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Please Help :(

CourtneyLee

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CourtneyLee Contributor
CourtneyLee
Posted

So, I've been gluten free for two months... but since yesterday I have had the WORST diarrhea and stomach pains, even worse than before I was diagnosed. Im shaking, I feel so sick. I know I haven't had gluten. 100% sure I haven't. :(

What do you think it could be? I have never felt so sick in my life, and to give you an idea of how much I've been "going", I've used two whole toilet rolls, just today only. :(

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annegirl Explorer
annegirl
Posted

I'm so sorry! :(

When that happened to me it ended up being dairy that was the problem, and then soy, and then corn. You might think back over what you've eaten and see if there is anything that you've eaten lately that could have caused it.

I know for me, each time I had a bad reaction to something else I had accidentally eaten it a couple of times in a row in different forms.

Feel better!

Juliebove Rising Star
Juliebove
Posted

I don't know what it could be, but... I had something like that late last night/early this morning. And I don't have issues with gluten. I did eat dairy twice yesterday so I thought it might be that. I outgrew a dairy allergy. I can have it now but I am supposed to limit what I eat.

There has also been a stomach bug going on around here. Perhaps there is one in your area?

eatmeat4good Enthusiast
eatmeat4good
Posted

Dairy, then soy, then eggs, then nightshades, then fructose, then other grains. It could be anything but dairy and soy are your most likely culprits if it is a secondary intolerance. Hang in there, I know it is miserable and I hope it ends soon.

Takala Enthusiast
Takala
Posted

Could be stomach flu or food poisoning, too.

Keep yourself hydrated by drinking plenty of water. Put a pinch of salt into it, and a pinch of sugar. If you can find some gluten free ginger, try that, by brewing it in some tea or just with hot water, or eating crystalized ginger or even grating some ginger root up, it's good for nausea. Fennel seed is supposed to be good also, but ginger is better.

CourtneyLee Contributor
CourtneyLee
Posted
  • Author

I was fine until i ate some food, and now, a few hours later, oh god am i feeling it. I'm just not going to eat, and drink loads of water. thanks so much for your comments guys... :(

T.H. Community Regular
T.H.
Posted

...could be the stomach flu that's going around. :( There's a really nasty one that just knocks people flat, and so far, I have friends in three different states that were all seeing it in the schools and around their cities. These things just get around so easily these days with airplanes and such, you know?

So sorry you got sick!

Although on the gluten front? Did you do anything around construction during the day or two before you got sick? If there's a lot of drywall dust or plywood sawdust in the air, that typically contains gluten, and in large amounts like in a house or office with construction, you breathe in enough to get it down your throat and into your stomach and it can gluten you, you know?

Hope you feel better soon, whatever it was that got you!

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ravenwoodglass Mentor
ravenwoodglass
Posted

I was fine until i ate some food, and now, a few hours later, oh god am i feeling it. I'm just not going to eat, and drink loads of water. thanks so much for your comments guys... :(

What did you eat? Whether it was gluten sneaking in somewhere or it is a stomach bug be gentle with your tummy. Plain gluten free toast, made of course in a toaster that has never been used for gluten bread, Cream of Buckwheat or a for sure gluten free Cream of Rice might settle things a bit.

Do make sure any meds you take for this, or anything else, are gluten free. Pepto Bismal might help a bit. Don't take immodium unless you absolutely have to leave the house. Your body is trying to get rid of whatever is causing this so let it. If your symptoms don't resolve soon you may want to get a stool sample taken to the doctor to check if you may have food poisoning.

CourtneyLee Contributor
CourtneyLee
Posted
  • Author

What did you eat? Whether it was gluten sneaking in somewhere or it is a stomach bug be gentle with your tummy. Plain gluten free toast, made of course in a toaster that has never been used for gluten bread, Cream of Buckwheat or a for sure gluten free Cream of Rice might settle things a bit.

Do make sure any meds you take for this, or anything else, are gluten free. Pepto Bismal might help a bit. Don't take immodium unless you absolutely have to leave the house. Your body is trying to get rid of whatever is causing this so let it. If your symptoms don't resolve soon you may want to get a stool sample taken to the doctor to check if you may have food poisoning.

I had a few mouthfulls of mashed potato. I'm just going to eat some plain toasted gluten-free bread in the morning :( I feel so ill

ravenwoodglass Mentor
ravenwoodglass
Posted

I had a few mouthfulls of mashed potato. I'm just going to eat some plain toasted gluten-free bread in the morning :( I feel so ill

If things haven't eased up today give your doctor a call.

chasbari Apprentice
chasbari
Posted

Were the mashed potatoes from a boxed mix? If so, they probably had gluten in them.

kareng Grand Master
kareng
Posted

I was fine until i ate some food, and now, a few hours later, oh god am i feeling it. I'm just not going to eat, and drink loads of water. thanks so much for your comments guys... :(

That sounds like a stomach virus. Sometimes its not gluten or soy or corn or..... its just a stomach bug. Try to suck on ice chips and don't put food in for a while. you need to keep hydrated and sucking on ice puts the water in slowly. You can ususally sneak it by.

lynnelise Apprentice
lynnelise
Posted

I agree it sounds like a stomach bug to me! Hope you feel better soon!

I think sometimes we stay so focused on gluten issues that we tend to forget that everyone deals with diarrhea, vomitting, heartburn, and stomach aches on occassion!

CourtneyLee Contributor
CourtneyLee
Posted
  • Author

the mashed potato was just potatoes mashed, lol. it hasn't eased up today at all, so yeah i'm agreeing with everyone who says a stomach bug.

i'm getting a blood test to check my vitamin levels tomorrow and then i have to make an appointment with a specialist about getting an endoscopy! has anyone had one?

BamaGal Newbie
BamaGal
Posted

Yeah, I had an Endoscopy when they diagnosed me and it wasn't bad at all. They knocked me out and I never knew when it was over. Good luck. I hope you get better; I am not feeling so well myself. :-(

CourtneyLee Contributor
CourtneyLee
Posted
  • Author

Yeah, I had an Endoscopy when they diagnosed me and it wasn't bad at all. They knocked me out and I never knew when it was over. Good luck. I hope you get better; I am not feeling so well myself. :-(

okay good cause i'm freaking out about it!

Tigercat17 Enthusiast
Tigercat17
Posted

okay good cause i'm freaking out about it!

Please, don't worry at all. I was so afraid, too. But they give you really good drugs and Believe me - you won't feel a thing. After I had my upper endoscopy I felt kind of foolish for being so afraid. It was really nothing to be afraid about. :)

Good Luck and enjoy the good meds they give you! :) I hope you're feeling better soon!

CourtneyLee Contributor
CourtneyLee
Posted
  • Author

my doctor said i'll need to eat gluten for 6 weeks before i get it done.. i don't think i'll be getting it done :\

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      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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