Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help Reading Results Please

N100A

Recommended Posts

N100A Newbie
N100A
Posted

I was hoping someone could help me read these results. Had a biopsy Friday but the wait is killing me. And if one more person says they think its in my head ....

Celiac endomysial iga value negative

Celiac gliadin set iga value 3.9 ref range <2.9

celiac gliadin ser igg value 2.2 ref range <1.3

celiac ttg serum qn value .9 ref range <10.3

celiac total serum iga value 184 ref range >13 yes to adult: 44-441

Summary interpretation: results may support a diagnosis of celiac disease.

Serological markers for celiac disease detected.

Positive DGP"s may also occur in normal individuals as well as in other GI conditions.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

Two tests are positive for celiac antibody detection. Total serum iga is normal, but with positive results that is not relevant--that test is done to unsure that a negative on the other tests is not due to an overall immune deficiency.

Be aware that false negatives on the biopsy are not unusual. Damage to the villi can be spotty, and if a small number of samples are taken it is possible to miss the damage, especially in the early stages of the disease.

N100A Newbie
N100A
Posted
  • Author

Thanks for the help bin hoping something shows on the biopsy. The doctor took 7. 1 more than the 6 he initially planned to take. I feel good about that as I've read some only take 2-3.

It's just really hard when everyone around u thinks ur not sick and just make yourself nervous. Especially when u know you dont feel right.

kareng Grand Master
kareng
Posted

Perhaps you can be diagnosed based on the blood results being positive and a good response to the diet. That is, if the biopsies are negative.

ravenwoodglass Mentor
ravenwoodglass
Posted

With positive blood work you need the diet no matter what the test results are from the biopsy. You can start the diet the day they do the biopsy you don't have to wait for the results. I hope you're feeling better soon.

N100A Newbie
N100A
Posted
  • Author

I tried starting today by watching what I eat. Do you know of any good lists of what ingredients to avoid?

Skylark Collaborator
Skylark
Posted

Forbidden list:

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

Safe List:

https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

There are lots of other articles on Open Original Shared Link right off the first page. Good luck with the diet. I really hope it helps you feel better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


N100A Newbie
N100A
Posted
  • Author

So, its been 11 days since the biopsy and no call from the doctor. I called and left a message for the medical assistant and she returned my call. She said the Dr. Was out until Thursday and would get back to me then. She said, "I took a look at the results, and there's no cancer or anything showuing, so no need to worry." We weren't looking for cancer! We were looking for signs of celiacs. I thought to proble futher but was just so saddened by the response that I just couldn't. She asked if I was stll having an upset stomach, then asked if I was taking any meds. Then we hung up.

Part of me was hoping for an easy "Yes you have celiacs." Now I'm wondering, if the biospy is clean, what my next steps should be...

Skylark Collaborator
Skylark
Posted

Those nurses can be so annoying. They can't interpret the tests.

If the biopsy is clean, you try the diet anyway. The biopsy is not 100% reliable by any stretch, so you may still be celiac (no "s" at the end of the word) or gluten intolerant. Chances are good with the positive blood test that you will feel much better gluten-free. Besides, positive blood work and a positive response to the diet is plenty of common sense evidence for celiac.

N100A Newbie
N100A
Posted
  • Author

So results are in - biopsies are negative. I was told to take Bentyl, Metamucil, and Immodium as needed. Do it for two weeks, and if your not better then we will do a colonoscopy....by the Medical Assistant - the doctor didnt even call. I'm so very frustrated. I dont want to live my life on a regiment of drugs that are just working against one another until I strike a balance. How do we even call that medicine.

I've been gluten free now since the 24th of June. Ive felt good. My anxiety has gone away a great deal, and while I'm still learning what to eat, I dont think Ive glutened myself much. July 4th weekend was bad (high stress at job too though - and traveling so I ate out a lot ). So was the other day. I couldnt identify any gluten the day before though the second time.

I'm feeling at a loss of what to do. I dont know why, but I really needed that confirmation of diagnosis to make me feel better. It's been 10 years of not knowing and I've just had enough.

Should I be staying gluten free? Part of me wants to go down a pizza/sandwich and just see what happens!

Skylark Collaborator
Skylark
Posted

I completely agree about the drugs. It's not a way to live and it's not good medicine.

I think all of us undiagnosed folks downed a pizza/sandwich at some point and regretted it. :lol: That's part of convincing yourself that gluten-free works.

The next step in seeking a convincing diagnosis is to go gluten-free for a few months, enjoy the lower anxiety, and then repeat the celiac panel. If the antibodies go away you know they were caused by eating gluten. That's pretty good evidence even with the negative biopsy.

Hang around here a while and you'll realize you are lucky to have a positive test of any sort. ;) I'm undiagnosed (couldn't stand to poison myself for testing) and a lot of folks who were very sick from non-celiac gluten intolerance never did get positive bloodwork. You have to trust yourself and listen to your body.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748
    Patty6133
    Newest Member
    Patty6133
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.