Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had Endoscopy On Thursday...

slightlysilly

Recommended Posts

slightlysilly Newbie
slightlysilly
Posted

Hi all!

This is my first post. I was diagnosed with Crohn's Disease back in November. I was on a low residue diet and meds for Crohn's, but at my last appt with my GI doctor, I told him of some stomach pain I was having so he had me do an endoscopy last Thursday. The endoscopy showed scalloping (?) indicative of Celiac disease but he wanted to do more testing (a gallbladder ultrasound, a genetic test for Celiac, and a pill cam). He said I would need to go on a gluten free diet but AFTER the tests were done. I'm already on a low residue (no fresh fruits, fresh veggies, nuts or fiber)

Anyway, the question is - did anyone's upper GI endoscopy with scallops and inflamation come out with anything OTHER than Celiac? I want to see what my "choices" are here.

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Celiac certainly sounds like the most likely cause. I have no personal knowledge or experience.

ravenwoodglass Mentor
ravenwoodglass
Posted

As far as I know that scalloping is pretty likely to be celiac related, you have a very good doctor. I know the prospect of celiac is daunting but you may find that it also helps your Chrons symptoms. Your doctor is right that you shouldn't start the diet until all celiac related testing is done but when it is finished you should start the diet strictly no matter what the gene tests show. Your in the right place for support and info on what you need to do. Welcome to the board and ask any questions you need to.

slightlysilly Newbie
slightlysilly
Posted
  • Author

Thank you for your response! I looooove my doctor, although the poor guy is getting frustrated with my case because a lot of my meds just aren't working. I kind of want to get the show on the road with the gluten free trial because if that's what is causing the pain... then let's get on it. Alas, I have to wait for the insurance company to give us the green light for more testing... hopefully it will only be a few days until I can start. Until then, it's hard to think the foods I put in my mouth are actually very harmful.

ravenwoodglass Mentor
ravenwoodglass
Posted

Thank you for your response! I looooove my doctor, although the poor guy is getting frustrated with my case because a lot of my meds just aren't working. I kind of want to get the show on the road with the gluten free trial because if that's what is causing the pain... then let's get on it. Alas, I have to wait for the insurance company to give us the green light for more testing... hopefully it will only be a few days until I can start. Until then, it's hard to think the foods I put in my mouth are actually very harmful.

Hopefully you will be able to start soon. Do be sure to check all the meds that you will continue with while you are waiting. Celiac can effect the amount of meds we absorb and some meds like antidepressants many have no effect at all. With antidepressants they are finally realizing that when people don't respond or get worse on them that can be a sign of celiac. I hope the diet helps you and that you are feeling better soon. Do stay in close touch with your doctor as you heal as your med dosages may need to be adjusted and some you may not need anymore.

WW340 Rookie
WW340
Posted

I had scalloping on biopsy, and it was celiac.

There is a high prevalence of celiac disease in crohn's disease. They recently found the genes have a relationship.

Here is a link. Open Original Shared Link

When my doctor tested me for celiac, he also tested me for crohn's. I have the genes for both, but I do not have active crohn's.

slightlysilly Newbie
slightlysilly
Posted
  • Author

Thanks very much for your responses. I CANNOT WAIT until I can get these tests done and get on with it. I am in a lot of Crohn's pain right now and it's getting to the point where I really don't care if I have Celiac and if never eating another ounce of gluten will make me feel better, I'm on it!

I did a little online looking and I see that gluten is even in some of our shampoos... so much to learn!!!

Thanks much though!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


modiddly16 Enthusiast
modiddly16
Posted

Sorta off your topic but I had an EGD and a colonoscopy on Monday and the "twilight sedation" didn't take. I was awake and conscious throughout the entire process and still sorta wake up with nightmares of the pain it caused. I'd definitely recommend anyone getting the test to ask to be put under for it. As if trying to figure out whats wrong with you isn't traumatizing enough.

Sorry, I just had to vent about it somewhere.

Best of luck!

vegan lisa Rookie
vegan lisa
Posted

Sorta off your topic but I had an EGD and a colonoscopy on Monday and the "twilight sedation" didn't take. I was awake and conscious throughout the entire process and still sorta wake up with nightmares of the pain it caused.

I had the exact same experience! It was horrible, but let me add that this experience is also very, VERY rare. Most patients remember nothing, as though they were asleep. I've been told many patients hardly remember going to the hospital at all for the procedure. Very pleasant for most!

I believe the procedure requires the patient to be able to swallow on command, and so the conscious sedation is needed. I knew going in that my lack of response to the medication was likely (I've had trouble before with other medications) and had the anesthesiologist in the room putting meds in my IV during the procedure so I could be more "out" for parts, but "up" for the parts where I needed to obey commands like "swallow". My new GI is considering a gluten challenge followed by a repeat EGD, and I am NOT happy about either going back on gluten or the EGD.

Sorry to hijack the thread, but I've never "met" anyone else who had this lack of proper response to those meds and I couldn't help but reply!

Lisa

modiddly16 Enthusiast
modiddly16
Posted

I'm glad you did. Its good to know that I'm not some freak who experienced something that no one else has. It was truly a horrible experience but I managed through it and if they figure out whats going on with me, I'll be happy. I'm already a diagnosed celiac, so it was to check for some other things but it was just really a less than awesome experience!

slightlysilly Newbie
slightlysilly
Posted
  • Author

Im so sorry you both had a bad experience! Both my endoscopy and colonoscopy were done under I guess twilight sleep. I remember nothing about either procedure. I mean as far as testing goes, neither was bad.

So sorry to both of you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,986
    • Most Online (within 30 mins)
      7,748
    Christine1
    Newest Member
    Christine1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.