Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2.5 Year Old Is "spaced Out"


MadScientistSA

Recommended Posts

MadScientistSA Newbie

My 2.5 year old (well, 2.75 years, I suppose) was diagnosed with Celiac in January. I completely removed gluten from my home a week before his diagnosis just to see if that's what was bothering him (I didn't expect to get a test done the next week), and he hasn't had it since. I send all his food to daycare every day and they know not to give him anything. We rarely eat out, and when we do, I typically bring his food with me. I'm almost certain he's not getting gluten on a regular basis... he's been glutened twice since January, and I knew it immediately. He's also been dairy free since February, save a couple of weeks ago when I reintroduced it and he turned into devil boy, when I took it away again.

However, he still gets this "spaced out" thing going on 3-4 times a week. He will sit/stand there for a minute with a vacant expression and won't respond to anything. After a minute or so, as quick as he started, he'll act like normal again.

Almost all of his symptoms have completely gone away since we removed gluten, except for this one. How long will this last? I'm not usually a worrier, but this one has me a little concerned.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

That's normal for a teenager, but not a toddler.

I would tell the doctor. I don't want to alarm you but they could be seizures. Not all seizures are the scary shaking kind. My oldest was in grade school with a kid who did this. He got it controlled with medication.

I hate even saying this on a Saturday.

See if you can think of any triggers. Watching cartoons, playing with a flashing toy, time of day. Do they observe this at school? Write down everything you can think of to tell the doctor.

On further thought: I looked next door and remembered one of those kids. If she didn't like what you were saying or want to hear you, she would just look at you blankly. At a very young age. Maybe he's being a bit " difficult"?

txplowgirl Enthusiast

That is what is known as a gluten siezure, aka gluten ataxia. I have had those since I was 8. My parents always accused me of daydreaming or not paying attention. It was really hard sometimes in school. They finally went away after I was gluten free for 6 months but I had to totally remove not only gluten but dairy and soy too.

Darn210 Enthusiast

My first thought was also seizures . . . and if it is related to gluten, I would suspect that as a nuerological symptom, it would be one of the last to resolve. Have you noticed if they are fewer or don't last as long since going gluten-free? I think it is something to talk to the doc about. ETA . . . I don't think you should wait to see if it resolves on its own.

sandsurfgirl Collaborator

Those definitely sound like seizures. Not to alarm you but you need to get him to doctor and get a referral to a neurologist. It doesn't sound like a gluten thing to me at all.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Going for upper endoscopy today

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

    3. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    4. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    5. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,188
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      UPDATE:  here I am a couple months past my full diagnosis and going gluten free.  I’ve been feeling a lot better.  More energy, joint pain has gone down a lot.  Haven’t really had the headaches and migraines I’ve had for years.   My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said,  have the dr test her for celiacs.  Her antibodies came back as greater then 100.  So she is scheduled for her endoscopy and going to be joining me on this journey.
    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.