Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Your Opinion On If This Is Safe Please!


11475

Recommended Posts

11475 Apprentice

I may be overreacting - hence asking for some expert opinion on here, but please could you tell me if YOU would think this is safe:-

I've been given a trial of a product which is supposed to be beneficial for Leaky Gut. Honestly, I'm not convinced, and like almost all of us, I'd rather play it safe than suffer the consequences.

The ingredients in question include 'Organic Barley grass' and 'Organic Wheat grass'

It does say on the packet and on the website that it is gluten free, and offers the following explanation:-

"Even though Motion Potion contains Organic Wheat and Barley grass it remains gluten free. Gluten exists only in the grains not in the grass of these plants."

Please could you tell me what you would do? Try it, or not risk it. I'm inclined towards, 'not risking it'..but am not certain yet.

Thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

do u have the receipt? can u return it? i personally would not partake in it.

i used to actually take a product called Kyogreen. it also said "gluten free", and had barley & wheat grass.. i used to mix it in my pineapple juice- it was DELISH- it always kind of gave me a little intestinal suspicious behavior- but it could have been the F.O.S. in it (i have fructose issues)...

so, idk honestly. but i dont chance it in anymore- i abstain from barley & wheat grass.

11475 Apprentice

To clarify:- I would imagine the potential risk of cc would be quite high, and that would be enough to convince me not to take the supplement.

I know it is believed that with the gluten grains, if they are processed enough it is then safe to eat (that's not very eloquently written, sorry), but I've had a reaction to some products fitting this category some time ago (without it having been additional intolerances that caused the reaction), which probably explains the extra paranoia.

11475 Apprentice

do u have the receipt? can u return it? i personally would not partake in it.

i used to actually take a product called Kyogreen. it also said "gluten free", and had barley & wheat grass.. i used to mix it in my pineapple juice- it was DELISH- it always kind of gave me a little intestinal suspicious behavior- but it could have been the F.O.S. in it (i have fructose issues)...

so, idk honestly. but i dont chance it in anymore- i abstain from barley & wheat grass.

Sorry - I didn't see your post there before I made a second post!

It was free - I definitely wouldn't have bought it myself. A family member sent it to me after seeing 'gluten free'. Thanks for your reply...I agree, I think it would probably be safest not to take it, but wanted a second opinion.

(On a slightly unrelated note - I was thinking of you yesterday, actually! I've read some of your posts about your FM issues..I ate a pear for the first time in years yesterday morning...definitely not a fun morning after that!)

Kelly777 Newbie

They claim they are gluten free but according to research I did you don't know the maturation rate of the grass. It could be close to wheat and therefore contain a miniscule amount of gluten which companies don't count. For instance, Rice Dream is filtered using barley and then they remove it and leave 0.02% gluten. I don't know about you but I want my products gluten free and that isn't what that is. Also, look at the vitamin K content on the package. It is so high I think one could throw a clot. I got horrific headaches when I drank it for a week.

11475 Apprentice

They claim they are gluten free but according to research I did you don't know the maturation rate of the grass. It could be close to wheat and therefore contain a miniscule amount of gluten which companies don't count. For instance, Rice Dream is filtered using barley and then they remove it and leave 0.02% gluten. I don't know about you but I want my products gluten free and that isn't what that is. Also, look at the vitamin K content on the package. It is so high I think one could throw a clot. I got horrific headaches when I drank it for a week.

Thanks so much for your reply! Your first two sentences are enough to convince me. I don't want ANY gluten getting in (ideally, ever), but particularly not while I'm still trying to heal, and I guess maybe the potentially tiny amounts might be enough that I don't feel any obvious effects, even though they might be damaging (haven't worked out my sensitivity level properly yet). Thanks again :)

ravenwoodglass Mentor

I wouldn't touch it. I tried a product with wheat and barley grass once and had a severe enough reaction that I would never dream of trying them again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



11475 Apprentice

I wouldn't touch it. I tried a product with wheat and barley grass once and had a severe enough reaction that I would never dream of trying them again.

Thank you for your reply. I'm so sorry you had to learn the hard way, but I'm thankful that it helps me to avoid doing the same.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,068
    • Most Online (within 30 mins)
      7,748

    Nature Gal
    Newest Member
    Nature Gal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.