Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Expect For Recovery Time And Patterns


reijnen

Recommended Posts

reijnen Newbie

I am a 24 yr old athlete I suffered from an onset of symptoms starting 8 weeks ago, I am a professional athlete and so I was quickly diagnosed and have started a 100% gluten free diet. As my job relies significantly on my health and even small issues are noticeable for me. I suffered very few G.I. issues during my experience for me the majority of the symptoms were fatigue, sleepiness, sore muscles and joints. I have had my vit and iron levels checked and everything appears to be okay there. My biopsy results were a 1 on a scale of 0-4. I am able to train some since going gluten free a bit over 2 weeks ago but I am no where near 100% and how I feel really changes day to day, it isn't steady progress which is really frustrating.

I know it really varies person to person but what should I expect for recovery time (knowing that I am young in extremely good health and very strict with my diet) and are my recovery patterns normal?

Thanks for any input! Feel free to DM me as well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

They say adults take anywhere from 6 months to 2 years to fully heal from Celiac damage.

It sounds like your damage was minimal and your vitamin levels are good. In that case you should heal quickly and I would guess you will be feeling better within the 6 month period and not like those of us who are older and had symptoms for years and years. I think we take the two years to heal.

Keep checking your vitamin levels regularly since you are able to be monitored medically.

Most of the nutritional information I have read talks about increased need for protein when your body is healing so be sure to eat as much protein as you can in order to heal any tissues that need healing and to not lose your muscle mass/tone.

Some people get secondary intolerances so be on the lookout for those. Dairy is metabolized by an enzyme produced at the tips of the villi that are damaged by Celiac disease so it is therefore advised that you give up dairy too. I don't know if you were told that or not, but most people have problems with dairy for the first few months.

My son has been sick with asthma and other illnesses for half of his 16 years. He could never tolerate exercise, but at about 4 months gluten free, he started having "normal kid" energy! And started being able to run and had stamina like never before. If he can heal in 4 months after 8 years of being sick, I would bet you get your energy back soon too.

Be sure you take vitamins even if your levels look good. People say B 12, vitamin D, and vitamin C help them a lot. I think the vitamin levels only show up when they are in the danger zone and you want to be in the optimal zone, so be sure you take a good multiple vitamin to be building your body back up.

So happy for you that you found out early and you have medical care. Good luck getting your stamina back.

My cheeks are red right now because I am giving you advice on how you will recover when I wasn't even able to walk around the block 6 months ago, but you can take it or leave it...I think you have every reason to be very optimistic about a fast recovery given your situation. Good luck to you! Maybe some athletic types will write you their experiences with recovery soon. :)

If you start having problems with recovery it might be secondary intolerances since they are common too. Dairy, soy, nightshades, corn, fructose,eggs...these things can suddenly surface for some of us...but they don't necessarily happen...just want you to watch for them. Good luck

JonnyD Rookie

First off, I'm no professional athlete but have been a runner for 20+ years and pretty fit overall. I've been gluten free for almost 2 months. From what I've read, you should focus on eating mostly whole foods and not a whole lot of the processed "Gluten Free" labeled products. That should help things heal quicker. For me, I saw an easing of symptoms quickly at first and higher energy levels after about a month. I lost a belt size from intestinal swelling that cleared up about a month after I quit gluten.

From what I've experienced, it's definitely a process and not like flipping a switch. I think being fit will help your intestines heal faster but your body will still need time to adjust. I also found it worth while to check out a couple books from the library on celiac to better understand what's going on.

From a training standpoint, I've been going easy on myself for the last couple months. I don't know if you have that option or not.

Jonny

Mari Enthusiast

Ask your Dr to order a test for Lyme Disease which is common in Celiacs. And ask for tests to see if you have low vitamin levels - especially Vit D and Vit B12. The Dr I see did not know to order these tests and I became very weak and tired and obviously sick before she would order them. The Vits were low and the Lyme test was positive.

Kim69 Apprentice

Pre Coeliac disease I used to run about 30 km and cycle 100 km a week. Not bad for a 40 yo. Since getting celiac disease over a year ago I have slowly improved but I have daily pain of varying degree and fatigue also of varying degree. I struggle coping with a full day of work.

Sorry that my story isn't reassuring but I get tired of reading lots of reports (not on this website) from people who are gluten intolerant and seem to have miraculous recoveries.

mushroom Proficient

.

Sorry that my story isn't reassuring but I get tired of reading lots of reports (not on this website) from people who are gluten intolerant and seem to have miraculous recoveries.

I know what you mean :( Everyone says stop eating gluten and it all goes away :rolleyes: Well the GI stuff goes away, but for me the other stuff doesn't :angry: I guess some of us are just too far gone to come that far back :P Sorry to stuff someone else's dream, but not all of us make the miraculous recoveries.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    2. - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    3. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748

    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.