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Newbie Dumb Question


lexusca

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lexusca Rookie

OK here it is, did anyone else feel worse when the wert gluten free. I was daignosed aweek ago have been gluten free since then. I feel nauseous after everytime I eat or drink something. A symptom I never had before, will this eventually go away or am I missing something?


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eatmeat4good Enthusiast

Some people feel worse before they start to feel better.

Sometimes it is cross contamination you are not aware of.

Sometimes it is eating too many gluten free products that are processed.

Your stomach needs time to heal.

Eat mostly meat, chicken, fish, vegetables, fruits and nuts and see if you feel better.

Do have a separate toaster? Scratched pans? Gluten eaters in your home? Do you kiss someone who eats gluten? Including the dog? These are potential sources of contamination.

I hope you feel better soon. I had terrible nausea before I went gluten free. It cleared up after.

But many others have noticed that too.

Welcome!

I'm sure others here will have some good information for you.

Oh yeah, and secondary intolerances like dairy, soy, nightshades could be surfacing too.

kareng Grand Master

For me, maybe not you, but you can decide: I would get nauseous when I started worrying about " is the food gluten-free?". " OMG! Did I check the label?"

This was just psychological and went away, mostly. I still have panic moments but I stop & think. I'm thinking of putting " Don't Panic" in large reassuring letters on the front of my recipe book.

(Any Hitchhiking through the galaxy fans?)

psawyer Proficient

(Any Hitchhiking through the galaxy fans?)

42.

kareng Grand Master

42.

I keep a towel with me at all times ( except in the shower).

T.H. Community Regular
I feel nauseous after everytime I eat or drink something. A symptom I never had before, will this eventually go away or am I missing something?

That was me, too. Never had nausea with eating, and then suddenly, I had it after going gluten free, within days.

For me, it turned out to be two things:

1 - I was more sensitive to gluten than average and reacted to many gluten free foods' level of gluten.

2 - Turns out I have food allergies and intolerances. No signs before this, no hives, no nothing. But after going gluten free, I started reacting to some other foods with headaches, or nausea, or a few other things. I had to drop my diet to very unprocessed foods - fruits, veggies, plain meat, etc... - and keep a food journal to get a start on finding these. Finally got allergy tests, but the food journal found the problem foods faster than I got the tests, and the tests actually pretty much confirmed much of what I'd found out with the journal. Some reactions that would include gas or inflammation of the intestines would then flare up every time I consumed something, for a few days following the 'bad' food.

Another problematic issue was that a couple of my allergies were foods that are in much higher concentrations in the processed gluten-free food.

Also...hmmm...have you been eating a lot of dairy or items with xanthan gum? Many celiacs are lactose intolerant until they heal. Also, a number of people are sensitive to xanthan gum and react with gut symptoms. That could be a problem. Again, sometimes those reactions pretty much wax and wane from the time the food goes in your belly until it comes out the other end (to be a bit too graphic).

mushroom Proficient

Yes, many of us get symptoms we never had before after going gluten free. Many of these symptoms are intolerances to other foods that were masked previously by the body being overwhelmed by the gluten. Once the gluten load is relieved we are able to hear the other voices piping up, "What about me?" :)

These foods for me were mainly soy and nightshades, but everyone is different and every reaction is different. My other foods made me itch like crazy with red rashes itching and hives; you may have whatever kind of response your body uses to deal with such problems. (I have always been a skin reaction type person; that is why I have psoriasis :lol: )


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lexusca Rookie

tks for all the feedback makes me feel not so narotic. Dumb question 2 what the heckis nightshades I have never heard of it.

psawyer Proficient

Nightshades are a plant family that includes potato, tomato, eggplant, tobacco, sweet pepper, and other plants.

MsCurious Enthusiast

Speaking of nightshades, if you're allergic to one or two for sure...are you allergic to the rest? Or is that a random thing too?

mushroom Proficient

I don't risk it, except for a little cayenne pepper. and paprika Tomatoes and potatoes were definite positives for me, and I had always kinda avoided green peppers, I guess for a reason.. Lurved eggplant, but I cut them all out until I hope my leaky gut is healed and then I will try them again, starting with eggplant. Since I have RA it is just not worth it to me right now.

lexusca Rookie

tks for all the info. It is a steep learning curve which I am sure I am getting slowly but surely. You guys are a great resource and I am glad your out here for all of us newbies. I am sure before long I will be 1 of you all(being able to give good knowledgeable advice that is)

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    • Theresa2407
      Usually when I digest gluten or wheat I have a 4 hour window before reacting.  If it is immediate it may be an intollerence to another food.  Dairy, Frutose, and bacteria (SIBO) will react with many of the celiac disease symtoms.Has your Doctor ran a  Fructose test which is measuring your Fruit Sugar?  A Hydrogen Beath Test which checks your intestinal bacteria and Dairy?After my biopsy and blood work, these (3) tests were also ran, along with allergy tests, which allery test was sent out of State.  It was a mouth swab. How fast you heal depends on the diet you are following… The following are my personal recommendations to healing. I talk to many newly diagnosed people who start the gluten-free diet with pasta, breads, snacks, and pizza. After a month or so, they do not know why they don’t feel any better and still are sick with their original symptoms: They worry the diet is not working for them. 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I use Calm because my body doesn’t absorb Magnesium and I only need to take once in evening.                                                    No dairy of any kind (milk, cheese, yogurt, No breads, No past,  No oats, No pizza, No gluten-free beer, No snacks like cake, biscuits, pies, donuts.                                                                                                Many dietitians will tell you to follow a gluten free diet but you have to heal first. Don’t misunderstand me, dietitians are our friends and help us.                                                                                              10% of people with gluten-free will be intolerant to dairy                                                                                  10% can not tolerate oats                                                                                                                     After the six weeks, you can start to add these foods back into your diet. 1 new food every 4 days; this way you know if you react to this food.                                                                                                  Oats shouldn’t be tried for 1 year after being diagnosed; then start with 1/3 of a cup. 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First 6 weeks should be: lean meat (beef, pork, chicken, turkey, salmon, sardines, buffalo, deer) fresh vegetables (steamed or roasted with a little Olive Oil) with 2 cups per day being raw (5 servings; a serving is 1/2 cup) fresh fruit (3 servings; include strawberries, blackberries and blueberries daily) a hand full of almonds daily (pecans and walnuts can be substituted) brown rice lentils Citrucel daily (or the equivalent) Good source of fiber. No dairy of any kind (milk, cheese, yogurt) No breads No pasta No oats No pizza No gluten-free beer No snacks like cake, biscuits, pies, donuts. Many dietitians will tell you to follow a gluten free diet but you have to heal first. Don’t misunderstand me, dietitians are our friends and help us. 10% of people with gluten-free will be intolerant to dairy 10% can not tolerate oats After the six weeks, you can start to add these foods back into your diet. 1 new food every 4 days; this way you know if you react to this food. Oats shouldn’t be tried for 1 year after being diagnosed; then start with 1/3 of a cup. Only gluten-free Oats are acceptable. You should have results within 3 days of following a correct healing diet. Bloating should be leaving, migraines should be gone. Might take bowels a little longer to respond. If you start with 5 times a day on the Citrucel and cut back as your bowels return to normal; then use 1 Tbsp. daily. This works if you have constipation or diarrhea. Meanwhile make sure you have had a Dexa test (bone density) and a blood test to check your vitamin and mineral levels: Zinc, D,K,B,C and iron levels. Don't take supplements while healing as your body is not accepting them and they will flush through your body. Have you had a breath test for Dairy, Fructose, and bacteria overgrowth? Should have done when first diagnosed. Remember to have a tTg IgA blood test repeated at 6 months then every year after, with another scope done in 3 years. Only way to know if you are healed. I don’t have all the answers; we are learning everyday new ways of doing things, but this is a start! Remember to have a tTg IgA EMA blood test repeated at 6 months then every year after 
    • Wheatwacked
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    • Rogol72
      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
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