Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Hospital Called And My Biopsy Is Booked Yay

Meg123

Recommended Posts

Meg123 Explorer
Meg123
Posted

Following on from my last thread after seeing the Gi, on Wed, I said that Dr wanted me in for his next theatre day which is Wednesday week (was two weeks from my last appointment) but his schedule was booked and so I was going to have to wait 6 weeks since he was going on holiday.

Well, the Gi Dr told them to reschedule, :D:D and told them to book me in and so I'm in on Wed week. So relieved.

It's so expensive though, since I'm having to go Private and don't have hospital insurance (got other insurance, just not hospital) (different health system here in Aus) I could have gone public if I wanted to and it would have been free of charge, but I couldn't wait 8 to 18 months. But my lovely mother is loaning me the money and I'll pay her back.

I hope something comes of it, seems like a huge gamble or something doesn't it....

I'm not terribly nervous about it. Should I be? Is it bad?

It's just the endoscopy / 6 biopsys. I'm not good with anaesthesia, but never had twilight sedation. I hope it's not terrible. Do you have to drink any special solution or preparation? or is it just fasting?

I've convinced myself it's going to be negative now as in I don't even have it :rolleyes: , but last week I was convinced I had it. :blink: do I, or don't I, do I or don't I. Will it be a false negative? blah blah blah. Head insane, even dreaming about it, boring everyone in my life about it....

Glad it's going to be over one way or another.

Husband is upset about the money, and thinks I should just be gluten free and be done with it. I feel guilty about insisting on having it, but I feel I have to. I mean if it's not celiac disease, then they maybe they'll find what else is causing the malabsoption at least or the + ttg. If I don't do it now then I'll always wonder what they would have found, and not want to damage myself in the future.

So i feel a combination of happy it's nearly here, and guilty for spending so much money on myself.

Either way, it'll be behind me soon YAY, and I can move forward to a healthier me hopefully. Been so sick for so long, just want to be able to walk my children to and from school. I'm not reaching for the stars or anything.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2johndeereboys Explorer
2johndeereboys
Posted

that is great news! I am so happy for you! I go for a EGD/Biopsy/Colonoscopy on Thursday. I am a bit nervous and apprehensive mostly about the colonoscopy (the prep mainly :unsure: ) but I know it will be fine and hopefully I will get some answers good, bad or inconclusive!

I know how you feel about spending all that money on yourself. The surgery center called me yesterday and I am responsible for about $600 of it.

WIshing you the best!!

:D

mushroom Proficient
mushroom
Posted

I'm glad the doc was able to squeeze you in :) Believe me, the worst part of it is the worry you are putting yourself through. It is really a simple procedure and with the twilight sedation you will not remember any of it. When you come to you will asking "When are they going to do it?" :lol: I do hope you get some definitive answers.

Meg123 Explorer
Meg123
Posted
  • Author

Thanks Neroli, me too. I just hope it's accurate, either a true negative or positive.

Lisa, mine is costing us $1300 Australian :( , just thinking of it is enough to make me sick.....

ravenwoodglass Mentor
ravenwoodglass
Posted

Glad they were able to get you in sooner. The day of the biopsy you can go ahead and get on the diet. You don't need to wait on the results. If you had a positive blood test you need the diet no matter what the biopsy results are. I also hope you get a clear answer but do keep in mind that damage can be patchy and a damaged place can be missed.

I do hope you are feeling better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748
    Naner4
    Newest Member
    Naner4
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      Gluten free nuts

      By Scott Adams · Posted

      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By Scott Adams · Posted

      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.