Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Severe Hair Issues!

lovinit4

By lovinit4
in Related Issues & Disorders

Recommended Posts

lovinit4 Rookie
lovinit4
Posted

I have been diagnosed with celiac disease within the last four months. After diagnosis I continued to use regular shampoo and conditioner with gluten. About two months ago I purchased gluten free shampoo and conditioner and my hair has gone crazy. My hair is extremely dry and brittle. It has no appeal but dullness and dry. I only stayed with this gluten free stuff for awhile and then went back to the regular stuff! I do not know if this is what caused the problem or what? I have always had dry hair but using the conditioner always helped. Now nothing. My hair is almost impossible to brush thru in the morning due to the dryness. Ugh! Help! Has anyone ever had this problem after going gluten free or using gluten free shampoo?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

I've been pretty unhappy with the gluten-free offerings, too. Have you tried the coconut Desert Essence Organics conditioner? They have a shampoo, too, but I prefer the lemon. The coconut condition is the only one that doesn't leave my hair dry.

ravenwoodglass Mentor
ravenwoodglass
Posted

I use Garneir hair products and most that I have checked are gluten free and leave my hair nice and soft. When my hair has been really dry I have used a light application of olive or coconut oil at night or applied before shampooing warm with a warm towel wrap for 15 minutes or so. Also make sure you are getting enough good fats in your diet.

Looking for answers Contributor
Looking for answers
Posted

I use the Coconut Desert Essence as well. Also, hormonal issues, such as thyroid, can cause problems with your hair. If you've noticed a dramatic change, it may be worth checking into. I did a few years ago and that's how I found out my thyroid hormones were low.

lovinit4 Rookie
lovinit4
Posted
  • Author

Thank you all for replying. I am going to try the coconut product. Hopefully, this will help. I am desperate. I am hypothyroid but recently had labs done and it all looked okay. The journey continues. I am wondering if there could be another allergy that is spinning the hair problem out of control? I am afraid that if I do not find out the problem before long I will also lose all my hair. This is no fun anymore. <_<

ravenwoodglass Mentor
ravenwoodglass
Posted

Thank you all for replying. I am going to try the coconut product. Hopefully, this will help. I am desperate. I am hypothyroid but recently had labs done and it all looked okay. The journey continues. I am wondering if there could be another allergy that is spinning the hair problem out of control? I am afraid that if I do not find out the problem before long I will also lose all my hair. This is no fun anymore. <_<

It may not be the case for you but soy is a problem for me causing not just an itchy scalp when used in hair products but also causes my hair to fall out if I consume any.

Loey Rising Star
Loey
Posted

I have been diagnosed with celiac disease within the last four months. After diagnosis I continued to use regular shampoo and conditioner with gluten. About two months ago I purchased gluten free shampoo and conditioner and my hair has gone crazy. My hair is extremely dry and brittle. It has no appeal but dullness and dry. I only stayed with this gluten free stuff for awhile and then went back to the regular stuff! I do not know if this is what caused the problem or what? I have always had dry hair but using the conditioner always helped. Now nothing. My hair is almost impossible to brush thru in the morning due to the dryness. Ugh! Help! Has anyone ever had this problem after going gluten free or using gluten free shampoo?

Hi,

Body Sense (bodysense.com) has some decent hair products but nothing works like the oldies but goodies. I finally broke down and bought two wigs and use the gluten-free products. I feel like I look normal again when I'm wearing the wigs. Hope you don't have to resort to that.

Loey

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shayre Enthusiast
shayre
Posted

I don't know why my post didn't go through. Maxi Hair vitamins from Whole Foods are AWESOME!!! My hair stylist asked me what in the world I've been doing for my hair? Then she told everyone else about the vitamins, and they were sold out when I went back for more...3 times. I had to get off of them to eliminate ingredients for figuring out food intolerance. I switched to Biosil, which works pretty well. I just went back to Maxi Hair, and my hair is looking so much healthier. Now I'm off of them again, because it has corn in it...don't know if it's bothering me. It is free of everything else though. Both vitamins can be found at Whole Foods. As long as I take vitamins specific to hair, skin and nails...I don't lose hair and it doesn't look like straw...but it does if I get lazy with them. I'd give them a try for a good couple of months, as it took me that long with them to really notice a good change. I do have thyroid issues too, and vitamin deficiencies...but Lupus will also make your hair fall out. My Lupus test was borderline last time. Stick to the vitamins.

  • 2 years later...
gottheTUDE Newbie
gottheTUDE
Posted

I have been diagnosed with celiac disease within the last four months. After diagnosis I continued to use regular shampoo and conditioner with gluten. About two months ago I purchased gluten free shampoo and conditioner and my hair has gone crazy. My hair is extremely dry and brittle. It has no appeal but dullness and dry. I only stayed with this gluten free stuff for awhile and then went back to the regular stuff! I do not know if this is what caused the problem or what? I have always had dry hair but using the conditioner always helped. Now nothing. My hair is almost impossible to brush thru in the morning due to the dryness. Ugh! Help! Has anyone ever had this problem after going gluten free or using gluten free shampoo?

Ok, I know I'm really late to this convo, but have you considered you might have Sjogrens?  I think I have Celiac and Sjogrens, because I have been trying to figure out what's going on with my hair since I went gluten-free in January.  It's dry and breaks off all the time, and is falling out a lot and my curls have changed.  I first found a thread that someone mentioned Sjogrens Syndrome on and I looked it up.  I've been suffering with classic SjS symptoms for years, dry desert-like mouth at night with perfect teeth until my 30's then suddenly an onset of cavities, dry eyes when waking, really bad hand feet circulation issues.  I haven't been diagnosed with either, but I do have one confirmed auto-immune disease and a family full of them, so I don't think it's too far of a jump.  I have been using Wen for years, but noticed after going gluten-free that it doesn't seem to help as much as it used to, which makes me wonder about the wheat in it.  I hope the maxi hair vitamins help me.  

tarnalberry Community Regular
tarnalberry
Posted

Also, I don't know how often you wash your hair, but once a week - twice at the most - conditioning most days is better than washing every day.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,325
    • Most Online (within 30 mins)
      7,748
    Jaxon Reed
    Newest Member
    Jaxon Reed
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.