Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Rant


basslady

Recommended Posts

basslady Newbie

A few weeks ago I bought a medical I.D. bracelet saying that I have celiac along with other medical issues. A week ago in orchestra a guy in my section saw me take it off. He said "Is that a gluten free bracelet?" I had no problem with him asking me. At that time it was more of a question and I have no problem educating people about celiac. But then yesterday he said very loudly "Is that your gluten free bracelet?" Everyone turned and looked at me. AHHHH Why did he have to draw attention to a bracelet that I have been wearing for weeks and draw attention to me being "different" from everyone. And the way he said it was worse. It was like he was mocking me for wearing it. I don't chose to have celiac. I need to wear it so that if something happens they wont give me glutenised medication. If i am exposed to it I have major asthma problems. The next time he does this I am going to flip.

Thank you for letting me rant.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Monklady123 Collaborator

What kind is it? I mean, what style. I have one (not for celiac) that's made for women, and it's got beads and sparkly things on it. lol.. So if you had one like that the next time this guy -- or anyone -- says anything you could say "yes it is, I just got this new style, thank you for noticing! Isn't it pretty?" Kill 'em with kindness, as my mother used to say.

And who knows, you might help someone else. I actually had a woman notice mine once at our local pool. She said that her 7-year-old daughter had just been diagnosed with diabetes and she needed a bracelet but didn't like the chunky ordinary ones. (why her doctor didn't tell her about another style I don't know, but that would be another post...the doctor rant one.) So I told her where I'd gotten mine. :)

But, I totally understand what you're saying. I still hate the "standing out" part of this gluten free thing. Having to always talk to waiters, and trying to figure out how to do communion in church, and in general always being different. When I get to thinking too much like that I remind myself that at least our illness is 100% treatable, and without medication too!

Diane-in-FL Explorer

Where do you get the bracelets? :)

Monklady123 Collaborator

Where do you get the bracelets? :)

I got mine at Lauren's Hope (laurenshope.com) :)

Diane-in-FL Explorer

I got mine at Lauren's Hope (laurenshope.com) :)

Thank you!

collgwg Contributor

omg thats awful people just do not understand at all

my hubby said oh you still can eat that fish we have with the batter on it just wipe off the batter

like that would help they just dont understand that gluten is quite dangerous and some times worse in others i have found

now for this asthma symptoms ever since i got sick feb 23 i have realy bad asthma symptoms and needing puffers now the dr said its because i smoke,

is it because of being glutenated?

i have been gluten free for about 4 days and i am finding that this cough is starting to break up some i can tell its not a cold and i can tell if i consume gluten cause the cough and of course insides go right into spasums

Jestgar Rising Star

my hubby said oh you still can eat that fish we have with the batter on it just wipe off the batter

Dip his in the kitty litter box and tell him he can just wipe of the coating. :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bigbird16 Apprentice

Dip his in the kitty litter box and tell him he can just wipe of the coating. :P

Love it! LOL

K8ling Enthusiast

I have two bracelets from Laurens Hope and I LOVE mine. I wear mine for Asthma and had celiac put on it too... It's barely noticeable.

collgwg Contributor

lol kitty litter

basslady Newbie

Thank you all. Consuming gluten does make my asthma worse. I can still have a problem without gluten but gluten triggers it when I am exposed. I have a pretty bracelet. The chain is made from heart rings. I like it. I bought it of off Amazon. I love the idea of thanking him for noticing. Haha I will do that the next time he brings it up.

Darn210 Enthusiast

Well, my friends here will tell you that I'm a smart...ummmm...alec (yeah, that's it) and I would probably have to say something like . . . "You've already asked about my bracelet twice. What's up with the memory issue?"

LOL on the kitty litter.

Takala Enthusiast

Those are very attractive bracelets !

You could get one of those inexpensive colored silicone rubbery "livestrong" bracelets and have it handy in your pocket for the next time Mr. Inept makes a comment. (if you wanted to take the joke even further, get one of the "power balance" holograph knockoffs that is supposed to have magical powers for athletes). Whip it out and hand it to him with a big flourish, and announce that This Protective Power Band Will Make the Sound Waves Keep HIM from Getting Celiac from sitting near you. ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.