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Daughter Blood Results

Mummyto3

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Mummyto3 Contributor
Mummyto3
Posted

TTG>128 with a normal IgA of 1.03.

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Debbie B in MD Explorer
Debbie B in MD
Posted

TTG>128 with a normal IgA of 1.03.

What is the reference range for the ttg?

Mummyto3 Contributor
Mummyto3
Posted
  • Author

What is the reference range for the ttg?

It just says TTG>128 in letter. I'm trying to find out what's normal. So far it looks really high :(

ravenwoodglass Mentor
ravenwoodglass
Posted

Yes that does look high. Did they do any other celiac testing than just the TTG and was the IGA the total IGA or the antigliadin IGA and if it was the antigliadin IGA did they do a total IGA?

Mummyto3 Contributor
Mummyto3
Posted
  • Author

Yes that does look high. Did they do any other celiac testing than just the TTG and was the IGA the total IGA or the antigliadin IGA and if it was the antigliadin IGA did they do a total IGA?

I don't know much about these particular results. She was also tested for her bones via blood, thyroid, anemia and two others. All normal with them. What is the normal range for TTG? I've read 0-6 and also 0-20...

sa1937 Community Regular
sa1937
Posted

I don't know much about these particular results. She was also tested for her bones via blood, thyroid, anemia and two others. All normal with them. What is the normal range for TTG? I've read 0-6 and also 0-20...

The reference range varies from lab to lab. Can you pick up a copy of the test results? Obviously just a tTG reading is not the complete test as Raven said.

Mummyto3 Contributor
Mummyto3
Posted
  • Author

The reference range varies from lab to lab. Can you pick up a copy of the test results? Obviously just a tTG reading is not the complete test as Raven said.

No worries :) Haven't thought of picking up a copy. Just got this letter through post. Looks like they're trying to rush her for biopsy as it's been faxed to 2nd hospital rather than posted. Just want them to hurry so I can get her on gluten free diet. She's had a day off school today as she's not well.

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sa1937 Community Regular
sa1937
Posted

No worries :) Haven't thought of picking up a copy. Just got this letter through post. Looks like they're trying to rush her for biopsy as it's been faxed to 2nd hospital rather than posted. Just want them to hurry so I can get her on gluten free diet. She's had a day off school today as she's not well.

Sorry to hear she's sick! Actually you should make it a point to pick up all copies of any tests that are run.

Mummyto3 Contributor
Mummyto3
Posted
  • Author

Sorry to hear she's sick! Actually you should make it a point to pick up all copies of any tests that are run.

I didn't know I could do that. She's suffered urine infections for 5 yrs. Her hospital folder is thick. I've only kept hospital app. letters and the odd test that they send to me but thats all.

kareng Grand Master
kareng
Posted

In the US you have a right to copies of your med recs. I don't know in So Africa where you live. Can you call the office and ask to have the "reference range" for the test read to you. Tell them a number doesn't mean anything unless you know what number is "normal".

sa1937 Community Regular
sa1937
Posted

I didn't know I could do that. She's suffered urine infections for 5 yrs. Her hospital folder is thick. I've only kept hospital app. letters and the odd test that they send to me but thats all.

Yes, you can do that, not that you want to go back 5 years. You are entitled to copies of those results. I'd suggest getting all the copies having to do with testing for celiac and then in the future get copies of any tests run.

ETA: I didn't realize you were in South Africa... so don't know if the same applies.

Mummyto3 Contributor
Mummyto3
Posted
  • Author

Yes, you can do that, not that you want to go back 5 years. You are entitled to copies of those results. I'd suggest getting all the copies having to do with testing for celiac and then in the future get copies of any tests run.

ETA: I didn't realize you were in South Africa... so don't know if the same applies.

I no longer live in South Africa. I moved to the UK 10 yrs ago (where I met my husband). Thank God I'm here as treatment/tests are free :0)

So, in simple terms, what has she been tested for. What is tTG and IgA. I'm trying hard to find a simple term for these as everything online is very medical and complicated!

sa1937 Community Regular
sa1937
Posted

I no longer live in South Africa. I moved to the UK 10 yrs ago (where I met my husband). Thank God I'm here as treatment/tests are free :0)

So, in simple terms, what has she been tested for. What is tTG and IgA. I'm trying hard to find a simple term for these as everything online is very medical and complicated!

You might want to check out these fact sheets from the Univ. of Chicago Celiac Disease Center. Explains a lot of the things you might want to know: Open Original Shared Link

frieze Community Regular
frieze
Posted

I'm thinking that the 128 would be as high as they test for, therefor it would be QUITE elevated.....

Mummyto3 Contributor
Mummyto3
Posted
  • Author

I'm thinking that the 128 would be as high as they test for, therefor it would be QUITE elevated.....

I've read about two other people via the web with tTG>128 and also tested positive with gut biopsy. Still awaiting an appointment...

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      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
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      By RMJ · Posted

      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
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      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
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