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- Fly1962 replied to MelissaClinPsyD's topic in Coping with Celiac Disease11Refractory Coeliac Disease research to reduce anxiety
Hi I have a diagnosis of RCD1 this was a joint diagnosis from the Royal Surrey in Guildford and by Professor Sanders In Sheffield. If I’m not too late I would Iove to take part in your research . -
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- knitty kitty commented on Jefferson Adams's article in Diagnosis, Testing & Treatment29How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
Gluten particles can fit in the opioid receptors in our bodies. This can be part of the explanation of why some people say they don't have any digestive issues. Their intestines are on opioids. These particles can also travel to the brain through the bloodstream, sedating you.- 1
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- knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms14
Confused About Results
@Ginger38, Diabetes and Celiac often go hand in hand. Having more than one autoimmune disease is common with Celiac. I'd err on the side of caution and go gluten free. I did not want to go on insulin, either. I got my diabetes under control by following the low histamine version of the Autoimmune Protocol Diet (Dr. Sarah Ballantyne). My diet... -
- knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
This Roller Coaster Ride Needs to Stop
@Ginger38, I've been there with horrible symptoms and diarrhea accidents and diabetes and the insulin conundrum! My doctors were just as frustrating! I had nutritional deficiencies. I know your doctors refuse to test for this. So did mine, saying "I can't make money prescribing vitamins." Some members say a naturopathic doctor is more open...
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Hi I have a diagnosis of RCD1 this was a joint diagnosis from the Royal Surrey in Guildford and by Professor Sanders In Sheffield. If I’m not too late I would Iove to take part in your research .
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By knitty kitty · Posted
@Ginger38, Diabetes and Celiac often go hand in hand. Having more than one autoimmune disease is common with Celiac. I'd err on the side of caution and go gluten free. I did not want to go on insulin, either. I got my diabetes under control by following the low histamine version of the Autoimmune Protocol Diet (Dr. Sarah Ballantyne). My diet now does include carbs. We're supporting you through this difficult time. -
By knitty kitty · Posted
@Ginger38, I've been there with horrible symptoms and diarrhea accidents and diabetes and the insulin conundrum! My doctors were just as frustrating! I had nutritional deficiencies. I know your doctors refuse to test for this. So did mine, saying "I can't make money prescribing vitamins." Some members say a naturopathic doctor is more open to testing for deficiencies. Remember not to start supplementing until after testing is done. Otherwise the supplements will raise your blood levels falsely. I had studied Nutrition at university, so I decided to supplement essential vitamins and minerals. A B Complex, extra Thiamine (Benfotiamine) for the diabetes, magnesium and Vitamin D are the supplements I started with. The B vitamins are water soluble so any excess is excreted easily. Thiamine even in high doses is safe and nontoxic. Diabetics lose more thiamine in urine because of weird kidney stuff. I wanted to get my blood glucose levels under control because gluten free foods made my level spike for long periods, too. I absolutely did not want to go on insulin. Once you do, the pancreas stops making it. Very scary. Best to help the pancreas function with thiamine in the form Benfotiamine. I began the low histamine version of the Autoimmune Protocol Diet (developed by Dr. Sarah Ballantyne, A Celiac herself). It's a low carb, very strict diet at first, then expanded. I considered it similar to feeding a sick baby. You don't give hard to digest foods to a baby. You give easily digestible foods. This allows time for the gastrointestinal tract to calm down and heal. Symptoms started to calm down quickly. With the vitamins, I started feeling much better. My blood glucose levels stabilized. I did not go on insulin. I do not take anti-glycemic pharmaceutical drugs like Metformin. Just diet. You're making the right decision to live as a Celiac. Your body is telling you clearly. You can get through this. You're strong and you're fighting for yourself and your baby. Good job! You have the Tribe behind you! -
By maryannlove · Posted
Though trying to diligently eat gluten free, recent bloodwork was bad so searching for culprits. Eat lot of (preferably mixed) nuts. Most allergen labels say may be processed on equpment that also processes wheat, etc. Finally found ONE kind (unsalted mixed) at BJ's. Wessley (their store brand) that did not contain that warning. Says in large letters "A GLUTEN FREE FOOD." Well, all nuts are a gluten free FOOD! Have been eating and now wonder if this is intentionally decieving. So stopped eating until find culprit. Nuts are so good for protein and fiber (especially if trying to not eat meat). 'Tis so frustrating. Thanks to above, I'll look into Tierra Farms. -
By somethinglikeolivia · Posted
Fascinating! This was very helpful, thanks for sharing
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