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Which Tests Should Husband Get?

anna34

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anna34 Enthusiast
anna34
Posted

My thanks to everyone on this board. You have been so helpful to me as I learn about this disease.

Our daughter was diagnosed through biopsy a month ago. My TTG was borderline so I began the diet with her. Both of us are seeing our symptoms resolve. :)

My husband's TTG was negative, but we were told by a G.I. that he should be re-tested in the future due to a severely low B12 problem he had a few years back. We weren't given any explanation as to why his B12 was so low (almost gone from his body). He is currently taking B12 shots. Here are my questions:

1. Which tests, specifically, should he request when he does go for testing in the future? (So far my list includes: iron, folate, and B12, but I don't know the specific celiac panel that he should request or if there are other vitamins he should get checked.)

2. Should he stop getting his B12 shots prior to the testing?

3. How far "in the future" she he get tested? How long should we wait?

Any advice/information is appreciated.

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Dixiebell Contributor
Dixiebell
Posted

Hi anna34.

Also D, E, A & K

Celiac tests

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA and IgG

Total IgA level

Deamidated Gliadin Peptide (DGP) Antibodies, IgA & IgG

mushroom Proficient
mushroom
Posted

B-12 shots will have no effect on testing for celiac - low B12 is a common side effect of celiac due to failure to absorb. He needs it to remain high normal. I would test once every couple of years for celiac unless he has symptoms earlier.

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    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

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    • Scott Adams
      Pain in the right side of abdomen

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      Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated. This is because folic acid supplementation can correct anemia caused by B12 deficiency without addressing the underlying neurological damage. Some studies suggest that excessive folic acid intake might increase the risk of certain cancers, such as colorectal cancer, particularly in individuals who have precancerous lesions.
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weekend so hopefully some TLC from mum and dad will help!!!    
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