Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Migraines. Better gluten-free? How Long gluten-free?

sreese68

Recommended Posts

sreese68 Enthusiast
sreese68
Posted

My 12yo daughter has just started a gluten-free diet. (I've been on it almost 4 weeks.) One of the reasons is that she gets migraines. They make her VERY tired, dizzy, nauseous, etc. The last one lasted several days. (Fortunately, we homeschool, so we can work around them somewhat.) I know they're hormonally related for her, but our neurologist believes they can be made worse by food.

I was wondering if your migraines got better gluten-free? If so, how long did it take gluten-free for you to see a difference? I know nitrates and other foods can be implicated in making migraines worse, but my daughter is such a picky, picky eater that I wanted to change one thing at a time for her.

Thanks!

Sharon

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarolinaKip Community Regular
CarolinaKip
Posted

My 12yo daughter has just started a gluten-free diet. (I've been on it almost 4 weeks.) One of the reasons is that she gets migraines. They make her VERY tired, dizzy, nauseous, etc. The last one lasted several days. (Fortunately, we homeschool, so we can work around them somewhat.) I know they're hormonally related for her, but our neurologist believes they can be made worse by food.

I was wondering if your migraines got better gluten-free? If so, how long did it take gluten-free for you to see a difference? I know nitrates and other foods can be implicated in making migraines worse, but my daughter is such a picky, picky eater that I wanted to change one thing at a time for her.

Thanks!

Sharon

I had my last migraine at 2 weeks gluten-free. I have not had a migraine since June 2010! I had 9 plus a month before going gluten-free! I would go through all my migraine meds every month. May 2010 was the last time I had to purchase them and didn't need them! For me, it has been amazing not to have them anymore! I only get a mild headache now when I get CC. My migraines were blamed on hormonal issues and foods such as nuts. Best wishes to you and your daughter! It is so worth going gluten-free to get rid of the migraines. Keep us updated with how you both are doing.

domesticactivist Collaborator
domesticactivist
Posted

I used to get migraines, but I'd usually get really intense migraine auras including visual anomalies, losing all vision, aphasia (saying wrong words), fatigue, intense tingling moving through arms and fingers, face and tongue, nausea, etc. They did seem correlated with hormones and other foods to some extent.

I had my last one in November shortly after going gluten-free. We were traveling at the time and hadn't learned how to avoid cross-contamination yet. That was my worst one ever.

Since then I've been completely aura and migraine free. btw, I'm not celiac, and have made other dietary changes as well. You can see about them in my sig and other posts.

starrytrekchic Apprentice
starrytrekchic
Posted

I still get them, though I think they're a bit better. Mine are hormone related (occurring around ovulation) and eating chocolate during that 2-3 day timeframe makes them infinitely worse.

Whether she keeps getting them will depend on if gluten helped trigger them & if you've tracked down other causes and eliminated them.

jeannieknits Rookie
jeannieknits
Posted

Interestingly I had been a long time migraine sufferer, and since going gluten free only had one in the past 8+ months. This past week I accidentally glutened myself, and bam--migraine on Saturday. It was a mild one, but got the aura and everything.

There definitely seems to be a connection.

ps: I'm trying to convince my 18yo daughter to go gluten-free--as she suffers horrible headaches and monthly migraines. She's not "ready" for the lifestyle change!

Good luck with your gal. :)

eatmeat4good Enthusiast
eatmeat4good
Posted

Migraines were almost daily for me for years. A month into gluten free, no more migraines except menstrual migraine which is actually worse now. It is actually common for menstrual migraine to get worse after going gluten free. Something about the hormones coming back or working better after gluten is eliminated. But the daily migraines are definitely gone and only come back when I get glutened.

I have a friend whose 12 year old daughter was having migraines and the gluten free diet eliminated hers. She had been taking migraine medicine daily...something for prevention, but she no longer needs that medication. It can work, just depends if it is gluten related or hormone related. But worth a try.

sreese68 Enthusiast
sreese68
Posted
  • Author

Thanks so much for everyone's replies. I let her know what y'all said. She just started gluten-free on Monday (we had meant to on Saturday, but she wanted to eat at a fair on Sunday), so it's too early to tell. She always gets migraines before her cycle, which I think may not happen for a little while longer since she was in such an incredibly good, helpful mood today! LOL! She's not terribly regular yet, so it's hard to know when the next one will come. I'll let y'all know how it turns out.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 5 weeks later...
danzn16 Rookie
danzn16
Posted

Thanks so much for everyone's replies. I let her know what y'all said. She just started gluten-free on Monday (we had meant to on Saturday, but she wanted to eat at a fair on Sunday), so it's too early to tell. She always gets migraines before her cycle, which I think may not happen for a little while longer since she was in such an incredibly good, helpful mood today! LOL! She's not terribly regular yet, so it's hard to know when the next one will come. I'll let y'all know how it turns out.

I've had migraines for the past 20 years... since I was 3 years old. I feel like I've done almost everything and nothing helps. Topamax, Nortriptyline, nerve blocks... nothing helps. It's been almost 2 weeks since I've been gluten free. I still have migraines. But my doc said it takes 3 weeks to get the gluten out of your system and headaches can get worse during the 1st few weeks going off gluten, kind of like withdrawal. So hopefully it will work. Did it help your daughter?

MissBonnie Apprentice
MissBonnie
Posted

i had migraines my entire childhood until i found a really good chiropracter. now with regular visits i dont get them. its worth a try!

sreese68 Enthusiast
sreese68
Posted
  • Author

I've had migraines for the past 20 years... since I was 3 years old. I feel like I've done almost everything and nothing helps. Topamax, Nortriptyline, nerve blocks... nothing helps. It's been almost 2 weeks since I've been gluten free. I still have migraines. But my doc said it takes 3 weeks to get the gluten out of your system and headaches can get worse during the 1st few weeks going off gluten, kind of like withdrawal. So hopefully it will work. Did it help your daughter?

She had one a little while ago that I think was caused by hormones due to its timing. BUT it only lasted a day instead of 5 days like the ones she had before going gluten-free. She's going to stay gluten-free for awhile to see if it helps next month as well. Just this week I determined that gluten definitely causes my neuro symptoms (did a gluten challenge for myself), so our household will definitely stay gluten-free. I just don't know if she will need to stay gluten-free outside the home, too.

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Don't know, if this answer comes a little late. Just wanted to add part of my story. I had migraines for 7 years every single day. After going glutenfree on 07/21/2004 it took about a week and I've been migraine free every since. Now I haven't had one single migraine in almost 7 years. Just a slight to middle headache, whenever I get glutened, which is rare.

AmandaM83 Newbie
AmandaM83
Posted

Throwing my 2 cents in - It is nice to see so many whose migraines went away so fast - wish I was that lucky!

I have had severe migraines for several years - prior to being on maintence preventative meds i was haveint 4 or 5 a week. After going gluten free, it wasn't until I hit the 6 month mark that I saw a real reduction in frequency. I have gone from 8-9 a month to 3 a month - sooo exciting! I can't wait to see what the next 6 months will do!

domesticactivist Collaborator
domesticactivist
Posted

fyi, I had my first (and only) migraine since going gluten-free a couple weeks ago. It was the morning after having balsamic vinegar for the first time since starting GAPS. I think the sulfites combined with a lack of sleep set it off.

  • 2 years later...
bork14 Newbie
bork14
Posted

AmandaM83

I see this post was back from May. I would love to know how your migraines have improved since then?

I have had chronic, debiliating migraines for the last 10 years of teen and early adult years and no one could ever figure out why. I'm on preventatives, birth control and have a few different prescriptions for when I actually get the migraine. I went gluten free about 2 months ago, and the headaches were much worse at first, but i think that was due to the withdrawl (i had VERY bad withdrawl symptoms for the first few weeks) but those have since decreased. However, just had a migraine yesterday that was the worst i've had in over a year. I'm just trying to gauge if it's worth sticking out this diet and if it could really take SO long for me to see my migraines improve.

 

Throwing my 2 cents in - It is nice to see so many whose migraines went away so fast - wish I was that lucky!

I have had severe migraines for several years - prior to being on maintence preventative meds i was haveint 4 or 5 a week. After going gluten free, it wasn't until I hit the 6 month mark that I saw a real reduction in frequency. I have gone from 8-9 a month to 3 a month - sooo exciting! I can't wait to see what the next 6 months will do!

ElenaMadrid Newbie
ElenaMadrid
Posted

I went from having an average of three migraines a week when I was eating a lot of wheat in my diet to maybe one migraine a month when I started avoiding gluten.  :)  When I DO get migraines now, they are much less severe. 

dilettantesteph Collaborator
dilettantesteph
Posted

I also had an improvement with migraines gluten free, both in frequency and severity.

GF Lover Rising Star
GF Lover
Posted

Like so many I also have less frequency and no longer take any medication for them.  If I do get glutened, migraine is a hugh symptom and only over 4 hours of medicated sleep will stop the severity.

 

Colleen

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.