Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease With Hypoglycemia


Karl Otto

Recommended Posts

Karl Otto Explorer

This morning, I was attempting to make a gluten-free cake from all gluten free ingredients. The cake mix stated gluten free all over it. It was from Betty Crocker. After, the cake was done, I started cutting it up into pieces. There were a piece or two of cake stuck to the knife blade. So, I decided to eat it and maybe just ver small piece, half teaspoon size. I went on on about the business of finishing the cake. Within 10 minutes, I started having a smothering choking spell, and, it reminded me of am asthma attack. I rinsed my month with water and, took my regular food and hoped it would not go any futher. Thank God, it was a very, very small piece of yellow cake. There was no eggs, or milk in the cake. So, what the heck happened to me? My regular diet plan never causes a reaction that way. Why woulf a simple piece of gluten free cake do that to me?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

I do not know what caused your reaction, however I thought I could often my observations: The gluten-free BC cake maxes I have made do have eggs you are supposed to add to them. If you didn't add eggs or used some type of egg-replacer, the recipe would be very dry. The mix is dry even with the eggs added. The only thing I can think of IF this was not an allergic reaction is perhaps the cake mix was old? Some of my stores were closing out the gluten-free BC mixes because they didn't sell. I looked at the expiration date and it was past date.

The reason I clicked on this topic however is that I have hypoglycemia and multiple food allergies too. I find my hypoglycemia is least noticable when I eat a diet low in carbs and low in sugar. I still eat every few hours but I try to eat more protein than I do carbs. If I eat too many carbs, or don't eat about every 3 hours I will end up dizzy, light-headed, nauseus, with blurred vission. Eating lots of protein from meats, nuts, eggs, etc. with lots of cooked vegetables that are easy to digest. Eating very few carbohydrates means I can usually go longer without getting light-headed. Eating some cake (or cake batter) is sure to guarentee my blood sugar is going to spike and then drop off suddenly. So I only have gluten-free cake on my birthday, but plan to not be able to do much after that.

Karl Otto Explorer

Let me tell you all something about the good old US Government and the Veterans Administation did for me in life or caused ?

First off, for years they VA & US Army gave me all sorts and kinds of Anti-Anxiety Meds. Which, were totally wrong for me according to the civlian doctors I have seen in the past. I had to take these meds for 15 - 20 yrs. In there opinion it gave this condition to me.

Second, the VA & US Army doctors gave me Epilepsy meds of all kinds, never did stop any seizure activities in fact made them worse. Again, the civilian doctor blame the taking of the meds for 15 - 20 yrs in cause seizures to be worse. VA & US Army claimed the did not know my present condition.

Third, I now, have no teeth in my head accept my front teeth only top and bottom 12 teeth in all and, they are now in danger of coming out, too. The oral surgen, whom done work on my gums and teeth were shocked at what they saw in my mouth. My gums and jaw bone decentigrated into nothing and, I have no gum ridges to place false teeth on. So, I get no false teeth ever. I have to grind up all my current food in order to eat anything. This could have all been avoid according to the oral surgen if I had have been told and treated for my present condtions. Celiac Disease & Chronic Hypoglcemia.

My teeth as well as my sons teeth died from the inside out that, means the pulps in all teeth died first leaving the outside of the teeth nice and shinny and white, giving the impression of well kept teeth. Then, the teath all crumbled and broke appart in my mouth one at a time. Again, this could have all been avoided if, I would have been receiving proper treatment of Celiac and Hypoglycemia. Thank so much Uncle Sam.

Fourth, I have to keep a log book ever darn day of my life, to write down blood sugar levels, how often eat, and my activities during the day. I do not get any regular sleep due to have to eat 6 times a day, every 4 hours all during the night and day. Never getting but, 3.5 - 4 hours at a time of sleep. I wake up spend 15 - 20 minutes prparing the meals then, repeating this process every 4 hours, 6 times a day. All of this in order to live.

My yougest son and oldest one now have to do this as I do according to their doctors. This is only the tip of the iceberg, of things I go through daily.

Dizzy spells, blurred vision, lightheaded, foggy mind patterns sometimes, neuropathy in fingers and toes, seizures, tired allot, weak spells, loss of weight, under weight, no muscle tone or muscles on body, have to lay on mattress overlay due to bed sores trying to form, cannot sit in regular chairs due to no meat or muscles on my behind. Found out, 7 yrs ago, the US Government knew all about my condition when, I accidently was given copy of my medical records from the VA Hospital. A disgruntled worker at the VA, send me my official copy before she was fired. Papers dated back to 1985.

Jestgar Rising Star

Let me tell you all something about the good old US Government and the Veterans Administation did for me in life or caused ?

None of this is different from what many people here have experienced in the civilian medical system.

kareng Grand Master

Let me tell you all something about the good old US Government and the Veterans Administation did for me in life or caused ?

You posted with a title of "celiac disease with Hypoglyvemia". Yet when someone does try to discuss thier own Hypoglyvemia & solutions, you start ranting about the goverment. This is not the forum for a rant against the US goverment or any goverment.

GlutenFreeManna Rising Star

You posted with a title of "celiac disease with Hypoglyvemia". Yet when someone does try to discuss thier own Hypoglyvemia & solutions, you start ranting about the goverment. This is not the forum for a rant against the US goverment or any goverment.

I agree. Karl, you seem very bitter against the military and government. The government did NOT cause your health problems (at least not celiac and hypoglycemia). What you went through with military doctors is NO DIFFERENT than what many of us here went through with civilian drs. Many others have told you this in other threads and you ignore them and only want to talk about how bad they screwed you over. It seems to me you only want attention coming here and saying the same things again and again. If you wanted help or to hear from people with similar problems and how they deal then you would have responded differently. I have tried to be helpful, and tried to give you the benefit of the doubt that the illness was affecting your ability to communicate, but I will no longer respond to your posts after reading this one. As the daughter of a veteran I find your constant diatribe against the military very offensive.

ravenwoodglass Mentor

Let me tell you all something about the good old US Government and the Veterans Administation did for me in life or caused ?

I have to agree that this constant subject matter is most offensive. Thank you for your service but the military did not cause all your problems. Perhaps some counseling to get over your anger would be in order. You ignore any suggestions people give you in relation to your health issues, which many of us have dealt with successfully but continue to blame all your problems on the military and VA. You do need help but not the kind we can give you here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 5 months later...
Curly8 Newbie

This morning, I was attempting to make a gluten-free cake from all gluten free ingredients. The cake mix stated gluten free all over it. It was from Betty Crocker. After, the cake was done, I started cutting it up into pieces. There were a piece or two of cake stuck to the knife blade. So, I decided to eat it and maybe just ver small piece, half teaspoon size. I went on on about the business of finishing the cake. Within 10 minutes, I started having a smothering choking spell, and, it reminded me of am asthma attack. I rinsed my month with water and, took my regular food and hoped it would not go any futher. Thank God, it was a very, very small piece of yellow cake. There was no eggs, or milk in the cake. So, what the heck happened to me? My regular diet plan never causes a reaction that way. Why woulf a simple piece of gluten free cake do that to me?

Thanks for posting this. I used the Betty Crocker yellow cake mix and combined it with a can of plain Libby's pumpkin and one egg (which I am fine with), I noticed I quickly developed a headache and scratchy throat. I had the same reaction in the past when I have used Bob's Red Mill gluten free flours with various recipes and also with Betty Crocker's brownie mix. I am baffled as to what it could be that is causing this? I just threw the rest of my pumpkin bread away. I seem to be fine with Udi's breads though. Wondering if anyone else is having these reactions. I am a self diagnosed gluten intolerant person, so not sure if I have Celiac or not, gluten/dairy free for almost 3 years. Any suggestions on alternative flours would be great as I would love to make some cookies for the holidays.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.