to dehydration. my heart rate is 150-170 and they give me fluids and send me home. I do drink 2 liters of gatarade every morning and some water but still end up in the hospital. I cant take immodium because I am allergic. I do drink soy milk and am planning on stopping it today. Can someone please help me on what I should take for the diahhrea? I was thinking metamucil but the dr says it will make it worse. I am desperate please help I want my life back.

I am tired of the pain and weakness. I go out about 4 times early in the morning. Please help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It does take some time to heal. What are you eating other than rice? You should be trying to stick with whole unprocessed foods in the beginning. Dropping the soy milk is a good idea for right now as some of us do react to that also. Try a rice milk, almond milk or hemp milk. Do NOT go with Rice Dream, Pacific makes some safe milks and if you have a Wegmans nearby their rice milk is also safe.

If you like sweet potatoes or yams those may help with the D. Cream of Buckwheat is soothing, if you can find the Pocono Brand that has no chance of cross contamination.

Are you taking any supplements or script or OTC meds? If you are please call the companies that make them and make sure they are gluten free. Some supplements will say gluten free but still have wheat and barley grass, you don't want those.

Do be sure to avoid dairy for now also if you are not already.

maelenebaby Newbie

It does take some time to heal. What are you eating other than rice? You should be trying to stick with whole unprocessed foods in the beginning. Dropping the soy milk is a good idea for right now as some of us do react to that also. Try a rice milk, almond milk or hemp milk. Do NOT go with Rice Dream, Pacific makes some safe milks and if you have a Wegmans nearby their rice milk is also safe.

If you like sweet potatoes or yams those may help with the D. Cream of Buckwheat is soothing, if you can find the Pocono Brand that has no chance of cross contamination.

Are you taking any supplements or script or OTC meds? If you are please call the companies that make them and make sure they are gluten free. Some supplements will say gluten free but still have wheat and barley grass, you don't want those.

Do be sure to avoid dairy for now also if you are not already.

im just eating rice and meat like chicken or pork or beef. real plain foods. i do eat sweet potatoes and regular potatoes but those are my own two carb choices at the moment. im also going to cut out eggs i think i may be allergic. what supplements would u recommend to stop diarrhea?

ravenwoodglass Mentor

Have you had any stool samples done to rule out a food or bacterial infection? If not do call your doctor and insist on them. I had salmonella for over 3 weeks with the doctor just telling me that my IBS (this was prediagnosis for celiac) was just acting up when it really was salmonella. That should be your first step in trying to stop this. If your D is severe enough that you are having to go to the ER for rehydration they need to rule food or bacterial poisoning out.

I don't know of any supplements that will help with D that severe. Some people find probiotics to be helpful but I haven't used them so can't advise on a brand.

Have you been diagnosed or had any celiac screening done? If you have and this is a long standing problem then do keep up with the diet. I would drop the Gatorade and go with straight water for now. Rinse your plain rice in a new strainer before cooking it, if you have been using a strainer that had been used for pasta then the residue in the holes may be CCing you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748

    Jean Kemling
    Newest Member
    Jean Kemling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...