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How Common Is Gastroparesis Here?

Chopper

By Chopper
in Coping with Celiac Disease

Recommended Posts

Chopper Apprentice
Chopper
Posted

Hello,

After discovering celiac with an upper endoscopy (it was a silent disease for me), at the same time they discovered antral gastritis and gastroparesis. The gastroparesis continues to worsen even though I've been gluten free since August. Gastritis remains the same. I now have a positive ANA (1:320), so there might be a connective tissue disease we're looking for, maybe sjogren's. But I have two questions:

1. Can celiac (even though gluten free for nearly 8 months) cause a positive ANA of 1:320, speckled?

2. Does celiac cause gastroparesis, and if so would it worsen after being gluten free for nearly 8 months?

Anyone with similar experience?

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Chopper Apprentice
Chopper
Posted
  • Author

Maybe I got my answer by no one replying. Maybe celiac and gastroparesis aren't really connected. And maybe celiac and a positive ANA aren't connected either. It seems we're looking at a connective tissue disease.

Marz Enthusiast
Marz
Posted

Hi there

I think quite a few suffered from it before going gluten free. How strict is your diet - any chance of small amounts of gluten getting in? Have you had follow up tests to check blood antibodies or intestine to see if you are healing?

I was " diagnosed" with non ulcerative gastoparesis while trying to figure out what was wrong with me. Turns out I was gluten intolerant instead!

Hope you figure out what the problem is. You do know there is often greater chance of developing other auto-immune diseases like sjorens, when you have celiac? Bu if you are gluten-free it shouldn't be such a problem still?

Woody Rookie
Woody
Posted

Chooper: When I hwas dignosed with Celiac in 2005 [by an upper GI, blood test neg.] My Dr. had me do the test for gastroparesis[stomach empting]. Showed I had it.

So no more salds. Woody

Nor-TX Enthusiast
Nor-TX
Posted

I also have Gastroparesis diagnosed by the capsule test. In addition I have GERD, hiatal hernia, IBS. I am dairy free and gluten free.

Darn210 Enthusiast
Darn210
Posted

My daughter was diagnosed with it at about the same time as she was diagnosed with celiac disease. Doc thought it was related. He put her on a med for a couple of months to help motility until she had a chance to heal. She has intermittent issues...when glutened and strangely enough about once a month around the same time which I think may be hormonal.

Cinderella10 Newbie
Cinderella10
Posted

I definitely have gastroparesis, and that diagnosis came a year after being strictly gluten-free. About 4 months later I discovered I had several food allergies, and I thought that was the cause of the gastroparesis. It wasn't. If I'm gluten- and allergy-free and do my best to eat what I need for my gastroparesis, I'm mostly okay. Still have good days and bad days, and it's a delicate balance, but I do feel better.

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Chopper Apprentice
Chopper
Posted
  • Author

Hi Marz,

I took the celiac diagnosis very seriously and I consider myself very strict, which I why I'm puzzled why the GP is worsening. And maybe it's another AI underlying it. Thank you for your reply.

Chopper Apprentice
Chopper
Posted
  • Author

Thank you all for your replies. If it turns out I don't have another AI disease causing it, I'll take comfort in knowing there are others with celiac and GP! Thank you!

deezer Apprentice
deezer
Posted

Hi Marz,

I took the celiac diagnosis very seriously and I consider myself very strict, which I why I'm puzzled why the GP is worsening. And maybe it's another AI underlying it. Thank you for your reply.

How strict are you? Do you eat "gluten free" packaged food, or do you prepare everything for yourself? Have you ever tested your food?

Chopper Apprentice
Chopper
Posted
  • Author

How strict are you? Do you eat "gluten free" packaged food, or do you prepare everything for yourself? Have you ever tested your food?

Sorry, just saw your question! I prepare most everything from scratch using gluten-free flours, like muffins and bread. There are a few gluten-free prepackaged items I buy, like Riceworks crackers and a couple other snacks. I avoid dairy except an occasional indulgence in a hard cheese. How do you 'test' your food?

I just got the diagnosis this week of limited scleroderma and hoshimotos, so maybe that's contributing to my tummy problems. I guess only time will tell!

  • 4 years later...
dawn777 Newbie
dawn777
Posted

Hi,

I got diagnosed with Celiac first and when I only improved halfway, I got tested and diagnosed with gastroparesis, the medicine works well, but it has its own diet, no greasy foods or strawberry seeds, many things, I am two different diets for Celiac and GP. GP diet is important too. I take Eyrthmycin Tabs as well for GP.

GFinDC Veteran
GFinDC
Posted

Welcome Dawn!  Since celiac disease interferes with the ability to absorb vitamins, it can cause nerve problems.  It's a good idea to be tested for vitamins levels at the beginning of the gluten-free diet, so we know if we are lacking any.  Some people are low in B vitamins, and that can cause nerve issues.  Which could cause gastroparesis.  So might be worth looking at.

  • 2 weeks later...
zenjess1980 Contributor
zenjess1980
Posted

I have gastroparisis, or go through phases of it [have had the testing for it.]  I think its related to both celiac and my diabetes. 

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

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