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gluten-free Oat Reaction Possible? Also, Random Product ?'s.

alissar

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alissar Contributor
alissar
Posted

I was wondering if any of you react to oats, even if they are certified gluten-free? I am still pretty new at this diet, but I feel great and then if I eat gluten-free oats (normally in cookies I get from a gluten-free bakery) I get my typical glutened symptoms, however, less severe than if I have wheat, rye, or barley. Maybe I am crazy or its something else I am eating. This diet has me so confused sometimes.

Also, does anyone know if any of these products contain gluten? I contacted all the companies and am waiting for responses but I thought I would ask here also.

1. Bert's Bees Aloe and Sheabutter lotion

2. Full Circle Free and Clear dish soap

3. Cascade dishwasher detergent

4. Softsoap hand soaps

4. Hershey's Bliss Chocolates

5. Dove Promises (milk chocolate, dark chocolate, caramel, almond)

6. Corned beef

7. Are all sodas gluten-free?

Also, is it possible to react to foods that claim they are gluten-free but then state they are tested to make sure they have below 20PPM of gluten (products like nut thins)?

Thanks everyone. I appreciate your input and help so much.

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dilettantesteph Collaborator
dilettantesteph
Posted

I'm not sure about your list.

About 10% of celiacs react to gluten free oats. I react to them worse than I react to wheat.

You are generally recommended to stay gluten free for six months or so to heal before trying oats.

ravenwoodglass Mentor
ravenwoodglass
Posted

I also react to oats. Most corned beef that I have seen is safe. I have only found one soda that wasn't safe and that was a very pricey one years ago. Sorry I don't remember the name. I drink Pepsi products only and have never had an issue with those.

cassP Contributor
cassP
Posted

I was wondering if any of you react to oats, even if they are certified gluten-free? I am still pretty new at this diet, but I feel great and then if I eat gluten-free oats (normally in cookies I get from a gluten-free bakery) I get my typical glutened symptoms, however, less severe than if I have wheat, rye, or barley. Maybe I am crazy or its something else I am eating. This diet has me so confused sometimes.

Also, does anyone know if any of these products contain gluten? I contacted all the companies and am waiting for responses but I thought I would ask here also.

1. Bert's Bees Aloe and Sheabutter lotion

2. Full Circle Free and Clear dish soap

3. Cascade dishwasher detergent

4. Softsoap hand soaps

4. Hershey's Bliss Chocolates

5. Dove Promises (milk chocolate, dark chocolate, caramel, almond)

6. Corned beef

7. Are all sodas gluten-free?

Also, is it possible to react to foods that claim they are gluten-free but then state they are tested to make sure they have below 20PPM of gluten (products like nut thins)?

Thanks everyone. I appreciate your input and help so much.

i dont react to certified gluten free oats. as far as dove- i think ive only had milk & dark- and i think ive been fine. i THINK most or all sodas are gluten-free...idk.. ive only had Diet coke with splenda, Publix brand diet cola with splenda, publix brand diet lemon lime soda- all fine

and YES- i HAVE reacted to SOME products at <20ppm- particularly the Blue Diamond Nut thins.. i didnt get any stomach pain- but the DH on my forearm started itching.

alissar Contributor
alissar
Posted
  • Author

Thank you all for your posts. I appreciate your help so much. This diet is definitely tricky and its hard to get answers from my doctor (he doesn't know much about Celiac). Its so nice to get help from this forum. I think I will stop eating nut thins and gluten-free oats for awhile and see if my symptoms go away completely.

If a product says gluten-free on it, but then the label says "made on the same equipment as wheat" or "Processed in the same factory as wheat" do you stay away from it in general?

Thanks again everyone!

cassP Contributor
cassP
Posted

Thank you all for your posts. I appreciate your help so much. This diet is definitely tricky and its hard to get answers from my doctor (he doesn't know much about Celiac). Its so nice to get help from this forum. I think I will stop eating nut thins and gluten-free oats for awhile and see if my symptoms go away completely.

If a product says gluten-free on it, but then the label says "made on the same equipment as wheat" or "Processed in the same factory as wheat" do you stay away from it in general?

Thanks again everyone!

generally, i avoid products that share the same equipment. and i usually do eat products made in the same facility.

that being said- there are times im sure- where i just have to experiment-> maybe it's on the same equipment- or maybe there's no gluten ingredients but there's also no special "gluten free" label... and i just have to try sometimes- because i cant be so afraid and limited.

and with "gluten free" products that say <20ppm like cereals & crackers etc-> again i have to have some variety- so it's trial and error for me. some products im totally fine with, and others like the nut thins didnt work out. ALSO- even if some of these products are fine for me- i know i should also keep them to a limit.. if i overdo it i could be in a little pain. i dont think it's all cross contamination though- i think some of us have additional thresholds with grains

sorry to blab so much :huh:

T.H. Community Regular
T.H.
Posted

And just for a little more information on the oat front:

Open Original Shared Link

Yeah, it's wikipedia, but it still has some information that might be of use to you/your doctor. :)

If you DO have trouble with oats, even gluten free ones, then unfortunately you'll want to be more careful, now. Lots of calling involved. :-( Because the oats can also cause you issues with other gluten free products, since most of them don't consider gluten-free oats a gluten cc risk. Products certified gluten free by the CSA will not contain any oats and have anti-cc practices in place re: them. GFCO certified gluten free products only have to avoid regular oats. Most gluten free labeled products are also only avoiding regular oats

Some gluten free facilities also process gluten-free oats in them, such as Bob's Red Mill. I found out recently that Lundberg rice, for example, uses oats as their cover crop for their rice, so that's a cc hazard, too.

And meds have to be checked differently as well, because gluten free to them doesn't involve regular oats. Not that I expect to find a lot of oats in my meds, but I'm learning not to be surprised by anything these days, eh?

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Roda Rising Star
Roda
Posted

Count me in the 10% that react to gluten free oats. I also react to BRM products since they have oat cc. I don't know if my 6 year old does or not. I haven't given him any yet. When he was a baby though he would get a terrible rash from baby oatmeal and rice cereal even organic cereal without anything else added. We ended up feeding him barley cereal (way before I started having celiac symptoms) and he seemed to do alright on it. Ironic that he is gluten free now. We also do fine with nut thins.

Emport Newbie
Emport
Posted

There was an article published in Gut last month that sheds some extra light onto the oats question -- as it turns out, different strains of oat have different levels of gluten in them. The full article is here: Open Original Shared Link.

And a quick note on corned beef: be careful! Lots of corned beef comes with a packet of pickling spices, and you'll want to check the label there. Also, many recipes call for some beer to be included in the pot while the meat cooks.

Happyw5 Explorer
Happyw5
Posted

I thought root beer was glutened...Maybe it isn't,but I would check on it before you drink it...I am sure someone here would know for sure.

Looking for answers Contributor
Looking for answers
Posted

I am definitely intolerant to Oat, even the gluten free oats. They cause the same reaction as gluten.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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