Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sushi Assistance


hunter6009

Recommended Posts

hunter6009 Rookie

Hello everyone! I need some assistance from my fellow celiacs who love sushi. I've been gluten-free since Nov. 27th 2010 and prior to that was a sushi HOUND! I literally ate it as often as possible. Soooo, I haven't given up sushi, just making gluten-free choices. I know the normal things to change (soy sauce, tempura, checking the rice, etc), but my issues are with the not so norm items. Most of the sushi restaurants in my area are operated by Korean-speaking sushi chefs. Okay- problem solved, right? I printed off a celiac dining card in Korean and thought that would handle it. Well that just seems to confuse them even more. Apparently celiac disease does not translate well into Korean. It just scares the crap out of them and they tend to end up saying things like "we can't serve you". Huh?! I've had multiple conversations trying to educate sushi chefs and servers, but it's hard to determine what in their kitchen is exactly gluten-free and not. For example, their mayo? Have no clue! What about the spicy tuna..is the "spicy paste and spices" they use gluten-free? They don't know! Then their are those restaurants that won't tell me their "special ingredient" they add to their rice (like I'm going to steal their special recipe!). The whole rice vinegar thing is very daunting to explain. Korean celiac card doesn't translate well...I think one place it adding malt vinegar so okay, I get that one. But plain rice vinegar is fine, right?!

Can someone help me so I can TRY to eat gluten-free sushi? At least attempt to pick the things with the safest bet?

Thank you!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

My guess is that some of your diet would have to change too -- For example much of the Korean nori (Seaweed) is processed with soy sauce and Japanese is not. Chinese Nori is well 50/50 chance.

So, if you can find out that they use rice vinegar and not malt vinegar, you may have to stick to fish and not spicy tuna rolls. Some of the pickles, both japanese tsukemono and korean types, may have some soy sauce too.

Maybe some of the Koreans can read the Japanese celiac card which explains things fairly well.

Took some time to teach my chef buddies in Tokyo about celiac but now they keep special sauce for me and use different starches and thickeners instead of wheats.

Good luck

Hello everyone! I need some assistance from my fellow celiacs who love sushi. I've been gluten-free since Nov. 27th 2010 and prior to that was a sushi HOUND! I literally ate it as often as possible. Soooo, I haven't given up sushi, just making gluten-free choices. I know the normal things to change (soy sauce, tempura, checking the rice, etc), but my issues are with the not so norm items. Most of the sushi restaurants in my area are operated by Korean-speaking sushi chefs. Okay- problem solved, right? I printed off a celiac dining card in Korean and thought that would handle it. Well that just seems to confuse them even more. Apparently celiac disease does not translate well into Korean. It just scares the crap out of them and they tend to end up saying things like "we can't serve you". Huh?! I've had multiple conversations trying to educate sushi chefs and servers, but it's hard to determine what in their kitchen is exactly gluten-free and not. For example, their mayo? Have no clue! What about the spicy tuna..is the "spicy paste and spices" they use gluten-free? They don't know! Then their are those restaurants that won't tell me their "special ingredient" they add to their rice (like I'm going to steal their special recipe!). The whole rice vinegar thing is very daunting to explain. Korean celiac card doesn't translate well...I think one place it adding malt vinegar so okay, I get that one. But plain rice vinegar is fine, right?!

Can someone help me so I can TRY to eat gluten-free sushi? At least attempt to pick the things with the safest bet?

Thank you!!!

Looking for answers Contributor

My only tip is that you have to be sure to order real crab...most use imitation which contains wheat.

cassP Contributor

i used to work at a japanese restaurant- and they used rice vinegar with the rice to make it more sticky.

ive only had sushi out maybe 3 times since going gluten free last july- and i just stick with rolls with avocado, shrimp, cucumber, cream cheese.. real crab IF they have it. i bring my own gluten free soy sauce, and i just assume they put rice vinegar in their rice. and ive been okay. i really really really really really miss my Unagi tho :(:(:( Big time :(

kenlove Rising Star

ask them to make unagi ( or anago) with a little salt water instead of the sweet soy sauce. Not the same but close!

i used to work at a japanese restaurant- and they used rice vinegar with the rice to make it more sticky.

ive only had sushi out maybe 3 times since going gluten free last july- and i just stick with rolls with avocado, shrimp, cucumber, cream cheese.. real crab IF they have it. i bring my own gluten free soy sauce, and i just assume they put rice vinegar in their rice. and ive been okay. i really really really really really miss my Unagi tho :(:(:( Big time :(

cassP Contributor

ask them to make unagi ( or anago) with a little salt water instead of the sweet soy sauce. Not the same but close!

thanku so much! i was under the assumption that most places have it already marinated... maybe even shipped that way??? but i'll keep that in mind for sure B)

kenlove Rising Star

Some do but many don't -- it depends on the quality of the restaurant. I'm spoiled because I trained as a chef in Japan and usually had to prepare fresh anago You can buy frozen eel in many bigger Asian markets. If soy is in a marinade it would have to be on the label although I feel safer reading the Japanese than the English translation. If you can find it, you can try it yourself in the broiler.

take care

thanku so much! i was under the assumption that most places have it already marinated... maybe even shipped that way??? but i'll keep that in mind for sure B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,027
    • Most Online (within 30 mins)
      7,748

    EmmaGraceeee
    Newest Member
    EmmaGraceeee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.