Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grandparents Don't Understand

Bottom-Line

Recommended Posts

Bottom-Line Newbie
Bottom-Line
Posted

I'm sure many others of you have this problem. I have a 11 month old who seemed to have problems after we introduced her to wheat at 7 months so she has been gluten free all but a few days of her life. She also has been switched to soy formula. I've been gluten free for the past 3 and a half years. I'm a college student and work and my husband works also. My husband's parents watch her during the day. She's started recently not wanting the baby food so she's been been getting regular table food I prepare for her the night before. We thought she was only getting this but Grandpa said the other day, "Boy, She sure likes that turkey gravy" He tired to tell us it didn't have any gluten in it but it was a package mix. I'm doubt it didn't. I don't think they take it serious. She acted like she didn't feel good last week for several days and we're guessing it was from the gravy. Grandpa got mad and all when we told him she couldn't eat it. Its not anything new, they've known since she was born we were waiting to give her gluten in hopes that she wouldn't have problems with it. Now i'm wondering if other times she's been really fussy it wasn't because they fed her something they shouldn't have. I know what I go through when I eat it, I don't want her to go through that too.

Also every once in awhile she gets what looks to be a boil on her bottom. Usually it shows up with a diaper rash. Could this be a sign for skin irratation due to a food allergy or gluten? She's had 3 or 4 the last several months. And sometimes she also gets what looks like water blisters along with the diaper rash. I don't know if its just simple diaper rash or something else. The doctor looked at the one boil bump after it had opened and drained and it was starting to heal and didn't seem concerned.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I am going to say what you probably know but don't want to confront. You & your husband need to talk to them about the food. Your husband must insist that they only feed her what you send. You need to be prepared to make other arrangements for the child.

shadowicewolf Proficient
shadowicewolf
Posted

^ along that same thought line, Could you try and get an 'official' diagnosis? Sometimes people are more willing to listen with one.

Asianmom Newbie
Asianmom
Posted

It took a while for my husband's parents to really believe this was more than just a little "thing" that our kids had. My parents knew from when I was a child being diagnosed.Chances are what other person said...that your baby is getting gluten because they may just not understand the seriousness of having celiac. I know our in-laws thought that it wasn't a big deal because they didn't see the gluten attack happen. It was usually after the kids were home for a few hours...then were in so much pain and in the bathroom for hours and sick for days. They weren't around for that part...so it wasn't a big deal. Also it takes a lot of educating to understand what has gluten in it. They thought it would actually say "gluten" on a package if it had gluten...in the ingredients....so they didn't think of the other stuff we have to watch out for. Maybe if you can sit down and share with them the seriousness...what an attack physically does to your intestine, your body, the way you feel...etc. That may help...but if they can't comply...you may need to find another person to take care of her, which may be hard. I have seen other posts where the boils etc were due to gluten attacks. So could be possible that she was exposed at those times. My kids had that too..but they weren't gluten free they were still getting gluten at the time.

GOOD LUCK and many HUGS!!!

Bottom-Line Newbie
Bottom-Line
Posted
  • Author

We've started the process of getting her into a daycare, I have a meeting with someone for that in about a week. I've tried to tell my husband she was getting things she shouldn't since I've started back to college after I had her. I think at first he thought I was paranoid or something. This is the first time they said they fed it to her. Before she ever had regular food she seemed to know what real food was. She'd act like she was chewing when she saw food or try to grab for a can of soda. Just little things, I'd tell my husband. I think he just didn't want to get in a fight with them but when they came out and told us we both said they couldn't. His dad got mad at first. We've told them what to look for and what it does to someones body. It took my parents a long time to understand to. My dad thought it was for attention or something. I had headaches nonstop and bowel problems. Then the headaches and all cleared up and he realized I wasn't lying about it all.

tarnalberry Community Regular
tarnalberry
Posted

This is a confrontation worth having, as non-confrontationally as possible.

They don't have to understand, they just have to do it. Can they watch her in your house? If not, I would suggest having a very clear rule - they are ONLY to give her the foods you bring for her and NOTHING else. If they can't do that, then they are NOT A SAFE PLACE for her and you need to find somewhere else for your daughter. (I know, I know... WAY easier said than done.)

You might also try taking some video of how she is feeling/acting after she comes home and you suspect gluten. Let them SEE what is happening. (Or take her back to their place and stay there for a while and let them change her diapers and deal with her pain.)

shadowicewolf Proficient
shadowicewolf
Posted

We've started the process of getting her into a daycare, I have a meeting with someone for that in about a week. I've tried to tell my husband she was getting things she shouldn't since I've started back to college after I had her. I think at first he thought I was paranoid or something. This is the first time they said they fed it to her. Before she ever had regular food she seemed to know what real food was. She'd act like she was chewing when she saw food or try to grab for a can of soda. Just little things, I'd tell my husband. I think he just didn't want to get in a fight with them but when they came out and told us we both said they couldn't. His dad got mad at first. We've told them what to look for and what it does to someones body. It took my parents a long time to understand to. My dad thought it was for attention or something. I had headaches nonstop and bowel problems. Then the headaches and all cleared up and he realized I wasn't lying about it all.

Babys mimic what they see others around them doing (like the chewing and such). :) Just thought i'd comment.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bottom-Line Newbie
Bottom-Line
Posted
  • Author

Babys mimic what they see others around them doing (like the chewing and such). :) Just thought i'd comment.

Yea I know that. And its possible thats all she was doing but just seemed like she wasn't just minicing. I think its just frustrating. My husband at first said, We'll put her in daycare if they can't be trusted. Now he's going well if it did have gluten in it, it didn't seem to bother her. So we're going to let it drop. When she gets really fussy he just hands her to me. I could make him handle her.

Jennaand2kids Newbie
Jennaand2kids
Posted

I have been dealing with day care not giving my son gluten...if i were you i would do what was mentioned above which is get an official dr's note....because even if later she has to be put in a daycare they will require a drs note and you could get a false negative if she has been gluten free for awhile.....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. sc'Que?
      - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

      This is FANTASTIC--especially that they are recognising barley and (potentially) oats as sources of gluten/contamination! Now if only we can get labeling guidelines to clarify "spices" and "natural flavors" for those of us with other severe allergies.
    2. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein...
    3. trents
      - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    4. Seabeemee
      - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Thanks for your reply Trents…most appreciated. I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population? Also, I found what you said about N...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748
    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      What's your daily meals? Protein bars?

      By xxnonamexx · Posted

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Yeast extract

      By JoJo0611 · Posted

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.