Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Again By So Called "gluten Free"

GFreeMO

By GFreeMO
in Coping with Celiac Disease

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

A few hours ago for lunch, I made myself a plain burger. I ate that with Heinz ketchup. I know this is safe as I have eaten it a million times. I usually eat Lays plain Stax but since reading Frito Lays gluten free list, I decided to try Lays Classic plain chips. With in an hour of eating the chips, I got my normal reaction, short of breath, flushed face, extreme bloating and D.

I suspect that Frito Lays has a huge CC issue going on. It just makes me furious that some companies claim products to be gluten free and then we get really sick.

Makes me want to eat nothing processed. I could have cut up potato and fried them in some oil and made my own chips and I wouldnt be feeling so badly right now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

A few hours ago for lunch, I made myself a plain burger. I ate that with Heinz ketchup. I know this is safe as I have eaten it a million times. I usually eat Lays plain Stax but since reading Frito Lays gluten free list, I decided to try Lays Classic plain chips. With in an hour of eating the chips, I got my normal reaction, short of breath, flushed face, extreme bloating and D.

I suspect that Frito Lays has a huge CC issue going on. It just makes me furious that some companies claim products to be gluten free and then we get really sick.

Makes me want to eat nothing processed. I could have cut up potato and fried them in some oil and made my own chips and I wouldnt be feeling so badly right now.

You know, I have been wondering about Lay's chips. They are the one thing I "sneak" from time to time. I eat NO OTHER PACKAGED FOODS!! and I,too get flushed face, scratchy throat and short of breath!! OMG!! I have wondered what was messing with me!! Maybe that's it for me, too ...WOW.... Thanks for posting this!! It's been a mystery....I feel like an idiot.

I am so Sorry you feel so bad :(

Monklady123 Collaborator
Monklady123
Posted

You know, I have been wondering about Lay's chips. They are the one thing I "sneak" from time to time. I eat NO OTHER PACKAGED FOODS!! and I,too get flushed face, throat scratchy and short of breath!! OMG!! I have wondered what was messing with me!! Maybe that's it for me, too ...WOW.... Thanks for posting this!! It's been a mystery....I feel like an idiot.

I am so Sorry you feel so bad :(

Yeah, I don't trust Lays. Next time you want a chip try Utz brand. It says right under the ingredients list "this is a gluten free food." :)

Hope you feel better soon.

IrishHeart Veteran
IrishHeart
Posted

Yeah, I don't trust Lays. Next time you want a chip try Utz brand. It says right under the ingredients list "this is a gluten free food." :)

Hope you feel better soon.

BUT the Lay's bag says "Gluten Free" too!! so much for that!! I'll try the Utz..Hubby says we should eat Cape Cod brand as we KNOW that's all they make at their factory ...thanks!

IrishHeart Veteran
IrishHeart
Posted

Yeah, I don't trust Lays. Next time you want a chip try Utz brand. It says right under the ingredients list "this is a gluten free food." :)

Hope you feel better soon.

Since we are on the topic of gluten-free foods "are they/aren't they?"....I WAS eating Oscar Meyer cold cuts. Supposedly gluten-free/CF/SF, so THEY say...but felt "spacey" --one of my "tells" -- after eating it so I stopped.

Are Oscar Meyer deli cuts in the package "safe"..??would you happen to know??

Lisa Mentor
Lisa
Posted

The term "gluten free" is not yet a legal standard in the US. All labeling gluten free labeling is voluntary. Most companies do not test, to claim a "gluten free" status, or at least under the 20ppm suggested as a standard.

What I have seen and most likely will see more of in the future is companies claiming "no gluten ingredients". That will relieve them of any cross contamination claims, nor the obligation to test.

It's not perfect, BUT...WE'VE COME A LOOONG WAY BABY! B)

IrishHeart Veteran
IrishHeart
Posted

The term "gluten free" is not yet a legal standard in the US. All labeling gluten free labeling is voluntary. Most companies do not test, to claim a "gluten free" status, or at least under the 20ppm suggested as a standard.

What I have seen and most likely will see more of in the future is companies claiming "no gluten ingredients". That will relieve them of any cross contamination claims, nor the obligation to test.

It's not perfect, BUT...WE'VE COME A LOOONG WAY BABY! B)

Hi Lisa,

No gluten ingredients would be a lot clearer!! I am aware of this <20 ppm thing (and I agree with you that this country is waaaay behind other countries in this regulation) but I was HOPING...foolishly...that a company's word was good. It's not. I have been burned many times. Oh well.

I think a product made in a "dedicated" gluten-free factory is about as good as it gets.

I am lucky! We have a totally gluten-free bakery/restaurant near us. Only place I feel safe to eat!! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I just want to add that many of us have a wide spectrum of sensitivity. Some people can be ill from a product that contains no gluten ingredients (due to cross contact), whereas some have eaten the same product for years without issues.

Many times its trial and error and individualized. It doesn't necessarily mean that a particular product is not safe for others :)

GFreeMO Proficient
GFreeMO
Posted
  • Author

Ive never heard of Utz chips. I don't think they have them in my part of the country. (Missouri) Anyone know where I can find them?

Lisa Mentor
Lisa
Posted

Ive never heard of Utz chips. I don't think they have them in my part of the country. (Missouri) Anyone know where I can find them?

Open Original Shared Link

Open Original Shared Link

GFreeMO Proficient
GFreeMO
Posted
  • Author

The Utz chips look great and what an allergy friendly company! It looks like they are mostly on the east coast. Too bad they are no where to be found in my area.

I have been eating the plain Lays Stax for 2 years before I tried these Lays Classic chips today and never had a problem with them. They are made on dedicated equipment in a whole other country. Mexico

Back to Stax for me. Live and learn I guess. Celiac makes you want to stick with tried and true brands and never veer from them.

Lisa Mentor
Lisa
Posted

The Utz chips look great and what an allergy friendly company! It looks like they are mostly on the east coast. Too bad they are no where to be found in my area.

I have been eating the plain Lays Stax for 2 years before I tried these Lays Classic chips today and never had a problem with them. They are made on dedicated equipment in a whole other country. Mexico

Back to Stax for me. Live and learn I guess. Celiac makes you want to stick with tried and true brands and never veer from them.

Well then, live a little....ALL flavored STAX are gluten free. Branch out for the BBQ! :P

IrishHeart Veteran
IrishHeart
Posted

Well then, live a little....ALL flavored STAX are gluten free. Branch out for the BBQ! :P

I think I am just "super-sensitive" right now :P I seem to do all right with Cape Cod chips...but, that's ALL they make in their factory...anyway, thanks for your thoughts! Appreciate it!

Robert16 Newbie
Robert16
Posted

I give CAPE COD CHIP a-plus also they are great only snack i get to.

sa1937 Community Regular
sa1937
Posted

The Utz chips look great and what an allergy friendly company! It looks like they are mostly on the east coast. Too bad they are no where to be found in my area.

Utz chips are made in Hanover, PA, which probably explains why that brand is so readily available in grocery stores around here (south central PA).

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I am super sensitive to cc and I eat Wavy Lays all the time without problems, BUT I don't consider them a "gluten free product" I consider them to be something with no gluten ingredients added. Because of that difference in my mind, I wouldn't be too surprised if someday I had a reaction to eating them. When I think of "gluten free products" I think of products that are actively marketed as gluten free, meaning it's printed in BIG letters on the front (not the tiny note under the ingredients) and they advertise as gluten free, are made in a dedicated gluten-free facility or have an endorsement from a gluten-free organization. I know it sucks that a main stream product with no gluten ingredients added cannot be trusted, but I'm much more dissappointed when a company makes bold gluten-free claims and then fails to make a 100% safe product.

I hope you recover quickly from your glutening.

lovegrov Collaborator
lovegrov
Posted

Since we are on the topic of gluten-free foods "are they/aren't they?"....I WAS eating Oscar Meyer cold cuts. Supposedly gluten-free/CF/SF, so THEY say...but felt "spacey" --one of my "tells" -- after eating it so I stopped.

Are Oscar Meyer deli cuts in the package "safe"..??would you happen to know??

They are. Kraft will clearly list any gluten so just rad the ingredients, and I don't think any of their cold cuts have gluten.

richard

T.H. Community Regular
T.H.
Posted

Kraft will clearly list any gluten so just rad the ingredients, and I don't think any of their cold cuts have gluten.

But they still fall into that category of 'no gluten ingredients' rather than 'gluten free and actually testing our products to prove it,' unfortunately.

tea-and-crumpets Explorer
tea-and-crumpets
Posted

I was actually looking at the Lays list today, since I wanted to try the Tostios scoops chips. They say specifically that Lays Classic are gluten free AND that they have tested to less than 20 ppm.

Open Original Shared Link

Is this new? I don't remember anything beyond Stax being tested before. If it is new, maybe you got a batch from before?

Actually, looking at it again it says the list was updated on February 21, 2011.

GFreeMO Proficient
GFreeMO
Posted
  • Author

I was actually looking at the Lays list today, since I wanted to try the Tostios scoops chips. They say specifically that Lays Classic are gluten free AND that they have tested to less than 20 ppm.

Open Original Shared Link

Is this new? I don't remember anything beyond Stax being tested before. If it is new, maybe you got a batch from before?

Actually, looking at it again it says the list was updated on February 21, 2011.

I may have had the older non tested ones b/c the date on my bag was March 8th. I think that they have a shelf life of several months. at any rate, I wont be eating them again. I emailed Frito Lay and they told me that the Stax were still the only chips produced on dedicated equipment.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,007
    • Most Online (within 30 mins)
      7,748
    Comb0001
    Newest Member
    Comb0001
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
    • Scott Adams
      Chances of being coeliac

      By Scott Adams · Posted

      It's most likely going to be a celiac disease diagnosis based on your blood test results, but wait for your doctor to give you a green light for going gluten-free, as they may want to do additional testing. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Wheatwacked
      Chances of being coeliac

      By Wheatwacked · Posted

      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.