Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Billirubin Elevated Pre Diiagnosis?

JSegura226

Recommended Posts

JSegura226 Apprentice
JSegura226
Posted

I was going over my CBC that I had 3 weeks ago when I ended up in the Emergency room.... Now I don't know if the doctor did not notice it or he just decided not to bring it to my attention but I just realized that my Billirubin level was slightly elevated to 2.0 mg/dl... Now at the time of the blood work I was rapidly losing weight, dehydrated and my colon was inflamed so I'm not sure if that had anything to do with it but, did anybody have elevated Billirubin levels Pre-diagnoses? I have an appointment in a week to get complete blood work and some Vitamin panels done. Hopefully my Billi levels have dropped since going gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cahill Collaborator
cahill
Posted

I was going over my CBC that I had 3 weeks ago when I ended up in the Emergency room.... Now I don't know if the doctor did not notice it or he just decided not to bring it to my attention but I just realized that my Billirubin level was slightly elevated to 2.0 mg/dl... Now at the time of the blood work I was rapidly losing weight, dehydrated and my colon was inflamed so I'm not sure if that had anything to do with it but, did anybody have elevated Billirubin levels Pre-diagnoses? I have an appointment in a week to get complete blood work and some Vitamin panels done. Hopefully my Billi levels have dropped since going gluten-free.

I am not diagnosed , My bilirubin count has been in that range for atleast the last 5 years( 5 years ago was when I started ASKING for my blood test results ). My doc ( the one I am about to fire) doesnt seem to be concerned about it.

I am now seeing an endocrinologist and will see what she thinks about it .

I am very interested in others input on this topic

JSegura226 Apprentice
JSegura226
Posted
  • Author

I am not diagnosed , My bilirubin count has been in that range for atleast the last 5 years( 5 years ago was when I started ASKING for my blood test results ). My doc ( the one I am about to fire) doesnt seem to be concerned about it.

I am now seeing an endocrinologist and will see what she thinks about it .

I am very interested in others input on this topic

After seeing your post I decided to look through my old medical records to see if my Billi levels were elevated on previous CBC tests. I found one from December of '09 and sure enough!!.. 2.1..It is funny because I now specifically remember the doctor calling me to tell me my blood count came back fine and that my billirubin was slightly elevated and it was nothing to worry about and we would talk about it on my next visit.. Guess he forgot..

Also the ER doctor 3 weeks ago told me it was nothing to worry about also and that some people just have a higher billirubin level that others.. I call Bull****!

ravenwoodglass Mentor
ravenwoodglass
Posted

Celiac can have impact on the liver. Can't say for sure but you might see those numbers come down after you have been gluten free for a while.

jerseyangel Proficient
jerseyangel
Posted

My billirubin was slightly elevated before diagnosis. It normalized within 6 months gluten-free.

cahill Collaborator
cahill
Posted

Just to update,,,

I saw a new GI doctor yesterday.The other than my bilirubins my liver function tests were normal. She diagnosed me with gilbert-meulengracht syndrome,

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. olivia11
      - olivia11 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

      This is really helpful I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a...
    2. olivia11
      - olivia11 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful I had not considered sugar alcohols or inulin as triggers. Thanks f...
    3. olivia11
      - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      suggest gluten free food

      Thanks for asking I’m mainly looking for gluten-free staples and snacks. Any recommendations for brands or go-to items would be appreciated.
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble...
    5. Jmartes71
      - Jmartes71 commented on Jefferson Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      4

      Common Neurologic Deficits in New Celiac Patients Linked With Autoimmunity to Transglutaminase 6

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,788
    • Most Online (within 30 mins)
      7,748
    carolyn02
    Newest Member
    carolyn02
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • olivia11
      suggest gluten free food

      By olivia11 · Posted

      Thanks for asking  I’m mainly looking for gluten-free staples and snacks. Any recommendations for brands or go-to items would be appreciated.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
    • Rogol72
      Build muscle back feeling weak?

      By Rogol72 · Posted

      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.