Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Observations From A Newbie..


MEH

Recommended Posts

MEH Apprentice

Observations from a Newbie

1) I can't believe I am still married. Which brings up observation number 2:

2)My husband is a saint. I was so very tired, so sick and so moody and depressed for ten years, I'm not sure how he hung in there, but he did.

3) I am adjusting to the new "me." It's wonderful to not be so tired after a trip to the grocery store, but I find that it's taking time to adjust. I keep acting like the old me even though I don't feel like the old me. I think, "I should rest when I get home for a little while before making dinner" and so I do, even though I don't really need to anymore. I have to adjust to the "new normal."

4) It sure is wonderful not to feel like a crazy woman half the day, but again, I have to set up new reactions for myself---new guidelines for behavior. My husband, for example, is accustomed to doing his own thing quite often in the evening--like reading a book--but the new me wants to sit and talk and engage more. I'm not looking to go to bed as early. We are all adjusting to my feeling better.

5) Part of me doubts all of this. You mean, it's just this easy? Don't eat gluten and I'll be better? Is it really possible? No surgeries needed? No million dollar drugs? I always thought that whatever was wrong with me was not able to be pinpointed--and that if it was--it would be something complicated and hard. It's taking time to adjust to having a reason behind my health issues---and it's a simple one. Now matter how wonderful that is, it's an adjustment.

6) It's a hard diet. So many hidden sources of gluten. I am learning patience with myself as I struggle to eat and do the right things.

7) I must have appeared to be a hypochondriac at some point. And now that I can pretty much say, "well, this is it--it's gluten," I'm not certain everyone believes me. I don't blame anyone. My list was pretty long: MS, Bladder disease, asthma, allergies, reflux, fatigue.....

8) I don't miss wheat. I noticed in the past I'd avoid it quite often, as if my body had its own built in intelligence.

9)I can't believe that I'm better. I'd given up hope. I didn't care anymore, really. It was too painful to care. But hope will slowly seep back into my life, now that I'm not so tired and grumpy and achy and fog brained and depressed.

Thank you life.

Thank you all, too...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

I know a lot of people here can relate. I hope you continue to feel better and better

wheeleezdryver Community Regular

Those are great observations!! AWESOME!!!

GFshay Apprentice

It's so true that it sometimes seems amazing that the answer is so simple... even though it can be hard to stay safely gluten-free. I think a lot of us felt like hypochondriacs. Just to think about the fact that it wasn't all in my head makes me feel like crying out of relief. It's nice to feel justified.

CeliacMom2008 Enthusiast

As a parent of child with Celiac, I couldn't agree more with everything you said! It's wonderful when it's yourself, it's a miracle beyond words when it's your child who doesn't have cancer, doesn't need surgery, can laugh, can stay up past 7:00, can run on the soccer field, can get good grades, can grow up to be a healthy, happy person!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.