Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Dx'd


ShannonL

Recommended Posts

ShannonL Newbie

Hello everyone,

I was just diagnosed with Celiac Disease 2 months ago. Still having alot of bloating, stomach spasms. IT took 10 years to get final dx. After gallbladder surgery that's what my tummy pain was to find that I didn't need the surgery due to all of my pain initially was celiac. The doctors arre awful in dx this.

I am still feeling so tired. Does anyone else feel this way and how long does it take to feel "normal" again.

Also I am the food. Can't find decent tasting bread. I am fatallly allergic to tree nuts and so hard to find good tasting bread and I cld so go for a Ritz cracker. And where do ppl eat out as I have 2 small kids and can't eat out ever such as McD's, etc.

I just need advise and help. I am so depressed and frustrated. Thank u in advance.

Shannon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Shannon,

I don't do bread much myself. I get brown rice tortillas at Trader Joes or Whole Foods instead. Or sometimes I make microwave buns. Or I have in the past made pancake like bread. But really you don't need bread to eat well.

It is good to concentrate on whole foods at first, meats, veggies, fruits etc. Avoiding dairy and soy are also good ideas. Eating out is not impossible, you can search for restaraunts that are certified by the GFRAP program. There are quite a few restaraunts doing gluten-free menus now, but a search on this forum is good idea. They don't all do a good job of gluten-free meals.

Anywho, welcome to the site and Happy day after St. Paddy's Day! :D

ravenwoodglass Mentor

Hi and welcome to the board. It does take some time to heal and it can be a big change. Do check out the restaurant section of the board for suggestions for safe places to eat. It is best to eat as much whole food as you can. Make sure you get a new toaster and replace your pasta strainer, wooden utensils and cutting boards and any scratched nonstick pans. Everyone has different tastes but I like Udi's and Grainless Baker for breads. Kinnickkinnick bread is okay and I keep their pizza shells on hand all the time. They come 4 to a package and are a better deal than many of the others I have found. Most of our breads do need to be toasted or microwaved for best taste and texture. Glutino makes some pretty good crackers.

Do be sure to get your little ones tested and advise all your first degree relatives to also get tested even if they don't think they have any symptoms. Read as much as you can here and feel free to vent when needed. Hopefully you will heal soon and start feeling better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

    2. - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

    3. - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Healthy Gluten Free Foods low sugar that you found?

    5. - trents replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,252
    • Most Online (within 30 mins)
      7,748

    Kahuna
    Newest Member
    Kahuna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.