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Which Tests Should Husband Get?

anna34

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anna34 Enthusiast
anna34
Posted

My thanks to everyone on this board. You have been so helpful to me as I learn about this disease.

Our daughter was diagnosed through biopsy a month ago. My TTG was borderline so I began the diet with her. Both of us are seeing our symptoms resolve. :)

My husband's TTG was negative, but we were told by a G.I. that he should be re-tested in the future due to a severely low B12 problem he had a few years back. We weren't given any explanation as to why his B12 was so low (almost gone from his body). He is currently taking B12 shots. Here are my questions:

1. Which tests, specifically, should he request when he does go for testing in the future? (So far my list includes: iron, folate, and B12, but I don't know the specific celiac panel that he should request or if there are other vitamins he should get checked.)

2. Should he stop getting his B12 shots prior to the testing?

3. How far "in the future" she he get tested? How long should we wait?

Any advice/information is appreciated.

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Dixiebell Contributor
Dixiebell
Posted

Hi anna34.

Also D, E, A & K

Celiac tests

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA and IgG

Total IgA level

Deamidated Gliadin Peptide (DGP) Antibodies, IgA & IgG

mushroom Proficient
mushroom
Posted

B-12 shots will have no effect on testing for celiac - low B12 is a common side effect of celiac due to failure to absorb. He needs it to remain high normal. I would test once every couple of years for celiac unless he has symptoms earlier.

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  • Posts

    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
    • RMJ
      ttg iga high (646 mg/dl) other results are normal

      By RMJ · Posted

      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
      Vegetarians and vegans with celiac disease

      By kpf · Posted

      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
    • trents
      Fiber Supplement

      By trents · Posted

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
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