Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hypothyroid

sweetpea

Recommended Posts

sweetpea Rookie
sweetpea
Posted

I've been gluten-free for 3 years. I also have a pituitary microadenoma and bloodwork shows me to be hyperthyroid. However,I've been either pregnant or nursing since July '08, and the endo says he's going to wait to look further into the hyperthyroid until I'm done nursing my 2nd daughter. My symptoms have gotten really bad though: tired, weak, easily winded, heat intolerant, losing my hair. The only symptom I don't have is weight loss, even though I'm overweight! Anyone else have a similar issue that can offer some advice? Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

Why is your doctor waiting to treat you? I'm sorry....but your health is very important, and being hyperthyroid is very serious. If it means weaning your daughter immediately, I think you should consider doing so. PLEASE, get the medical help you need NOW! I can't believe your doctor is waiting--this can very quickly become a very serious situation.

GFinDC Veteran
GFinDC
Posted

Hmm, which one is it, hypo-thyroid (low thyroid hormone levels) or hyper-thyroid (high thyroid hormone levels) ?

Weight gain can be a symptom of hypo-thyroid, but weight loss is more typical of hyper-thyroid.

With hyper-thyroid people can also have racing heart rates, nervousness, shakiness, high blood-pressure, excitability, anger, hot etc etc.

Hypo-thyroid symptoms include lethargy, low blood pressure, weight gain, mental confusion, tiredness, cold, insomnia (with both actually), etc, etc.

They are both serious conditions and you should get some treatment or adjust your diet if needed.

sweetpea Rookie
sweetpea
Posted
  • Author

I haven't had any symptoms until the last two months, which is why he has been waiting - he doesn't even know that I've been having symptoms. (I plan to call him tomorrow.) Weaning isn't a simple thing when my daughter doesn't tolerate formula - even the $50 a can hypoallergenic kind. When we give her formula she vomits and gets dehydrated. My milk supply is a little low so we were giving her one bottle a day - which we had to switch to using donated breastmilk. But there's no way I could get enough donated breastmilk to feed her if I weaned. I'm hoping he can treat the thyroid while I breastfeed.

sweetpea Rookie
sweetpea
Posted
  • Author

My hormone levels would indicate hyperthyroid. I believe my last TSH level was .27 but it's been as low as .07

I know weight loss is usually typical w/ it, but it's also usually typical w/ untreated celiac. I had weight gain before I knew I had celiac, so I have a history of having opposite symptoms.

rosetapper23 Explorer
rosetapper23
Posted

Thyroid symptoms can be really strange. I get exactly the same symptoms whether I'm hyper- or hypothyroid, so I've always had to get tests to determine what was actually going on. Because I have Hashimoto's, it took about two years for the up-and-down thyroid situation to clear up. However, you are very brave to tolerate such horrible symptoms (been there!) and a good mother to place your baby's health above your own. Hopefully, your doctor will work with you to resolve your thyroid issues very soon. Good luck! And please let us know how things turn out, okay?

sweetpea Rookie
sweetpea
Posted
  • Author

I'll let you know what the endo says.

Do you know how they test for Hashimoto's or Grave's disease. Is it a blood test?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

Yes, it's a simple blood test. Good luck!

Laura

  • 1 month later...
beachbirdie Contributor
beachbirdie
Posted

I'll let you know what the endo says.

Do you know how they test for Hashimoto's or Grave's disease. Is it a blood test?

Yes, simple blood test, looking for antibodies. Hopefully they will also check your levels of free thyroid hormone, or else they are only getting part of the picture.

Are you currently on any thyroid meds?

You really need a good going over for this. A low TSH, by itself, does not necessarily indicate hyperthyroid. You have something going on with your pituitary, and in that case a low TSH could be unrelated to a thyroid condition. In Central Hypothyroidism, for example, your pituitary will produce very little TSH, which will cause the thyroid to produce very little hormone. But it is the pituitary that is off, not the thyroid.

In that case, you could be hypothyroid even with a low TSH.

Thyroid can be complicated. Both hyper- and hypothyroid have many crossover symptoms. For example, I had horrible anxiety and panic attacks, elevated heart rate, insomnia when I first started having problems. Turned out I was hypothyroid, NOT hyper.

Good luck to you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.