Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Considering Getting A Copper IUD

Cypressmyst

Recommended Posts

Cypressmyst Explorer
Cypressmyst
Posted

I'm considering getting a Copper IUD put in. I've heard great things about them but I'd like to hear more stories from people before making my decision. Especially people that have had horrible cramping that may have gotten better after going gluten-free. Did you have problems with cramping return or?

At the 10 month mark being gluten-free and my cramps are nonexistent. I'd like to get off my Ortho but don't want to get pregnant.

Any insight is appreciated! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Emilushka Contributor
Emilushka
Posted

I had the Mirena (not the copper IUD but the one that has hormones) for a year. I got a bunch of abdominal cramping with it, but only with orgasms. My periods were nonexistent and I didn't have menstrual cramping. The orgasm-related pain, however, was the reason I had it taken out. At that time, I didn't have any problems with gluten and my Celiac symptoms had yet to begin.

One of my friends has had Celiac since we were kids and she has also had the copper IUD for years and loves it. She has no problems from it.

koolsharkz Newbie
koolsharkz
Posted

I have a copper IUD, and I love it! I've had it for 3 months, and my cramps did return again at the beginning, but they've disappeared. It's possible that it'll make your cramping worse, but a lot of people find that after the first few months it levels off to where you were at before. It affects everyone differently, so the only way to know for sure is to try it... if the cramps are awful, you can easily get it removed, which was a great reassurance for me! As someone who doesn't tolerate hormones, the copper IUD is so so so fabulous, and I highly recommend it :)

Cypressmyst Explorer
Cypressmyst
Posted
  • Author

Thanks for the feedback guys. Very helpful! :)

Melstar23 Apprentice
Melstar23
Posted

I have had a copper iud for 2.5years and I love it. My period pains never changed, they have never been bad though, and they did't get heavier which is what all the doctors told me would happen. It is good to never have to remember a pill or suffer side-effects from hormones. If it doesn't work out for you, you can just have it removed.

RebeccaLynn Rookie
RebeccaLynn
Posted

I have had my copper IUD for 3 years, and I love it as well! It was a bit uncomfortable at first, but have had no problems or cramping at all since then. I got it before my Gluten Intolerance reared its ugly head, so Im not sure the difference it made, if any. I highly recommend it as it doesn't have hormones, and you don't have to think about birth control at all. Good luck!

  • 3 weeks later...
ilikepie Apprentice
ilikepie
Posted

I also had a mirena IUD and also had horrible cramping after orgasms. I also had severe cramping once when the IUD shifted inside my body randomly. I got it taken out the next day. It scared me to think that this tiny thing could puncture my internal organs or uterine wall. I will never do anything like that again. Or use synthetic hormones. It makes me sick to think that a doctor was willing to put that thing inside me.

I was told that the copper IUD can significantly increase cramping, which was why I opted for the mirena.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Hawthorn Rookie
Hawthorn
Posted

I have had both the mirena and the copper coil. I had to have the copper coil removed because I just bled constantly on it, it really didn't agree with me at all.

The nurse said that was really uncommon, although it can cause heavier periods.

I had no pain after initial cramping with both types of coil. That cramping was gone within a couple of weeks of having them fitted.

Good luck, and i hope it works for you. Take a couple of painkillers before you go to have it fitted, it helps although it's not as scary as you think it will be if that makes sense. It takes seconds :)

  • 3 weeks later...
Cypressmyst Explorer
Cypressmyst
Posted
  • Author

Thank you everyone. I have decided to risk it. I don't see any other option at this point as I don't want hormones and will not use condoms etc. I don't like the thought of it but I like it better than being pregnant at this point. ;)

My Doc (who is also gluten competent btw!) showed me the whole thing and how it is done the other day. Helped to put me at ease a bit too.

Thanks again! :D

  • 2 weeks later...
Cypressmyst Explorer
Cypressmyst
Posted
  • Author

Just had it put in yesterday. Cramping is about half as bad as my worst period cramps. It wasn't pleasant by any means but it wasn't the end of the world either. Over in 5 minutes.

I generally don't take my PAPs well and want to climb the ceiling when they are done. This is my first OB Gyn visit since going gluten free 11 months ago. My body is significantly less inflamed and on edge so that could contribute to the ease of the exam. It was a night and day difference there.

Also I took 800 mg of ibruprofen 30 minutes prior and my doc gave me a prescription for misoprostol 200 mcg. Double the normal dose (ask your doc for it if you are having a PAP and can't stand them. It made a big difference. :) ) so be sure to recommend that to your doc too.

I get better each passing hour with the cramping. I'll keep this thread updated for any who are interested as I go along.

Thanks again!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Dried Chickpeas

      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver. 😺 I react to nutritional yeast the same way as if I were glutened. Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten. The proteins in rice, corn (maize), and chicken meat have them as well. Some pe...
    2. trents
      - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people...
    3. ainsleydale1700
      - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

      Thank you, that is helpful!
    4. Scott Adams
      - Scott Adams replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its...
    5. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Dried Chickpeas

      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,437
    • Most Online (within 30 mins)
      7,748
    vahid
    Newest Member
    vahid
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Dried Chickpeas

      By knitty kitty · Posted

      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver.  😺 I react to nutritional yeast the same way as if I were glutened.  Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten.  The proteins in rice, corn (maize), and chicken meat have them as well.   Some people with Celiac might tolerate them without a problem, but I need to avoid them.  For those still having symptoms, cutting these out of our diet may improve symptoms. 
    • trents
      Confused about HLA-DQ Celiac gene test result

      By trents · Posted

      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thank you, that is helpful! 
    • Scott Adams
      Confused about HLA-DQ Celiac gene test result

      By Scott Adams · Posted

      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      Dried Chickpeas

      By Aretaeus Cappadocia · Posted

      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.