Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

#*($&, $@#(*&!

thleensd

By thleensd
in Coping with Celiac Disease

Recommended Posts

thleensd Enthusiast
thleensd
Posted

SO frustrated right now. I don't eat out, I try to buy trusted brands, I rarely buy gluten-free processed foods... and I don't know if it's gluten or something else, but I feel miserable right now. My dad ate all of the same things I did, so I know it's not food poisoning.

I was craving Indian Food today, so I looked up some recipes and we cooked chickpeas and rice. I've eaten (frequently!) everything that went into that meal except for cumin seed (I usually buy it already ground) and cardamom seed (which I didn't eat, just left the whole pods in to soak then removed them.

About 45 minutes after I ate, I had doubling-over cramps and an unpleasant session sitting atop the porcelain throne. I know it was lunch because upon examination of the evidence, the chickpeas were definitely a part. How the heck can my whole lunch get through my system THAT FAST!?

All of the spices I used were either McCormick single spices or from thespicehouse.com (they have a good gluten policy).

I soaked the chickpeas all night, then cooked them today. Could they get contaminated? They were arrowhead mills...the site lists them as gluten-free... but the little gluten free triangle is not on the package.

I hate the not-knowing part of this. And now I have to toss a GIANT YUMMY pot of chana masala and huge pan of AMAZING spiced rice because I don't know what caused the problem. :angry:

I don't think any of you can solve this (ooh, maybe we have a psychic on board, that would be awesome!), but I needed to rant to the understanding masses. Now I will go make some ginger tea and cry into it. Why is there no crying emoticon? *sigh*

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eatmeat4good Enthusiast
eatmeat4good
Posted

Oh, I'm so sorry you can't eat all that good food.

I have been there and it is no fun.

Sorry, I'm not the psychic about why or how one gets glutened.

Sounds like you are super careful.

Maybe it isn't gluten but inability to digest those foods??

Just thinkin out loud.

AzizaRivers Apprentice
AzizaRivers
Posted

I don't know how spicy exactly you made it, but have you eaten anything that spicy recently? Indian food of any kind will do that to my boyfriend and he has no issues with gluten. Some people just can't handle the spice. Any chance it was that? Or maybe your healing gut at least couldn't handle it quite yet?

thleensd Enthusiast
thleensd
Posted
  • Author

I didn't even make it very spicy... and ALL of the spices and ingredients (except the two I listed) I eat on a regular basis, often in higher quantities.

The only thing I've found so far is that cardamom can be a diuretic... but I didn't even eat any... just let a couple pods soak and removed them (like bay leaves). For the time being, I'll eliminate cardamom and hope it wasn't a gluten thing.

I'm still going to pout, though.

Edit: And my whole house still smells SO yummy. pfffft.

cassP Contributor
cassP
Posted

im sorry that i cant relate at all with the speed of gastric emptying... i never had that with gluten.. my D with lactose intolerance was kind of sudden- but things never passed thru me that quickly (except when i had salmonella).

BUT- i CAN say- that 75% of the time i canNOT eat Chickpeas at all- they will give me painful cramping. SOMETIMES i can survive a little hummus- but regular chickpeas NEVER

Monklady123 Collaborator
Monklady123
Posted

im sorry that i cant relate at all with the speed of gastric emptying... i never had that with gluten.. my D with lactose intolerance was kind of sudden- but things never passed thru me that quickly (except when i had salmonella).

BUT- i CAN say- that 75% of the time i canNOT eat Chickpeas at all- they will give me painful cramping. SOMETIMES i can survive a little hummus- but regular chickpeas NEVER

Now this is interesting, because I recently bought something called "spicy chick peas" from Trader Joe's. I don't think they specifically said "gluten free" but there were no gluten ingredients, and I'm usually fine with things like that. Well, not with these! Pretty definite gluten symptoms. Or so I thought. Maybe it was just because of the chick peas? Is there something in them that "mimics" gluten? I eat hummus just fine though, so I don't know...

Well, for the OP, I'm sorry that happened. The meal sounds absolutely yummy. At least your dad can eat it.

dilettantesteph Collaborator
dilettantesteph
Posted

Since it was all things that you usually eat, which one was from a new container? CC can happen anywhere. Maybe there was something in with the cumin seeds since you usually eat those ground. Was there anything else from a new container?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


thleensd Enthusiast
thleensd
Posted
  • Author

BUT- i CAN say- that 75% of the time i canNOT eat Chickpeas at all- they will give me painful cramping. SOMETIMES i can survive a little hummus- but regular chickpeas NEVER

Wow, that's really interesting.... I'm not sure I've eaten whole chickpeas before (that is, in my "new life" ...since Diagnosis). I didn't even consider that since I eat hummus frequently. Now I'm trying to remember if I have. I eat beans nearly every day... and am fine with lentils. Can you eat beans? I've been ok with Hummus, but don't eat too much at once. My gut is still pretty sensitive, though (after two years! ugh!). If I eat too many nuts or sunflower seeds I get cramps.

I'm still cranky and "off" from yesterday though. Maybe I should make a t-shirt for these days ("speak to me at your own risk" or something).

black list: cardamom pods, cumin seeds, whole chickpeas.... <_<

cassP Contributor
cassP
Posted

Wow, that's really interesting.... I'm not sure I've eaten whole chickpeas before (that is, in my "new life" ...since Diagnosis). I didn't even consider that since I eat hummus frequently. Now I'm trying to remember if I have. I eat beans nearly every day... and am fine with lentils. Can you eat beans? I've been ok with Hummus, but don't eat too much at once. My gut is still pretty sensitive, though (after two years! ugh!). If I eat too many nuts or sunflower seeds I get cramps.

I'm still cranky and "off" from yesterday though. Maybe I should make a t-shirt for these days ("speak to me at your own risk" or something).

black list: cardamom pods, cumin seeds, whole chickpeas.... <_<

most beans wreck me completely... and legumes (including peanuts) wreck me too-> id say the pain is sometimes worse than gluten big time. im assuming i can do a little hummus cause the chickpeas have been pulverized- maybe when some of these foods are blended to smithereens-> maybe it renders some of the proteins easier to digest.

but u know we're all different. if beans & legumes dont bother u, than you might be completely okay with chickpeas.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748
    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.