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Symptom Question

PMC

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PMC Newbie
PMC
Posted

Has anyone had itching without a rash? I have noticed a lot of itching mostly on the back of my neck for a couple of months now and more recently near my ears and on my neck below the ears, but never have a rash, once in awhile I will get a bump but seems to go away pretty quickly. All of my symptoms seem pretty mild in comparison to many of you but I seem to have mild symptoms of all three areas digestive, skin and neurological. I'm waiting on biopsy results but received a weakly positive blood test.

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heather Goble Rookie
heather Goble
Posted

Has anyone had itching without a rash? I have noticed a lot of itching mostly on the back of my neck for a couple of months now and more recently near my ears and on my neck below the ears, but never have a rash, once in awhile I will get a bump but seems to go away pretty quickly. All of my symptoms seem pretty mild in comparison to many of you but I seem to have mild symptoms of all three areas digestive, skin and neurological. I'm waiting on biopsy results but received a weakly positive blood test.

Itching is always my first reaction when I accidentally ingest something with gluten. I itch all over without any visible rash. I do however get a couple pimple like bumps here and there, which I never experienced before going gluten free. Actually, I only remember having the itching issue once before going gluten free, it was while I was pregnant with my son, I started itching all over, for hours and couldn't figure out what it was.

Happyw5 Explorer
Happyw5
Posted

I just went through this last night...I was glutened on Sunday (my mother in law) and I had such crazy itching on my neck and back, with no rash.

salexander421 Enthusiast
salexander421
Posted

I've wondered about this also. My daughter had a rash on her bottom that was really itchy and lasted for a few months and then went away but she has continued to itch at it even though the rash is gone. Can you do a biopsy if there is no rash, only itchy skin?

divamomma Enthusiast
divamomma
Posted

My daughter also gets very itchy on her back but has no rash.

mushroom Proficient
mushroom
Posted

I also developed rashless itching on my shoulders after quitting gluten. In my case it was from soy - I was eating gluten free substitute foods that contained a lot of soy, I found out.

Gfreeatx Apprentice
Gfreeatx
Posted

I get that as well. It's usually just on the front of my calves and there are some tiny bumps at times as well. After being diagnosed with Celiac I thought possibly I had DH as well, but Dr. said the rash would be very visible with DH. I cut out some of the processed gluten-free foods I was eating on a regular basis and that seems to have helped.

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Roda Rising Star
Roda
Posted

Could the itching be unrelated to celiac? I get itchy from dry skin and from certain products. I itch like mad if I use sented/colored laundry detergent or scented fabric softner sheets. I have to use dye/fragrance free laundry stuff or I will itch until I drive myself insane. I also get contact dermatitis from certain female toiletries as well.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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