Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By A Gluten Free Marshmallow?


Poppi

Recommended Posts

Poppi Enthusiast

So when I was shopping for the kids easter candy I bought Reese’s mini cups, Icy Squares, chocolate coins (the foil wrapped kind) and a bag of chocolate covered marshmallow eggs that said “gluten free” on the bag.

So we did our candy hunt and I had some of the kids chocolate (it all read clean on the ingredients) and I felt awful. Definitely glutened. I figured it was anything other than the clearly labeled gluten free marshmallow eggs, right?

So today I had Udi’s cinnamon raisin bread, butter and tea for breakfast - no chance of gluten! For lunch I had more tea and a strawberry scone I made myself from scratch - again, no chance of gluten.

After my scone (yes I realize I am eating horribly today) I had one single chocolate marshmallow egg and 2 hours later I hurt all over. My stomach is fine but my back hurts, my head hurts and I’m cranky.

Feels like gluten but is that possible?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

Of course it is possible. I can't eat much of anything processed without feeling glutened. I am sensitive to very low cc levels.

T.H. Community Regular

Feels like gluten but is that possible?

Oh heck yeah. Best way to see how likely gluten cc would be to call them and ask the important question: do they test for gluten? If they don't, then they are in that lovely category of companies who label their products gluten free but should really say: we didn't add any gluten on purpose, for what it's worth.

Most companies that are not solely gluten free do not test. They will often avoid the question if you ask and answer that their products are completely gluten free and you have to push to get them to answer whether they test or not, and if they test every batch, or test periodically.

And then you can ask what the gluten ppm detection level was for the test they used, if you want to get really technical. Sometimes, before I ask this, they will say they test and then after I ask this, they will backpedal and redefine what they meant by 'testing.'

I've had companies very seriously inform me that their products were completely gluten free because they didn't add any gluten whatsoever to them and choose their ingredients very carefully.

My thought is: so what? Same could be said of any food made in any restaurant, and we all know that the gluten cc can mess up any claims of gluten-free lickety-split.

Shauna

GlutenFreeManna Rising Star

Yes it is possible. PP went over the cc concern very thoroughly so I'll skip repeating that for you. You might also consider that you could be sensitive to some other ingredient in the egg. Off the top of my head--without knowing the ingredients I'm guessing that corn/corn syrup is probably the main ingredient. Everything else you ate today seems to be corn free (I'm only guessing since I don't know your scone recipe).

Poppi Enthusiast

I didn't have the bag anymore and even went to the store to see if they still had some of the candy around but they didn't and they couldn't tell me the company because the only description I had was "the marshmallow eggs in the brown bag"... not very descriptive.

My scones actually had corn flour in them so I don't think it was corn and I make myself a homemade corn tortilla with avocado and cheese on it for lunch a few times a week and feel fine after.

A lady on another site had a great suggestion for me that I will definitely be implementing. She suggested that any time I eat a processed food for the first time I cut out the ingredient panel (and write the name of the product on it) and put it in a big ziploc bag. If I get sick from it I put the ingredient panel in another bag marked "SICK!" and once I have a few items in there I can compare ingredients and see if there is anything in the sick bag that is not present in the other bag.

Worth a shot. At the least it'll help me keep track of stuff that works and stuff that doesn't.

Thanks for the info everyone. Luckily it was a fairly minor hit, I've had a off and on headache/neckache since yesterday but no joint pain or stomach issues.

dilettantesteph Collaborator

So today I had Udi’s cinnamon raisin bread, butter and tea for breakfast - no chance of gluten!

This is in the super sensitive section. This could be corrected to "no chance of gluten over 10 ppm" - I looked it up and they are certified by GFCO which uses a 10 ppm cut off.

Poppi Enthusiast

This is in the super sensitive section. This could be corrected to "no chance of gluten over 10 ppm" - I looked it up and they are certified by GFCO which uses a 10 ppm cut off.

Huh. Learn something new every day. I guess I should have been more specific and just said it was something I hadn't reacted to in the past.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



butterfl8 Rookie

The easter candy could have been packaged on shared lines too. I've noticed that a lot.

-Daisy

Poppi Enthusiast

The easter candy could have been packaged on shared lines too. I've noticed that a lot.

-Daisy

I wish I still had the bag so I could look at the ingredients but it definitely didn't have a "may contain..." or "manufactured in the same facility..." statement. I don't buy those items. I'll have to double check but I think those statements are law in Canada or at least they will be law by 2012 and some manufacturers are phasing them in already.

Although, now that I've had this experience I've been noticing items with a "Gluten Free" label on them that also have "may contain wheat" or "manufactured in the same facility as wheat" written after the ingredients. How the heck can you call yourself gluten free if this is the case?

I noticed that on the Black Diamond Nut Thins. They say "Gluten Free" on the front and have a Celiac Disease Foundation label as well but then state that they are manufactured in the same facility as wheat. I don't get it.

kareng Grand Master

Sometimes, we never figure out what caused the problem. Sometimes it isn't even gluten. Sometimes, life is just a mystery. :unsure:

What's that old joke?

The man says to the doc, "Doc, it hurts when I eat marshmallow candy"

and the doc says, "Well, don't eat marshmallow candy. That's a $20 co-pay."

Poppi Enthusiast

Sometimes, we never figure out what caused the problem. Sometimes it isn't even gluten. Sometimes, life is just a mystery. :unsure:

What's that old joke?

The man says to the doc, "Doc, it hurts when I eat marshmallow candy"

and the doc says, "Well, don't eat marshmallow candy. That's a $20 co-pay."

Yup. I think it's also putting things into perspective. Gluten-free for life doesn't necessarily mean pain-free for life. Other things cause pain and discomfort and not everything has an identifiable cause.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,000
    • Most Online (within 30 mins)
      7,748

    Shanshan75
    Newest Member
    Shanshan75
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.