Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hypothyroid

sweetpea

Recommended Posts

sweetpea Rookie
sweetpea
Posted

I've been gluten-free for 3 years. I also have a pituitary microadenoma and bloodwork shows me to be hyperthyroid. However,I've been either pregnant or nursing since July '08, and the endo says he's going to wait to look further into the hyperthyroid until I'm done nursing my 2nd daughter. My symptoms have gotten really bad though: tired, weak, easily winded, heat intolerant, losing my hair. The only symptom I don't have is weight loss, even though I'm overweight! Anyone else have a similar issue that can offer some advice? Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

Why is your doctor waiting to treat you? I'm sorry....but your health is very important, and being hyperthyroid is very serious. If it means weaning your daughter immediately, I think you should consider doing so. PLEASE, get the medical help you need NOW! I can't believe your doctor is waiting--this can very quickly become a very serious situation.

GFinDC Veteran
GFinDC
Posted

Hmm, which one is it, hypo-thyroid (low thyroid hormone levels) or hyper-thyroid (high thyroid hormone levels) ?

Weight gain can be a symptom of hypo-thyroid, but weight loss is more typical of hyper-thyroid.

With hyper-thyroid people can also have racing heart rates, nervousness, shakiness, high blood-pressure, excitability, anger, hot etc etc.

Hypo-thyroid symptoms include lethargy, low blood pressure, weight gain, mental confusion, tiredness, cold, insomnia (with both actually), etc, etc.

They are both serious conditions and you should get some treatment or adjust your diet if needed.

sweetpea Rookie
sweetpea
Posted
  • Author

I haven't had any symptoms until the last two months, which is why he has been waiting - he doesn't even know that I've been having symptoms. (I plan to call him tomorrow.) Weaning isn't a simple thing when my daughter doesn't tolerate formula - even the $50 a can hypoallergenic kind. When we give her formula she vomits and gets dehydrated. My milk supply is a little low so we were giving her one bottle a day - which we had to switch to using donated breastmilk. But there's no way I could get enough donated breastmilk to feed her if I weaned. I'm hoping he can treat the thyroid while I breastfeed.

sweetpea Rookie
sweetpea
Posted
  • Author

My hormone levels would indicate hyperthyroid. I believe my last TSH level was .27 but it's been as low as .07

I know weight loss is usually typical w/ it, but it's also usually typical w/ untreated celiac. I had weight gain before I knew I had celiac, so I have a history of having opposite symptoms.

rosetapper23 Explorer
rosetapper23
Posted

Thyroid symptoms can be really strange. I get exactly the same symptoms whether I'm hyper- or hypothyroid, so I've always had to get tests to determine what was actually going on. Because I have Hashimoto's, it took about two years for the up-and-down thyroid situation to clear up. However, you are very brave to tolerate such horrible symptoms (been there!) and a good mother to place your baby's health above your own. Hopefully, your doctor will work with you to resolve your thyroid issues very soon. Good luck! And please let us know how things turn out, okay?

sweetpea Rookie
sweetpea
Posted
  • Author

I'll let you know what the endo says.

Do you know how they test for Hashimoto's or Grave's disease. Is it a blood test?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

Yes, it's a simple blood test. Good luck!

Laura

  • 1 month later...
beachbirdie Contributor
beachbirdie
Posted

I'll let you know what the endo says.

Do you know how they test for Hashimoto's or Grave's disease. Is it a blood test?

Yes, simple blood test, looking for antibodies. Hopefully they will also check your levels of free thyroid hormone, or else they are only getting part of the picture.

Are you currently on any thyroid meds?

You really need a good going over for this. A low TSH, by itself, does not necessarily indicate hyperthyroid. You have something going on with your pituitary, and in that case a low TSH could be unrelated to a thyroid condition. In Central Hypothyroidism, for example, your pituitary will produce very little TSH, which will cause the thyroid to produce very little hormone. But it is the pituitary that is off, not the thyroid.

In that case, you could be hypothyroid even with a low TSH.

Thyroid can be complicated. Both hyper- and hypothyroid have many crossover symptoms. For example, I had horrible anxiety and panic attacks, elevated heart rate, insomnia when I first started having problems. Turned out I was hypothyroid, NOT hyper.

Good luck to you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,561
    • Most Online (within 30 mins)
      7,748
    Valentino
    Newest Member
    Valentino
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.