Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Dx'd


ShannonL

Recommended Posts

ShannonL Newbie

Hello everyone,

I was just diagnosed with Celiac Disease 2 months ago. Still having alot of bloating, stomach spasms. IT took 10 years to get final dx. After gallbladder surgery that's what my tummy pain was to find that I didn't need the surgery due to all of my pain initially was celiac. The doctors arre awful in dx this.

I am still feeling so tired. Does anyone else feel this way and how long does it take to feel "normal" again.

Also I am the food. Can't find decent tasting bread. I am fatallly allergic to tree nuts and so hard to find good tasting bread and I cld so go for a Ritz cracker. And where do ppl eat out as I have 2 small kids and can't eat out ever such as McD's, etc.

I just need advise and help. I am so depressed and frustrated. Thank u in advance.

Shannon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Shannon,

I don't do bread much myself. I get brown rice tortillas at Trader Joes or Whole Foods instead. Or sometimes I make microwave buns. Or I have in the past made pancake like bread. But really you don't need bread to eat well.

It is good to concentrate on whole foods at first, meats, veggies, fruits etc. Avoiding dairy and soy are also good ideas. Eating out is not impossible, you can search for restaraunts that are certified by the GFRAP program. There are quite a few restaraunts doing gluten-free menus now, but a search on this forum is good idea. They don't all do a good job of gluten-free meals.

Anywho, welcome to the site and Happy day after St. Paddy's Day! :D

ravenwoodglass Mentor

Hi and welcome to the board. It does take some time to heal and it can be a big change. Do check out the restaurant section of the board for suggestions for safe places to eat. It is best to eat as much whole food as you can. Make sure you get a new toaster and replace your pasta strainer, wooden utensils and cutting boards and any scratched nonstick pans. Everyone has different tastes but I like Udi's and Grainless Baker for breads. Kinnickkinnick bread is okay and I keep their pizza shells on hand all the time. They come 4 to a package and are a better deal than many of the others I have found. Most of our breads do need to be toasted or microwaved for best taste and texture. Glutino makes some pretty good crackers.

Do be sure to get your little ones tested and advise all your first degree relatives to also get tested even if they don't think they have any symptoms. Read as much as you can here and feel free to vent when needed. Hopefully you will heal soon and start feeling better.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,069
    • Most Online (within 30 mins)
      7,748

    shyloh
    Newest Member
    shyloh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.