Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ate A "gluten Free" Sandwhich...

CNV2855

By CNV2855
in Coping with Celiac Disease

Recommended Posts

CNV2855 Contributor
CNV2855
Posted

A new deli opened up in town and offered "gluten free" options including bread. I ate there and I ate several sandwiches, and I must say they were delicious.

I ate there twice. On a Sunday and on a Wednesday.

Around Monday, I had a rash re-appear on my chest/back and that traditionally has only gotten bad when I've been glutened. Wednesday, I had diarrhea. Saturday I had diarrhea again but this time with blood in the stool. Now it's been about a week and I feel bloated, stiff, I had a flare of my Sjogren's, and just plain bad.

I'm not positive that I was glutened since I do have some other autoimmune problems, but the rash really only appears after I've been glutened. I suspect it's dermatitis herpetiformis as it appears when glutened and disappears if I'm not. It's been tested twice and they said it was "bacteria" in the skin or something and that it wasn't DH. Hmm...

Anyway, does anyone else have a really long-term reaction where the immediate effects aren't that bad... but the gastroinestinal problems come 2-3 days after being glutened and then you have some major fatigue residual symptoms for a week or more?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tictax707 Apprentice
tictax707
Posted

Last time I was exposed to gluten (from a lone crouton in a salad), it took 3 days for my body to start to fall apart. it took 5 weeks for me to get back to normal. However, the problem was not fatigue, it was straight up D. (which, after a while, did lead to fatigue of course) The D is usually my problem but most likely related to a colitis flare up, and not necessarily celiac.

ravenwoodglass Mentor
ravenwoodglass
Posted

It does sound like you were glutened. Many times the reaction is delayed. The D for me starts about 3 days after I get glutened. Some places aren't aware that making safe gluten-free meals is about much more than just using gluten free foods. They may have CC issues.

K8ling Enthusiast
K8ling
Posted

My reactions are delayed about 3 days usually. I have to trace back what I ate to figure it out.

irish daveyboy Community Regular
irish daveyboy
Posted

A new deli opened up in town and offered "gluten free" options including bread. I ate there and I ate several sandwiches, and I must say they were delicious.

I ate there twice. On a Sunday and on a Wednesday.

Around Monday, I had a rash re-appear on my chest/back and that traditionally has only gotten bad when I've been glutened. Wednesday, I had diarrhea. Saturday I had diarrhea again but this time with blood in the stool. Now it's been about a week and I feel bloated, stiff, I had a flare of my Sjogren's, and just plain bad.

I'm not positive that I was glutened since I do have some other autoimmune problems, but the rash really only appears after I've been glutened. I suspect it's dermatitis herpetiformis as it appears when glutened and disappears if I'm not. It's been tested twice and they said it was "bacteria" in the skin or something and that it wasn't DH. Hmm...

Anyway, does anyone else have a really long-term reaction where the immediate effects aren't that bad... but the gastroinestinal problems come 2-3 days after being glutened and then you have some major fatigue residual symptoms for a week or more?

Maybe the fillings (Valu Brand cream cheese contains wheat protein) or cross-contamination, maybe get 'GIG' to send them guidlines about avoiding cross-contamination while preparing food for Celiacs.

Using the same knife that buttered wheat bread to cut smoked salmon (naturally gluten free) caused me 6 hrs later to cramp badly, vomit for a full day and have the big 'D' for 4 days, obviously now I'm extra carefully what I eat.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,210
    • Most Online (within 30 mins)
      7,748
    BJ OConnor
    Newest Member
    BJ OConnor
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.