Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy/endoscopy Question Please


catarific

Recommended Posts

catarific Contributor

Today I had a colonscopy and endoscopy. The doctor said that he could not see any damage but did send a biopsy of my colon to test for microscopic colitis and a biopsy to test for celiac sprue.

My question is - if there were damage to the villi - would that not be visible during the examination? Or is it general procedure to send out a biopsy when a patient tells the doctor about gluten intolerance, food sensitivities, etc.

I had been doing great the past two weeks prior to the exam - but the day before the prep, I had a very, very, bad bout of diarrhea. I told my husband - I could probably now go to the colonscopy without having to prep. Anyway - I was really shocked when the doctor did not see any colon inflammation - yet on his own, (without my saying anything about the flare), he is testing for microscopic colitis. Is this something a doctor regularly might do if a patient has complained of diarrhea for a long extended period and the colonoscopy showing no inflammation?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

If you are undergoing both a colonoscopy and an endoscopy, I think it is great that the doctor checked for as many possibilities as he could think of while he was there. So often we hear of people undergoing these procedures, and the doctor will say, well, no, I didn't check for celiac because I thought it was eosinophilic esophagitis :o

Some things can be seen with the naked eye during the scope, others need to be magnified under a microscope because we are getting down to the cellular level. Only gross damage to the villi with complete flattening can be seen with the naked eye. Same with microscopic colitis - it takes a microscope to see it, so why would he waste the opportunity of obtaining that sample while he was there. At the moment he is trying to rule in or rule out any possibility. So in my book he is a good doc. and you are lucky. :)

catarific Contributor

thanks for the response. :)

ravenwoodglass Mentor

Hopefully the doctor took more than one biopsy for celiac. He should have taken six from different areas and even then you can have a false negative. Have they done a celiac panel blood test on you? If they have then you can go ahead and do a trial of the diet as that is needed no matter what the test results say as false negatives are common.

catarific Contributor

Hopefully the doctor took more than one biopsy for celiac. He should have taken six from different areas and even then you can have a false negative. Have they done a celiac panel blood test on you? If they have then you can go ahead and do a trial of the diet as that is needed no matter what the test results say as false negatives are common.

I did take the blood panel previously which was negative. I opted to do both the colonoscopy and endoscopy - but the colonoscopy showed no irregularities to the naked eye. So that is why he is testing for microscopic colitis. I have no idea how many biopsies he took. It never even dawned on me to question him - but regardless - I still have opted to stay Gluten Free with or without a diagnosis since I feel so much better and have seen such an improvement over the past few months.

cahill Collaborator
- but regardless - I still have opted to stay Gluten Free with or without a diagnosis since I feel so much better and have seen such an improvement over the past few months.

I am glad you are feeling better :)

catarific Contributor

I am glad you are feeling better :)

Thanks so much - appreciate it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,912
    • Most Online (within 30 mins)
      7,748

    westman3d
    Newest Member
    westman3d
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.