Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Am I Sick?


kathleenp

Recommended Posts

kathleenp Apprentice

This is day 27 of being gluten-free. I am not diagnosed Celiac, but decided to go gluten-free due to bipolar symptoms that do not really respond to meds. I am thrilled to say that bipolar symptoms are improving, although I still have a long way to go.

On day 5 I had what I thought was mild food poisening, but then I realized that my sister had eaten everything that I had and was not sick and it left after a few hours, so I decided it was something else. Then on day 19 I got a lot sicker and thought it was the flu that lasted for 5 days. I am not so sure it was the flu now since I have not been around anyone with the flu and have not passed it on to anyone either. My symptoms were fairly intense stomach pain and watery D, a little nausea, but no vomiting. Eating increased the pain, so I cut back on that. It went away for 2 days and last night the pain came back, although not really bad, but I did vomit rather violently. Still neausious this morning.

Yesterday was also a wierd, 'hungry' day for me. Everytime I ate, afterwards, I was absolutely starving. I had low blood sugar in the evening and I think I overate to compensate for that and I think that may have triggered the stomach pain. Overeating does seem to bring it on.

I have been very careful about what I am eating, but I did eat at El Pollo Loco last night-just chicken, pinto beans, corn and corn tortillas though. I thought that would be safe.

I had started taking enzymes around day 13 to help in case I got CC, so I don't know if they are affecting me or not.

Anyway, I don't know if I got glutened (isn't it too early to have such a bad reaction if it was glutening?), have the flu, am still withdrawing or am just in the healing process? Anyone care to share their thoughts on this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It is not too early to have a bad reaction to a glutening. Does the restaurant you ate at have a gluten free menu? If not then they may not be taking the proper precautions to prevent it at the restaurant.

In the beginning it is best to go with whole unprocessed foods that you prepare yourself in a kitchen that has been purged of gluten risks. You need a new dedicated toaster, to replace scratched non stick pans, strainers and wooden utensils. You also should get new condiments and don't share them with gluten eaters. That includes stuff like butter, nut butters, jellies etc.

GlutenFreeManna Rising Star

The last time that I checked El Pollo loco's chicken was NOT gluten free. It sounds like you got glutened from it. Sorry you're sick now. If you didn't ask any questions that was mistake number one. You can't go by what "looks safe". You'll learn in time how to eat out at some places safely. El Pollo Loco is not one I would risk, personally--even their rice has gluten in it. They also put gluten in the chipotle salsa which is on the "salsa bar" making the rest of the salsa's unsafe from the bar.

As to you other incidences of feeling sick--have you eliminated cc rtisks in your home? Did you get a new gluten-free-dedicated toaster? Get rid of old non-stick pans, wooden spoons, wooden or plastic cutting boards? Don't underestimate the power of small amounts of gluten to make you sick.

kathleenp Apprentice

We don't use wooden utensils, most of my pans are stainless and the only thing we cut up on the cutting board is vegetables and occasionally meat, so I think I'm good there. I'll have to check the couple of pans that have a non-stick coating and see what condition they are in. As for the toaster-we use a toaster oven and I did toast a piece of gluten-free bread last night, but I put a piece of foil down first. Is this enough to prevent CC?

As for El Pollo Loco, they don't have a strictly gluten-free menu, but I had looked it up on the internet first and saw a list of foods that were gluten-free. I also saw a post here where someone eats what I had last night on a regular basis and doesn't get sick, so I thought it was safe. I did see where their food may be prepared on the same surfaces as gluten containing foods, so that may have been what happened.

It's funny, I never had gastrointestinal issues before going gluten-free, but now I sure do.

GFinDC Veteran

It seems funny to not have symptoms. But there are many people with celiac who don't know they have it. If fact there are probably around 2.7 million people in the USA right now who have celiac and don't know it. There should be about 3 million of us on this board, but there ain't.

Not knowing is the norm, not the unusual thing.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Recovery from gluten challenge

    2. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

    3. - trents replied to Scatterbrain's topic in Sports and Fitness
      2

      Feel like I’m starting over

    4. - cristiana replied to Scatterbrain's topic in Sports and Fitness
      2

      Feel like I’m starting over

    5. - Scatterbrain posted a topic in Sports and Fitness
      2

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,281
    • Most Online (within 30 mins)
      7,748

    newlife213
    Newest Member
    newlife213
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
    • cristiana
      Hello @Scatterbrain and welcome to the forum I am sorry to hear you have had a return of your symptoms.  My first thoughts were that stress can cause IBS-like symptoms - a friend of mine has been suffering a huge amount of stress and when that happens she gets diarrhea.  But you say that you haven't got any bad abdominal issues, so perhaps you could share what other symptoms you are having? Cristiana  
    • Scatterbrain
      Hello, I was newly diagnosed in January of this year (2025).  Since then I have been strict about staying gluten free and only cooking at home.  I started feeling better in July while gradually resuming close to my normal routine of activities and athletics. September and October were extremely stressful due to a new home build being finished and moving.  My spouse and I take care of his mom who has advanced dementia and have been since 2021.  We did all the moving as well as get the other house on the market for the month of October.  Since earlier this month I feel like I did back in the early stages of my diagnosis.  Almost all of my symptoms have come back except for the bad abdominal issues.  I haven’t changed my diet or supplements since January and wonder if the stress has caused a set back? Any thoughts are helpful.  Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.