Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Am I Sick?


kathleenp

Recommended Posts

kathleenp Apprentice

This is day 27 of being gluten-free. I am not diagnosed Celiac, but decided to go gluten-free due to bipolar symptoms that do not really respond to meds. I am thrilled to say that bipolar symptoms are improving, although I still have a long way to go.

On day 5 I had what I thought was mild food poisening, but then I realized that my sister had eaten everything that I had and was not sick and it left after a few hours, so I decided it was something else. Then on day 19 I got a lot sicker and thought it was the flu that lasted for 5 days. I am not so sure it was the flu now since I have not been around anyone with the flu and have not passed it on to anyone either. My symptoms were fairly intense stomach pain and watery D, a little nausea, but no vomiting. Eating increased the pain, so I cut back on that. It went away for 2 days and last night the pain came back, although not really bad, but I did vomit rather violently. Still neausious this morning.

Yesterday was also a wierd, 'hungry' day for me. Everytime I ate, afterwards, I was absolutely starving. I had low blood sugar in the evening and I think I overate to compensate for that and I think that may have triggered the stomach pain. Overeating does seem to bring it on.

I have been very careful about what I am eating, but I did eat at El Pollo Loco last night-just chicken, pinto beans, corn and corn tortillas though. I thought that would be safe.

I had started taking enzymes around day 13 to help in case I got CC, so I don't know if they are affecting me or not.

Anyway, I don't know if I got glutened (isn't it too early to have such a bad reaction if it was glutening?), have the flu, am still withdrawing or am just in the healing process? Anyone care to share their thoughts on this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It is not too early to have a bad reaction to a glutening. Does the restaurant you ate at have a gluten free menu? If not then they may not be taking the proper precautions to prevent it at the restaurant.

In the beginning it is best to go with whole unprocessed foods that you prepare yourself in a kitchen that has been purged of gluten risks. You need a new dedicated toaster, to replace scratched non stick pans, strainers and wooden utensils. You also should get new condiments and don't share them with gluten eaters. That includes stuff like butter, nut butters, jellies etc.

GlutenFreeManna Rising Star

The last time that I checked El Pollo loco's chicken was NOT gluten free. It sounds like you got glutened from it. Sorry you're sick now. If you didn't ask any questions that was mistake number one. You can't go by what "looks safe". You'll learn in time how to eat out at some places safely. El Pollo Loco is not one I would risk, personally--even their rice has gluten in it. They also put gluten in the chipotle salsa which is on the "salsa bar" making the rest of the salsa's unsafe from the bar.

As to you other incidences of feeling sick--have you eliminated cc rtisks in your home? Did you get a new gluten-free-dedicated toaster? Get rid of old non-stick pans, wooden spoons, wooden or plastic cutting boards? Don't underestimate the power of small amounts of gluten to make you sick.

kathleenp Apprentice

We don't use wooden utensils, most of my pans are stainless and the only thing we cut up on the cutting board is vegetables and occasionally meat, so I think I'm good there. I'll have to check the couple of pans that have a non-stick coating and see what condition they are in. As for the toaster-we use a toaster oven and I did toast a piece of gluten-free bread last night, but I put a piece of foil down first. Is this enough to prevent CC?

As for El Pollo Loco, they don't have a strictly gluten-free menu, but I had looked it up on the internet first and saw a list of foods that were gluten-free. I also saw a post here where someone eats what I had last night on a regular basis and doesn't get sick, so I thought it was safe. I did see where their food may be prepared on the same surfaces as gluten containing foods, so that may have been what happened.

It's funny, I never had gastrointestinal issues before going gluten-free, but now I sure do.

GFinDC Veteran

It seems funny to not have symptoms. But there are many people with celiac who don't know they have it. If fact there are probably around 2.7 million people in the USA right now who have celiac and don't know it. There should be about 3 million of us on this board, but there ain't.

Not knowing is the norm, not the unusual thing.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      43

      Severe severe mouth pain

    2. - Aretaeus Cappadocia posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    3. - Scott Adams replied to wellthatsfun's topic in Gluten-Free Recipes & Cooking Tips
      1

      heaps of hope!

    4. - Scott Adams replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fruits & Veggies

    5. - Scott Adams replied to yellowstone's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Cold/flu or gluten poisoning?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,093
    • Most Online (within 30 mins)
      7,748

    Susanne G
    Newest Member
    Susanne G
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Charlie1946
      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
    • Aretaeus Cappadocia
      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
    • Scott Adams
      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
    • Scott Adams
      You are experiencing a remarkable recovery by addressing core nutrient deficiencies, yet you've uncovered a deeper, lifelong intolerance to fruits and vegetables that appears to be a distinct issue from celiac disease. Your experience points strongly toward a separate condition, likely Oral Allergy Syndrome (OAS) or a non-IgE food intolerance, such as salicylate or histamine intolerance. The instant burning, heart palpitations, and anxiety you describe are classic systemic reactions to food chemicals, not typical celiac reactions. It makes perfect sense that your body rejected these foods from birth; the gagging was likely a neurological reflex to a perceived toxin. Now that your gut has healed, you're feeling the inflammatory response internally instead. The path forward involves targeted elimination: try cooking fruits and vegetables (which often breaks down the problematic proteins/chemicals), focus on low-histamine and low-salicylate options (e.g., peeled pears, zucchini), and consider working with an allergist or dietitian specializing in food chemical intolerances. 
    • Scott Adams
      Your satiation is challenging and a common dilemma for those with celiac disease or non-celiac gluten sensitivity: distinguishing between a routine viral illness and a reaction to gluten exposure. The overlap in symptoms—fatigue, malaise, body aches, and general inflammation—makes it nearly impossible to tell them apart in the moment, especially with a hypersensitive system. This ambiguity is a significant source of anxiety. The key differentiator often lies in the symptom pattern and accompanying signs: gluten reactions frequently include distinct digestive upset (bloating, diarrhea), neurological symptoms like "brain fog," or a specific rash (dermatitis herpetiformis), and they persist without the respiratory symptoms (runny nose, sore throat) typical of a cold. Tracking your symptoms meticulously after any exposure and during illnesses can help identify your personal patterns. Ultimately, your experience underscores the reality that for a sensitive body, any immune stressor—be it gluten or a virus—can trigger a severe and similar inflammatory cascade, making vigilant management of your diet all the more critical. Have you had a blood panel done for celiac disease? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.