Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endometriosis?


nikky

Recommended Posts

nikky Contributor

I'm an 18 year old female and for the last year, i have been suffering from increasingly severe abdominal and pelvic pain that can leave completly unable to function. This is especially true around the time of my periods, where i can be left crying in pain, unable to sleep and missing days at a time off college.

I have been to the doctors many times, and have gotten no where, until a physical exam a few weeks back showed up some 'questionable' findings and i am now having an ultra-sound next week. In the mean time i have been doing a little research of my own, and have discovered a lot about endometriosis and its symptoms, and i must say, it seems to explain a lot about what ive been feeling, the tiredness, the headaches, the nausea and of course, the crippling pelvic and back pain..

So i was wondering what your thoughts are on this? Could this be the explination? Are there links between coeliac and endometriosis?

Thanks for reading :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

I'm an 18 year old female and for the last year, i have been suffering from increasingly severe abdominal and pelvic pain that can leave completly unable to function. This is especially true around the time of my periods, where i can be left crying in pain, unable to sleep and missing days at a time off college.

I have been to the doctors many times, and have gotten no where, until a physical exam a few weeks back showed up some 'questionable' findings and i am now having an ultra-sound next week. In the mean time i have been doing a little research of my own, and have discovered a lot about endometriosis and its symptoms, and i must say, it seems to explain a lot about what ive been feeling, the tiredness, the headaches, the nausea and of course, the crippling pelvic and back pain..

So i was wondering what your thoughts are on this? Could this be the explination? Are there links between coeliac and endometriosis?

Thanks for reading :)

nikky there is a connection between polycystic ovarian syndrome (PCOS)and celiac's. I will see if I can find the article and post it for you.

Endometrisosis ,I am unsure of any connection

Karl Otto Explorer

Your situation sounds like a complication of Celiac Disease, to me. Did you look up the list of complications associated with the Celiac Disease. Remember you were born with this disease. I do not know how long you have been treating this disease of yours but, it sounds like some complications are setting in on you. Check out the list and see if any of those condtions fits your situation, OK.

txplowgirl Enthusiast

I have endo and also gluten free. I have also had severe pain that time of the month since I started at the age of 10. I finally found something to help with the pain. Wild yam cream. Hopefully that will help because gluten free didn't help like I had hoped it would. Good luck

Lima Bean Newbie

Your situation sounds like a complication of Celiac Disease, to me. Did you look up the list of complications associated with the Celiac Disease. Remember you were born with this disease. I do not know how long you have been treating this disease of yours but, it sounds like some complications are setting in on you. Check out the list and see if any of those condtions fits your situation, OK.

Are you for real? Do you know what endometriosis is, Karl? I think it's a disease you can't have.

People are born with a chance of getting Celiac, they aren't born with full blown Celiac. Occasionally, babies have it but it's not like being born with a cleft palate or a heart murmur.

cap6 Enthusiast

Do you take it in pill form or ? My mother and I had endro which didn't stop till a hysterectomy. My daughter has it and struggles every month. She is not gluten-free and isn't very inclined to go that way at this time. Has no other symptoms other than the endro so just looking for some natural relief for her.

I have endo and also gluten free. I have also had severe pain that time of the month since I started at the age of 10. I finally found something to help with the pain. Wild yam cream. Hopefully that will help because gluten free didn't help like I had hoped it would. Good luck

txplowgirl Enthusiast

It's a cream that you rub into different areas of your body. Like on the undersides of your upper arms, your breasts, your ovary areas, etc.

It has really helped me with the pain.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Karl,

I think you are misunderstanding the genetic factors in celiac disease. Just having the genes does not mean you have the disease. About 30% of the US population have the genes that are associated with celiac disease, but only about 1% actually have celiac disease. There are cases of identical twins where only one twin has celiac disease. In addition to having the genes, something must happen to trigger the disease. It is quite possible for a child to have celiac disease even though neither parent has the disease. There are numerous examples of that to be found on this board.

I posted this in one of your other topics, but it is equally relevant here. You are not born with celiac disease, only with a genetic possibility to develop it.

cap6 Enthusiast

It's a cream that you rub into different areas of your body. Like on the undersides of your upper arms, your breasts, your ovary areas, etc.

It has really helped me with the pain.

Thanks. I have to go to the health food store tomorrow so will look for it.

nikky Contributor

Your situation sounds like a complication of Celiac Disease, to me. Did you look up the list of complications associated with the Celiac Disease. Remember you were born with this disease. I do not know how long you have been treating this disease of yours but, it sounds like some complications are setting in on you. Check out the list and see if any of those condtions fits your situation, OK.

As others have mentioned... you are born with a genetic predisposition to coeliac, not the condition itself.. it has to be triggered, in my case this was by a bad virus when i was 14... ive been treating the condition for almost four years, and i am well aware of its complications

nikky Contributor

I have endo and also gluten free. I have also had severe pain that time of the month since I started at the age of 10. I finally found something to help with the pain. Wild yam cream. Hopefully that will help because gluten free didn't help like I had hoped it would. Good luck

thankyou :) where do you normally find it?

nikky Contributor

thanks for your replies everyone :)

what are the symptoms of poly-cystic ovary syndrome? i've heard of it before but i had no idea it was connected to coelic

ravenwoodglass Mentor

thanks for your replies everyone :)

what are the symptoms of poly-cystic ovary syndrome? i've heard of it before but i had no idea it was connected to coelic

Here is a good site for info on the syndrome. As to the endometriosis I also had it. I do not know if it is associated with celiac or not. If you do have it and adhesions have formed they can do surgery to free up the scar tissue but the adhesions often will grow back.

Open Original Shared Link

txplowgirl Enthusiast

thankyou :) where do you normally find it?

Health food store.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

    2. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    3. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    5. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.