Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Opinions On L Glutamine?

MissBonnie

Recommended Posts

MissBonnie Apprentice
MissBonnie
Posted

has anyone taken L Glutamine tablets for celiac damage? if so, what results have you had? are they worth it? im in bed every couple of days in pain. and no im not being glutened im literally living on fruit and veg and im still like this. i just have lots of damage :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

I can highly recommend L-Glutamine. I've taken it myself with great results, and it's often mentioned at celiac conferences as being helpful with healing the gut.

MissBonnie Apprentice
MissBonnie
Posted
  • Author

i have 1000mg capsules and it says take 1-5 per day. how many is enough? i was thinking 2 capsules twice a day maybe??

Myou Newbie
Myou
Posted

I just recently began using L Glutamine, as it was suggested to me by a few other recovering Celiacs, and I really have nothing but praise for it. I generally take it once every week, or if I happen to get "glutened."

Now, I was skeptical at first when I read on a forum that the supplement appeared to shorten the duration of accidental gluten episodes. But as things turned out, I ended up having to put it to the test, just a few weeks ago! After an accidental contamination, I decided to ingest a few capsules just after realizing I got glutened...and I was absolutely shocked and pleased to find that my symptoms seemed to only last about half as long as usual (3 days of torture, shortened to a day and a half).

However, I understand there is some danger to taking L Glutamine daily, since everyday use can lead to chronic diarrhea. I tend to take a 500MG capsule about once a week, with fine results. My system does seem to be a bit happier with it's help.

Good luck!

Dennis429 Rookie
Dennis429
Posted

Mine are 500mg and it says to take one a day so that is all I take. It does seem to help me.

txplowgirl Enthusiast
txplowgirl
Posted

I started out with the tablets then one day I ran out and went to get some more and all they had was the powder. I think I like the powder better. It hits faster and relieves my symptoms faster. You can mix with water or whatever beverage you like to drink.

rosetapper23 Explorer
rosetapper23
Posted

I just read another thread that you started, and it seems that you're feeling quite ill at this time. There is a product that might help you tremendously that includes L-Glutamine (500 mg). It comes in powder form (I add mine to a smoothie) and may need a doctor's prescription. I'm not sure about that, though, because I think I saw it listed online. I had to order it through my doctor and pick it up at his office. It's called Metagenics UltraClear Sustain and states on it, "nutritional support for the management of leaky gut syndrome." This is what my doctor recommended when I first started seeing him, and he told me, "I'm going to make you feel as though you don't have celiac at all." I truly didn't believe him, but this product brought me back from the brink of despair. It actually made me feel like a "normal" person--and no diarrhea (yay!!). When I first started taking it, I also began taking a probiotic called "Probiotic Pearls." The two products together made me a new person, but I believe that if you can get Sustain, you'll start feeling better a lot sooner.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MissBonnie Apprentice
MissBonnie
Posted
  • Author

sustain huh? im willing to give anything a try at the moment. im in australia, i wonder if its available here?

rosetapper23 Explorer
rosetapper23
Posted

Oh, you're in Australia!! My daughter lives in Sydney....and I love OZ! I'm saving up my money to return there in March.

As for whether or not it's available there, I don't know. The company is somewhere in the San Francisco Bay Area, and that's where I live. If a doctor there is willing to prescribe it, let's work out a way to get it to Oz, okay? I could include it with a shipment to my daughter, and she could post it to you. Let me know--I would love to see you get better.

MissBonnie Apprentice
MissBonnie
Posted
  • Author

Oh, you're in Australia!! My daughter lives in Sydney....and I love OZ! I'm saving up my money to return there in March.

As for whether or not it's available there, I don't know. The company is somewhere in the San Francisco Bay Area, and that's where I live. If a doctor there is willing to prescribe it, let's work out a way to get it to Oz, okay? I could include it with a shipment to my daughter, and she could post it to you. Let me know--I would love to see you get better.

ohh wow! yes get over here you will love it! but come in the summer.

i looked it up and you can get it here! ill have to try some :) thanks for the suggestion.

rosetapper23 Explorer
rosetapper23
Posted

Unfortunately, going in the summer won't happen for me--the flights are too expensive then, and my daughter's place doesn't have air conditioning. She lives in a place four blocks from Bondi Beach (it's kind of like a large dorm with five rooms that are rented out to young people). Last year, I went in early September, and the weather was fantastic. However, I can't save up enough $$ to go again this year in September, so my next best shot will be March because the weather should still be somewhat warm....but not too cold.

Where do you live in Australia? I know that you just recently went gluten free, but did you know that the Tea Room at the QVB has a gluten-free tea? My daughter treated me to tea as a belated Mother's Day gift, and it was SO special! If I could swing it, I would move to Australia--I loved everything about it. You're so lucky! And you have so many gluten-free choices! My favorite gluten-free cookies can be found at the supermarket: Butterfingers. You really must try them--they don't have the consistency or taste of gluten-free cookies at all. My daughter sends me several boxes on my birthday and for Christmas.

I'm glad you can get the Sustain there--if you try it, I think you'll start feeling better a lot sooner.

MissBonnie Apprentice
MissBonnie
Posted
  • Author

oh march weather is even better! thats perfect! i live in Adelide, South Australia. i love it here, we get a perfect 4 seasons every year. we have alot of gluten free places to eat and our main supermarkets have heaps of choices too. i even found a couple of gluten free bakeries that have no gluten kept anywhere near them which is fantastic! now that ive found all these things i never want to move :)

rosetapper23 Explorer
rosetapper23
Posted

You Aussies are soooooo lucky!!! The experience of living gluten free is so much easier there. When I visited my daughter last September, she drive me to Hunter Valley for some winetasting, and I was worried about where we would be able to eat. It turns out that I had nothing to fear--we found restaurants that offered the option of having my sandwich made on gluten-free bread. That simply doesn't happen here! How I would love to go to an American restaurant and order a sandwich or hamburger....alas, I don't see this happening very soon. I did hear that Subway may offer gluten-free rolls sometime in the future, but they're only doing a trial in Texas at the moment.

Can't wait to go back to Oz!!

MissBonnie Apprentice
MissBonnie
Posted
  • Author

yes i heard that about subway too! it will take so long to get to oz though..

we are quite lucky here with all our food choices. other countries seem to have no idea what celiac even is half the time whereas australia has lots of info about it

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,082
    • Most Online (within 30 mins)
      7,748
    Jane5858
    Newest Member
    Jane5858
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Recurring flu like symptoms after being precribed immune system stimulating drug

      By Wheatwacked · Posted

      With all the bloodwork, have they checked your vitamin D?  What is it?  Celiac Disease causes malabsorption, so vitamin deficiencies are common.  Doctors rarely mention this. B1 Gastrointestinal beriberi, a severe thiamine deficiency, is characterized by symptoms including anorexia (loss of appetite), abdominal discomfort and pain, nausea, and vomiting. Other potential symptoms like abdominal fullness, indigestion, and constipation can also occur. These gastrointestinal issues may resist standard treatments, signaling a need to consider thiamine deficiency.  It is commonly believed that thiamine deficiency is not an issue in the western cultures, so rarely address by doctors. Doses of thiamine above 100 mg several times a day will quickly show improvement.  Borderline deficiency will come and go depending on what your eat.  Carbs use it up faster, so for example if you eat a lot of carbs today, tomorrow you may have symptoms.  Thiamine (Benfothiamine is a synthetic fat soluable thiamine) is water soluable, we only store maybe a weeks worth, and there is no upper limit on how much you consume.  Excess is stored or peed away.   For them it isn't a oroblem.  LOL.  They just say some people are like that and see the next patient.  
    • sillyac58
      Recurring flu like symptoms after being precribed immune system stimulating drug

      By sillyac58 · Posted

      I used the cream for 4 days as prescribed 3 years ago. While I cannot be sure it triggered these problems, the timing is very suspicious. Yes, the oats are gluten free, and while I knew some celiacs have a problem with oats, I only just thought to eliminate them.  I just read about corn on this website, which I do eat plenty of. I do eat dairy, and would be so terrible sad to give it up, but..... Thank you for the diary suggestions. I'll start one today. Thanks for responding!
    • trents
      Recurring flu like symptoms after being precribed immune system stimulating drug

      By trents · Posted

      Welcome to the forum, @sillyac58! Are you still using this topical medication for this precancerous spot on your lip? If not, are you saying you used it for a limited time and believe it triggered additional ongoing immune system reactions with unpleasant symptoms? I'm not clear on this. Are the oats you use certified gluten free? You may know this already, but even if they are certified gluten free, the oat protein avenin is similar enough to gluten to cause reactions in some celiacs. The development of other food intolerances is also common in the celiac community. Common offenders in addition to oats are dairy, eggs corn and soy. Dairy and oats are the most common, however. You might do well to keep a food diary and check for patterns.
    • sillyac58
      Recurring flu like symptoms after being precribed immune system stimulating drug

      By sillyac58 · Posted

      I was diagnosed about 10 yrs ago with Celiac by presenting with dermatitis herpetiformis rash. I had no stomach or intestinal discomfort, but of course showed intestinal damage. The dermatitis herpetiformis eventually went away and I've been religiously gluten free ever since. About 3 years ago I was given a topical drug by a dermatologist for pre cancerous spot on my lip. The drug is called Imiquimod/Aldara, and works by stimulating your immune system. ? The package insert and many releable online sources warn to use caution using this drug if one has an auto immune disease, I hace since found out. One of the side effects is flu like symtoms, which I had at the 10 day mark as warned. But these symptoms have been recurring regularly ever since. Low grade nausea (no vomiting), extreme fatique (sleeping in daytime) and often a migraine headache on day one or two. The bouts last around 5 days or more, usually the nausea being the persistent symptom. My dermatologist, and another I went to for second opinion say this isn't a problem. I have been ill about a third of my life ever since. I have had extensive bloodwork, been to numerous specialists, but cannot figure out what is making me sick. I have become neurotic about gluten at home, using separate cutting boards, pans, sponges, dish towels, etc. I rarely eat out, and usually only because I am traveling. I have begun taking my own food to peoples homes for dinners etc. The only thing I haven't done, until now, is to eliminated oats, which I eat fairly regularly, and are known to sometimes be a trigger. And I have to say, in my defense, that it took me a very long time to suspect gluten because my only original symtom was rash/dermatitis herpetiformis. So I didn't associate the nausea/headache/fatique with gluten for a long time. Nor did any one of the many doctors I saw suspect it. I finally had a couple of dermatitis herpetiformis spots (and severe migraine) when traveling and probably eating cross contaminated food. I've never been on one of these sights but I am desperate. I'm praying it's as simple as eliminating oats. But I am angry that I was given this drug that I truly believe set this off to begin with. Anyone?
    • Wheatwacked
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Wheatwacked · Posted

      Just switching to gluten free diet will answer your question without involving anyone else.  Your sister was diagnosed, that puts you at 40% risk of having it also as a first degree relative.  If you improve on a trial gluten free diet, you either have Celiac Disease (autoimmune) or Non Celiac Gluten Sensitivity (not autoimmune).  In any case it is important to address nutritional deficiencies like vitamin D.  Gluten free processed foods are not required to fortify.  The reason gluten foods are fortified is our western diet is deficient in them to the point where the government had to step in and require fortification.   Once you start GFD you'll realize it was the gluten you were afraid of all along, but nobody told you.
×
×
  • Create New...