Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free 4 Months


love2travel

Recommended Posts

love2travel Mentor

A brief re-cap - was diagnosed with celiac disease through screening (blood tests and biopsies). I was shocked. Stunned. It was unexpected as I did not feel ill eating gluten. Have always had a lot of energy and only feel lacklustre when I do not sleep (have chronic insomnia due to chronic pain, fibromyalgia and possibly celiac disease??). Since joining Celiac.com have learned there is so much more to celiac disease symptoms than GI and neuro issues.

Fast forward 4 months - incredibly dilligent being gluten-free and avoiding CC (had to switch vitamins, toothpaste and so on). Began taking Vitamins D3, B12 sublingual, B complex, Zinc and Magnesium Glycinate (for pain). Am noticing small differences such as even fingermails with no more ridges. I am almost expecting other intolerances to begin appearing as has been the case with many people here. Is it glaringly obvious when other intolerances show themselves? I know they manifest themselves differently in people. Perhaps I am one of the incredibly fortunate souls without any other food issues.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

A brief re-cap - was diagnosed with celiac disease through screening (blood tests and biopsies). I was shocked. Stunned. It was unexpected as I did not feel ill eating gluten. Have always had a lot of energy and only feel lacklustre when I do not sleep (have chronic insomnia due to chronic pain, fibromyalgia and possibly celiac disease??). Since joining Celiac.com have learned there is so much more to celiac disease symptoms than GI and neuro issues.

Fast forward 4 months - incredibly dilligent being gluten-free and avoiding CC (had to switch vitamins, toothpaste and so on). Began taking Vitamins D3, B12 sublingual, B complex, Zinc and Magnesium Glycinate (for pain). Am noticing small differences such as even fingermails with no more ridges. I am almost expecting other intolerances to begin appearing as has been the case with many people here. Is it glaringly obvious when other intolerances show themselves? I know they manifest themselves differently in people. Perhaps I am one of the incredibly fortunate souls without any other food issues.

I was gluten free about 10 months when I realized other intolerances were an issue.

Was not glaringly obvious,it kinda crept up on me,before I realized what was happening ,I was almost as ill as I was before going gluten free.

It got to the point where I could not eat anything with out reacting.

So I eliminated soy ,corn and nightshades.

When that was not enough I started an elimination diet to find any remaining intolerances and/or allergys.

I believe that ,,for me,,the elimination diet was the best thing I could have ever done .It was tough, VERY tough, to do but well worth it .

I found two true allergys (eggs and almonds)that I was unaware of.

Soy and nightshades are now permanently off my food list along with gluten.

There are still some foods I can only eat in small amounts and only on occasion but that is getting better as my gut heals.

I was undiagnosed for 40+ years. I truly feel the length of time I was undiagnosed had a great bearing on my additional intolerances and additional food issues .

I hope that you are one of the incredibly fortunate souls without any other food issues. :)

lizard00 Enthusiast

I figured out soy about a year after I was gluten-free. I thought that dairy bothered me, so I would use earth balance instead of butter, stuff like that. But I didn't eat a ton of soy. I've never cared for soymilk, so the earth balance and occasional tofu or soy based products now and again. I ate some cookies I made and started to feel sick. Then I was eating some soy based sausage for breakfast one morning... I finally connected the dots and figured out that soy bothered me much like gluten does, except that sick feeling goes away much faster. Turns out that dairy doesn't seem to bother me at all. :blink: Go figure.

It does seem that when you have one intolerance/allergy, others follow. But it's not the rule, so maybe you could be lucky enough to just have celiac. :lol:

mushroom Proficient

I can't remember - check my sig - but I think I was helped by the community to discover soy after about three months of itching and rash which started not long after gluten free. The others popped up at (ir)regular intervals. Well, actually, I tried eliminating nightshades because of my RA, and then couldn't go back to them :blink: It has been a long road. Of course, the corn came before gluten, as did the lactose, but the lactose was caused by the gluten because I'm fine with it now. When Rolf was here working on our fireplace 10 days ago I actually (accidentally, and without thinking because I was cooking German for him :D ) ate some German potatoes, and did not suffer from it at all (realized the next day), so maybe some things can return on an irregular basis into my diet. Perhaps the vinegar and bacon and onions made a difference. At least I know not to panic too much now and I still take my Lectin Lock to restaurants :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    2. - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    3. - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

    4. - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

    5. - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748

    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.