Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coming To My Senses!

Camp Laffalot

Recommended Posts

Camp Laffalot Newbie
Camp Laffalot
Posted

Hey, ya know what? I can taste and smell again! I'm a little over 2 months gluten free and began noticing that I could smell things sooooo much better. And taste more conmplex flavors better. WOW! Love it.

Now if the awful pains and stinkin' nausea would just go way. Husband has gone gluten free with me, and we are very careful of CC possibilities in the kitchen. I think it is all the years of no diagnosis and all the damage that has been done. I am 72, overweight, and that ol' gut is just worn out. Everything takes longer when your old, so I am trying to remain patient. My cardiologist has suggested that I should go dairy free, and I was 100% for about 4 days and then couldn't resist my cheese fix. I am a cheese addict. Well, I've been sober for 22 years, so I'll just have to apply the 12 steps to dairy, I guess.

Just wanted to touch base with you wondeful people who give me so much comfort, and share the good news of my new awakenings in the taste and smell departments! Don't know if it has to do with becoming gluten free, but I'll take it!

Hugs all 'round the room.

Mary Ellen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fire Fairy Enthusiast
Fire Fairy
Posted

Hey, ya know what? I can taste and smell again! I'm a little over 2 months gluten free and began noticing that I could smell things sooooo much better. And taste more conmplex flavors better. WOW! Love it.

Now if the awful pains and stinkin' nausea would just go way. Husband has gone gluten free with me, and we are very careful of CC possibilities in the kitchen. I think it is all the years of no diagnosis and all the damage that has been done. I am 72, overweight, and that ol' gut is just worn out. Everything takes longer when your old, so I am trying to remain patient. My cardiologist has suggested that I should go dairy free, and I was 100% for about 4 days and then couldn't resist my cheese fix. I am a cheese addict. Well, I've been sober for 22 years, so I'll just have to apply the 12 steps to dairy, I guess.

Just wanted to touch base with you wondeful people who give me so much comfort, and share the good news of my new awakenings in the taste and smell departments! Don't know if it has to do with becoming gluten free, but I'll take it!

Hugs all 'round the room.

Mary Ellen

Congratulations! My mom is 74 and in the same boat. She went gluten free in January. I wish I could get her online so the two of you could compare notes, it would probably be very encouraging for her (and you :) ). She is a little disappointed she isn't healing as fast as I am.

ravenwoodglass Mentor
ravenwoodglass
Posted

Great to hear you starting to feel better. Although hard do try and keep the dairy to as little as you can if you can't cut it out completely. We also often crave stuff we shouldn't be eating so if you can drop it entirely for a month or two and see if it helps, or even more important how your body acts when you add it back in, that would give you a clearer idea how much of an issue it is for you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Pain in the right side of abdomen

      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weeke...
    2. knitty kitty
      0

      Dairy and Celiac: studies

    3. Scott Adams
      - Scott Adams replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how long does it take for the genetic blood test for celiac to come back?

      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, ...
    4. knitty kitty
      - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Pain in the right side of abdomen

      @Heatherisle, You're not a bother at all. What "Vitamin B medication" is she taking? Is it just B12 and folate? All eight B vitamins, Vitamin D and other vitamins and minerals need to be supplemented because the malabsorption of Celiac disease affects all the nutrients. All the B vitamins work together. Just supplementing one or two...
    5. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Pain in the right side of abdomen

      Hi Thank you, will tell her to do that
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,666
    • Most Online (within 30 mins)
      7,748
    S.Aulman
    Newest Member
    S.Aulman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weekend so hopefully some TLC from mum and dad will help!!!    
    • Scott Adams
      how long does it take for the genetic blood test for celiac to come back?

      By Scott Adams · Posted

      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, but only a small percentage actually develop celiac disease. However, if the test is negative for both genes, celiac disease becomes extremely unlikely, which is why your doctor mentioned possibly canceling the endoscopy if the result is negative. If it’s positive, it just means celiac remains a possibility and further testing, like a gluten challenge followed by endoscopy, helps confirm it. Since you have an identical twin, it’s definitely useful information to share if the genes are present, because twins share the same genetic risk. It sounds like you found a very thorough GI doctor, which is great, especially since she’s also monitoring nutrients and looking at the whole picture.
    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      @Heatherisle, You're not a bother at all.   What "Vitamin B medication" is she taking?  Is it just B12 and folate?   All eight B vitamins, Vitamin D and other vitamins and minerals need to be supplemented because the malabsorption of Celiac disease affects all the nutrients.  All the B vitamins work together.  Just supplementing one or two can throw the other B vitamins out of balance causing worsening deficiencies in other B vitamins.  Doctors are undereducated about nutrition.  Heavy sigh. This is worrisome.  These are all symptoms of Gastrointestinal Beriberi caused by Thiamine deficiency.   An Erythrocyte Transketolace Activity Assay needs too be done to check her Thiamine level.  But because this test is so expensive and takes so long for the results to come back, it's much simpler to administer 500 mg Thiamine Hydrochloride several times a day for several days and look for health improvement (WHO recommendation).  Doctors can administer Thiamine Hydrochloride by IV along with a "banana bag" with all the B vitamins in it.  (Riboflavin gives it the yellow color.).  I've experienced vitamin deficiencies which my doctors didn't recognize.  When thiamine and B12 deficiencies started affecting my brain function, my doctors wrote me off as a depressed hypochondriac.  I had Gastrointestinal Beriberi myself.  I took over the counter thiamine hydrochloride at home and had health improvement within an hour.  High doses (500 mg) of Thiamine are needed to "jump start" the body into proper functioning.   Apologies if I was curt.  I get very frustrated because the nutritional deficiencies that occur with Celiac disease are not addressed properly.  All I can do is tell people about what I learned on my Celiac journey.  Have you visited my blog?  Tap on my name, look for pull down menu Activities and go to blog.   I do hope your daughter can get the nutritional support she needs.  I'm very worried.  Please keep us updated!
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi  Thank you, will tell her to do that
    • Scott Adams
      Pain in the right side of abdomen

      By Scott Adams · Posted

      I think a key thing here would be to ensure that the prescription(s) she started taking are actually gluten-free, as some contain wheat starch. In the USA we have a site you can check, not sure about the UK, but possibly. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.