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Social Difficulties And Anxiety


jasonD2

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jasonD2 Experienced

ive obviously come a long way and am very comfortable ordering gluten free food in restaurants under most circumstances, but i still get this jolt of anxiety when people ask to go to dinner or bring food into plans...like every time!

I just got out of an 8 month relationship. she seemed very tolerant and accepting of my dietary needs but i know deep down it became a problem for her in the long run. she will eat anything anywhere and weve been unable to eat out at some of her favorite restaurants together, which i know upset her. on the flip side i had a problem with her diet...she ate mostly junk food and drank a lot (with an alcohol allergy mind you). over time she became a moody angry person and it wasnt even fun to be around her so we ended things and now i have to go back out into the world and find a girl who will be accepting of my diet and not let it bother her if i choose to lead a healthy lifestyle and not eat things that will make me sick. at the very least i need a partner who believes in a healthy active lifestyle, who takes care of her body and mind and all that good stuff. i hope she is out there :)

Still what im getting at is the the fact that its so frustrating to have this condition while attempting to have a normal social life. i feel like people just dont get it and i always wind up looking like the odd ball at the dinner table for asking the server if there is any gluten in the sauce.


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GFreeMO Proficient

With the warm weather coming up, maybe you could invite people to your place and grill. Try to do things that are not so food involved like a movie or bowling, concert..whatever.

I was reading about this too singleswithfoodallergies.com It's a dating service for people with food allergies like match.com

YoloGx Rookie

I have gone through this, go through this. In time it gets a little easier. Thank god I now have someone where this just isn't an issue. However I remember this dilemma well. It is easy to feel socially ostracized and misunderstood. However there are ways around that plus ways to make it into a virtue.

Like the last poster suggested, think of alternative things to do. One thing I have done is invite x on a walk with a small picnic, but one where I prepared all the food. Going to the zoo, an art museum or gallery, a poetry reading, a play, musical performance are all good alternatives to going out for dinner. And later when you do actually go out to dinner, choose a reliable gluten-free restaurant.

As far as social embarrassment with a possible date, its helpful to remember there are others out there with far worse problems--like diabetes etc.

If someone can't love you for yourself and accept your needs, your really don't want to be with them anyway, do you? In a way having this condition helps one cut to the chase by flushing out selfish, grasping people. It looks like you are on the right road--you want someone who takes care of themselves just as you do for yourself too. Die hard junk food eaters who refuse to consider eating any other way often indicates a poor self image, someone who can't really love any one else since they don't love themselves.

Meanwhile, take up a hobby and pursue it, maybe take a class or two in it or get involved in a club or some kind of artistic or other social events. I have often met the best people that way--including my current significant other.

Bea

Cattknap Rookie

If I know we are going to be going out to a restaurant with a group of people, I call ahead and talk to the manager and get a list of what they have that is gluten free. Then when I arrive at the restaurant, I can order without the waiter or waitress running back to check with the chef in order to try to accommodate me (while inconveniencing our friends).

I really try to downplay my condition - I don't want it to be the center of attention or conversation at every social event where there is food. Sometimes I eat at home first if I'm not sure what restaurant we are going to be going to or what food will be available at a party - then I'll order a house salad with plain broiled chicken and ask for extra lemon.....there are things you can do to minimize the hassle of eating out.

T.H. Community Regular

I think sometimes finding hobbies that also encourage healthy habits/eating can make it more likely you'll find someone who 'gets' eating a certain way.

Sports hobbies, like biking, mountain climbing, hiking clubs - those might do. Health conscious folks there, ya know? Gardening clubs, too, that are focused on organic gardening, at least.

Cooking classes for particular trends or diets, like gluten free, vegetarian, etc... might be a good place to meet people of like minds. :-)

Fire Fairy Enthusiast

Cooking classes for particular trends or diets, like gluten free, vegetarian, etc... might be a good place to meet people of like minds. :-)

I think this a great point especially as you will probably be greatly out numbered by the women. :)

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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