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Different Medical Problems

chana

By chana
in Related Issues & Disorders

Recommended Posts

chana Rookie
chana
Posted

Hi! I hope someone here could help, I can't seem to get answers from my doctors, all they say all the time is maybe and anything is possible. :huh:

I was diagnosed with celiac disease about a year ago ( although I have had symptoms for ages ). Even before I was diagnosed, every few months some new medical problem comes up, and I was wondering if any one here has or heard of the following medical problems - if they have anything to do with Celiac: Erythema nodosum, Levido Reticularis (= a spider-web looking rash with a fancy name...), a very serious Vitamin D deficiency, Hashimoto Disease, arthritis, Osteoporosis. I am only 30 years old... is there anything else to expect ?!?!?? :o

Thanks, Chana

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KaitiUSA Enthusiast
KaitiUSA
Posted

Yes alot of those are highly connected with celiac.

Osteoporosis, Vitamin D deficiency, Arthritis, Thyroid...all connected...not sure about the others but good chance that they are too.

If celiac goes untreated you are 40-100 times more likely for cancer, diabetes, etc.

Have you been 100% gluten free? Including checking products like makeups/shampoos/soaps/etc? Anything that can come in contact with your mouth in any way should be checked.

Also, by now you know that gluten is hidden under many things right? and to be careful of cross contamination?

Being gluten free should help these problems. Your Vitamin D deficiency tells me there is a problem with absorption still. This leads me to think there is something sneaking in for all of this to arise.

Was this all after diagnosis? Are you feeling any better?

How long have you been gluten free?

chana Rookie
chana
Posted
  • Author

Thanks for the reply!! Since my Dr. really doesn't seem to know much about Celiac, I've been learning as time goes by. I really try and I think I'm 100% gluten free, although I had no idea I had to look into makeup/shampoos/soaps etc.

most of my problems were diagnosed before the celiac, and after I was diagnosed with osteoporosis, that's when one Dr. came up with the celiac idea. I still every now and then have an occurrence of some of the Diseases, but I don't think it has anything to do with the gluten, since I basically eat the same thing every day...!!

Since I'm off gluten which is about a year now, I've been feeling soooo much better!! :rolleyes:

Do you know if shampoo/conditioner of Herbal Essences is a problem? Cetaphil soap, and how about Avene products - sunblock, cleanser, creams?

Thanks again, Chana

Yes alot of those are highly connected with celiac.

Osteoporosis, Vitamin D deficiency, Arthritis, Thyroid...all connected...not sure about the others but good chance that they are too.

If celiac goes untreated you are 40-100 times more likely for cancer, diabetes, etc.

Have you been 100% gluten free? Including checking products like makeups/shampoos/soaps/etc? Anything that can come in contact with your mouth in any way should be checked.

Also, by now you know that gluten is hidden under many things right? and to be careful of cross contamination?

Being gluten free should help these problems. Your Vitamin D deficiency tells me there is a problem with absorption still. This leads me to think there is something sneaking in for all of this to arise.

Was this all after diagnosis? Are you feeling any better?

How long have you been gluten free?

KaitiUSA Enthusiast
KaitiUSA
Posted
Do you know if shampoo/conditioner of Herbal Essences is a problem? Cetaphil soap, and how about Avene products - sunblock, cleanser, creams?

Thanks again, Chana

All of the Herbal Essences shampoos and conditioners that I have seen contain wheat. Most of them say wheat protein on the label. I don't use that brand anymore.

I use Dove shampoos/conditioners/bar soaps/and hairsprays because they will not hide anything on the label and are one of the safe brands unless otherwise stated.

Alot of lipsticks have wheat in it as well. The whole Bare Escentuals makeup line is gluten free.

Sunblock-banana boat and coppertone are gluten free

Neutrogena has a gluten free product list out too.

Clearasil total control and original blue lines are both gluten free

Those are just some things off the top of my head. You can find out about all the products on here in the product section. I am not sure about that brand you are talking about but someone on here may know. If you have a question about products you can ask there too :D

Jnkmnky Collaborator
Jnkmnky
Posted

:o:o:o:o

Herbal Essences contains wheat?! I mean, I use it but my kid uses something tear free, but I didn't realize this! Now I'm going to go check his shampoo!!

tarnalberry Community Regular
tarnalberry
Posted

Given that it was a number of years while your body was not getting the nutrition it needs, it's not surprising that things may still pop up slowly. With the vit D deficiency now able to be addressed (healing intestines will allow you to better absorb the vitamins), hopefully the osteoporosis may start to reverse. But remember that your body was but under a lot of stress and didn't get what it needed, nutrient wise, for a wihle. I hope you see the end of it soon though! :-)

Jnkmnky Collaborator
Jnkmnky
Posted

My Herbal Essences does not contain wheat protein. Maybe they've changed the formula? Each person has their own shampoo in our family and none have wheat. I never thought to check.

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anniej55 Apprentice
anniej55
Posted

Hi,

I have a Vitamin D deficiency and am on supplements - 1500 units 3X a week. I have a check up at end of month, so I'll let you know what happens then. Probably more blood work!

I was also diagnosed with ITP, an autoimmune blood disease. Essentially, my platelets are being eaten up by my immune system. When they go lower then low I bruise easily. Now mind you, it's not the normal easy bruising. We're talking deep purple marks that do not hurt and I cannot remember bumping .... because normally, nothing would have happened. I'm beginning to think that when I've been glutened the ITP rears it's ugly head.

I don't know if what I have is DH, but I do have a rash on my body .... tyring to be delicate here. Under my breast and in another place I'd rather not discuss.

I, too, feel like my body is falling apart, although I'm turning 50 in December. Unlike a lot of other people on this board, I felt absolutely positively fine when my diagnosis was being considered. I was in the best place in my life ... no stress, new job in my profession that pays well, etc. A routine exam turned up weird blood results (at the end of April); by the time celiac disease was diagnosed I had the complete set of symptons and had diagnosed myself. I have been tested for everything, including lymphoma. I guess my only consolation is that the time span is so short .... I cannot imagine having the symptons, going from doctor to doctor for years.

I have a bone density test tomorrow - I'm expecting the worse. Oh well, just one more thing to deal with!

Hang in there

Ann

KaitiUSA Enthusiast
KaitiUSA
Posted
My Herbal Essences does not contain wheat protein.  Maybe they've changed the formula?  Each person has their own shampoo in our family and none have wheat.  I never thought to check.

That's good...maybe some of them do not contain it. You may want to check with the company to see if it is gluten free though. I did not call the company so I do not know if any of them are considered gluten free but know that some aren't

chana Rookie
chana
Posted
  • Author

Thanx!! I never even thought of looking on a shampoo or conditioner label, it seems that the conditioner is a problem!!!! I guess starting tomorrow and Sunday, I will be on the phone all day trying to figure out if anything else I have been using is a problem.

Chana

All of the Herbal Essences shampoos and conditioners that I have seen contain wheat. Most of them say wheat protein on the label. I don't use that brand anymore.

I use Dove shampoos/conditioners/bar soaps/and hairsprays because they will not hide anything on the label and are one of the safe brands unless otherwise stated.

Alot of lipsticks have wheat in it as well. The whole Bare Escentuals makeup line is gluten free.

Sunblock-banana boat and coppertone are gluten free

Neutrogena has a gluten free product list out too.

Clearasil total control and original blue lines are both gluten free

Those are just some things off the top of my head. You can find out about all the products on here in the product section. I am not sure about that brand you are talking about but someone on here may know. If you have a question about products you can ask there too :D

  • 1 year later...
Cougar09 Rookie
Cougar09
Posted
Hi! I hope someone here could help, I can't seem to get answers from my doctors, all they say all the time is maybe and anything is possible. huh.gif

I was diagnosed with celiac disease about a year ago ( although I have had symptoms for ages ). Even before I was diagnosed, every few months some new medical problem comes up, and I was wondering if any one here has or heard of the following medical problems - if they have anything to do with Celiac: Erythema nodosum, Levido Reticularis (= a spider-web looking rash with a fancy name...), a very serious Vitamin D deficiency, Hashimoto Disease, arthritis, Osteoporosis. I am only 30 years old... is there anything else to expect ?!?!?? ohmy.gif

Thanks, Chana

Hi I see you wrote this a while ago, but I also had Erythema Nodosum for a few months, and was then diagnosed with Celiac a month ago. I don't know how bad your case got, but I had huge red swollen bumps/black and blue bruises all over my shins and then even had my left ankle so swollen that I couldn't wear any shoes that weren't sandals! It got really crazy. My doctor told me that the only "cure" for it is rest, because if you have it then it means your body has been in overdrive, per say, so I have been taking things a little easier and the swelling has gone down. I still have black and blue bruises, but the bumps are gone. It should go away in about another month or two. Has anyone else had this??

wowzer Community Regular
wowzer
Posted

My daughter had erythema nodosum at about your age. On top of it she was pregnant. I hope that you have seen a rheumatologist. Because she was pregnant, she couldn't take anti imflamitory drugs but was put on prednisone. It did leave her with arthritis in her wrists and elbows. Her legs were just covered with those bumps and bruises along with the swollen ankles. To top it off she even got a lesion in her eye. The ratest cause of erythema nodosum is pregnancy. She didn't get it on her 2nd pregnancy and is now pregnant with her 3rd. She did have a lot of allergies when she was little. I wonder now if she doesn't have IBS or celiac. I wish you luck and hope that you recover soon. Wendy

georgie Enthusiast
georgie
Posted
I was also diagnosed with ITP, an autoimmune blood disease. Essentially, my platelets are being eaten up by my immune system. When they go lower then low I bruise easily. Now mind you, it's not the normal easy bruising. We're talking deep purple marks that do not hurt and I cannot remember bumping .... because normally, nothing would have happened. I'm beginning to think that when I've been glutened the ITP rears it's ugly head.

I get bruises much more now. Don't tell me there is an autoimmune reason for it ! Not another one ! I have 4 autoimmune problems. Hashimoto's Thyroid, Pernicious Anaemia, GI, and Vitiligo.

nutralady2001 Newbie
nutralady2001
Posted

I have always bruised easily, awful ones sometimes and I can't even remember bumping anything

Yes I also have Hashimoto's Disease, osteoporosis, scoliosis and osteo-arthritis

I know that I am more susceptible to getting Type 1 diabetes and rheumatoid arthritis which are both auto-immune because I already have Hashi's and both RA and Type 1 are rampant in my family through the generations :rolleyes::rolleyes::rolleyes::rolleyes:

Nancym Enthusiast
Nancym
Posted

We get most of our vitamin D from sunshine, so if you're not in the sun, you should probably supplement. They're finding the D they add to milk really isn't enough, and it is the wrong kind anyway. You want to take vit. D3, the oily sort.

Here's a great web site about D: Open Original Shared Link

babygirl1234 Rookie
babygirl1234
Posted

wow some of you guys have more the celiac disease i have acid reflex dis im lactose intel and now i have pains in my lower stomach and i went for a scope on the thorth and a clonscopy and they toke a buch of byopies so far they are treating me for my acid reflex i have wait for the results from the byipose to come back in 1-2 weeks

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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