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Another Bad Day For Me


Mummyto3

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Mummyto3 Contributor

I'm having one of those days where I'm just completely washed out. My body is heavy, my brain is fogged up and my muscles and joints are uncomfortable and painful. Its one of those days where I just don't feel like I'll get through it in one piece. I have a level of tiredness everyday but these ones do happen probably every 3 to 4 days. Its just debilitating. Test prob not back til Friday next week.


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Harpgirl Explorer

Hang in there babe! B) Get yourself a gluten-free smoothie, or a coffee treat (if you can drink it) and know that you are doing something to help make it go away soon. On days like that (2 days ago :rolleyes: ), I will treat myself as a reminder that all will get better! I'm going to really enjoy my yoga class this morning. It's a treat and I don't even feel bad! :P

Mummyto3 Contributor

I was planning on going gluten free for my daughters sake. Now I think I need to do it for myself. Its so depressing.

Harpgirl Explorer

Oh! I forgot, thought you already did. Once my blood was in that vial (2 weeks Friday), I haven't consciously eaten anything with gluten. I certainly noticed the difference by day 2! Go for it! You will feel better! :D

GFinDC Veteran

If your testing is done you can go ahead and start the gluten-free diet. Although sometimes it does happen that the tests will be invalid for some reason and they will need to re-do the blood draw and retest. But that doesn't happen often.

Mummyto3 Contributor

The reason I havent is in case they want a biopsy. But I doubt I'll go for it although my daughter is. I'll have a think whether to start now or wait for her to start.

Thanks for the replies x

SarahJimMarcy Apprentice

My blood test was negative, but I went gluten free for my daughter's sake. We've been gluten-free for about 2.5 months and we both feel better. I felt that same fatigue and it's getting better. I feel like a person again!


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Mummyto3 Contributor

I'm going to try go gluten free next week. Already sorted shopping out so will hopefully be completely gluten free the week after. Hopefully even being nearly gluten free will help somewhat.

GFinDC Veteran

There is a reimbursement on food in England for people with diagnosed celaic. So if that is something you want to do you probably should get the endoscopy and biopsy. They might not do the reimbursement without it. I don't know how it works but with you and your daughter it might be worthwhile.

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    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
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    • Scott Adams
      You don't need an official diagnosis to request a gluten-free diet in either a hospital or nursing home--this can be requested by anyone. The higher costs associated with existing conditions for life insurance is a reality, and regardless of your politics, it could become a reality again for health insurance in the USA. For many this could make health insurance unaffordable, thus, everyone who is undiagnosed should understand such potential consequences before they go the official diagnostic route. As mentioned, once it's on your medical record, it won't go away.
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