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Any Good Doctors In Sacramento Ca Area

anewlife

By anewlife
in Doctors

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anewlife Apprentice
anewlife
Posted

I am trying to find a good GI in the Sacramento area although I would go to the Bay area or Stanford if needed. I saw a GI doctor recently who wanted me to go on a gluten challenge for a definite diagnosis of Celiac. I had gone off gluten myself and was diagnosed by blood tests and symptoms by my rheumatologist. I don't think a gluten challenge is wise after all I have read and would like to find a doctor experienced with Celiac disease and Gluten intolerance. Any advice?

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kareng Grand Master
kareng
Posted

I am trying to find a good GI in the Sacramento area although I would go to the Bay area or Stanford if needed. I saw a GI doctor recently who wanted me to go on a gluten challenge for a definite diagnosis of Celiac. I had gone off gluten myself and was diagnosed by blood tests and symptoms by my rheumatologist. I don't think a gluten challenge is wise after all I have read and would like to find a doctor experienced with Celiac disease and Gluten intolerance. Any advice?

Sounds like you were already diagnosed by an MD with out a cruel streak.

anewlife Apprentice
anewlife
Posted
  • Author

Sounds like you were already diagnosed by an MD with out a cruel streak.

Yes that is true! I would just like someone who is experienced to follow me with this disease. My Rheumatologist doesn't know much about Celiac. She said it was just a hunch!

  • 2 weeks later...
Jenniferxgfx Contributor
Jenniferxgfx
Posted

I don't think you'll get much help beyond "don't eat gluten" but I really liked Dr Jane Melnick in San Francisco. She's a smart lady and very kind.

djk40 Newbie
djk40
Posted

I had to press my Doctor for a blood test. I had many symptoms including severe fatigue, headaches, joint pain, leg pain, Ibs, and she wanted to test me for everything but...

She finally tested me when everything else came back negative and it turned out I had antibodies for celiac spru. So she said to me "Gluten Free Diet". I haven't had any professional help since (Jan 2010)

I still don't feel 100% and wonder if a GI should be tracking my health.

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    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

      By knitty kitty · Posted

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

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    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point to other health issues, some of them potentially serious, or it can mean nothing. But it doesn't look like you have celiac disease.
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