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Blood Tests Came Back Normal!

speedy2056

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speedy2056 Apprentice
speedy2056
Posted

I just got my blood test results for celiac disease, random sugars, infections and wheat intolerance and they came back normal! I was told quickly over the phone when I called to see if they had the results in.

I'm so convinced that I have either wheat/gluten intolerance or celiac!! There is a big difference in both my personality and physical side when I eat gluten/wheat.

I have booked an appointment to see my doctor tomorrow and I am going to request the results to see for myself. How common are false negatives? I thought they were more common in children. I did go off wheat/gluten a couple of days before the test, but it was only around two-three days in total because I didn't know that you needed to be consuming wheat /gluten for the test.

I've just lied to my family saying that the tests claimed that I have a wheat/gluten intolerance. I didn't bring up the issue of celiac disease, but at least I convinced them to make my life much easier. They are by the book when it comes to test results stating something and are not open minded about the possibility of them being inaccurate.

I was thinking about asking the doctor for an endoscopy but that means that I have to eat gluten again and I really don't want to be going through all that once more.

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lovegrov Collaborator
lovegrov
Posted

False negatives are not unusual, although more common in really young kids. HOWEVER, if you had been gluten-free for a while an then ate gluten for just 2-3 days, the possibility of a false negative goes way up. Your test was pretty much useless for determining whether or not you have celiac.

richard

sa1937 Community Regular
sa1937
Posted

False negatives are fairly common on both the celiac panel and the endoscopy/biopsy (yes, even for adults). With a positive response to the diet, I think you have your answer. And whether you have celiac or an intolerance to gluten, the diet is the same.

It is good to pick up copies of all your test results and keep on file. I wouldn't show them to your family though if they're such by-the-book skeptics. :P

speedy2056 Apprentice
speedy2056
Posted
  • Author

I had only been off wheat/gluten for two to three days, but other than that I had been consuming it normally. It was only that two-three day break, but perhaps even going for that such short period of time could have affected it, maybe? Not sure. I did have a large pizza with a lot of gluten side extras to gluten myself up the day before the test. Oh, well, who knows, huh?

Yeah, I won't be showing the results to my family, lol, but I do feel a bit guilty for lying. I guess if it makes my life easier then I had to. If I get a copy of the tests then I'll be sure to let everyone here know what they say. I heard that just even one particular ig thing had to be off to make me borderline celiac, and that not many doctors know how to read celiac results properly.

kareng Grand Master
kareng
Posted

I had only been off wheat/gluten for two to three days, but other than that I had been consuming it normally. It was only that two-three day break, but perhaps even going for that such short period of time could have affected it, maybe? Not sure. I did have a large pizza with a lot of gluten side extras to gluten myself up the day before the test. Oh, well, who knows, huh?

Yeah, I won't be showing the results to my family, lol, but I do feel a bit guilty for lying. I guess if it makes my life easier then I had to. If I get a copy of the tests then I'll be sure to let everyone here know what they say. I heard that just even one particular ig thing had to be off to make me borderline celiac, and that not many doctors know how to read celiac results properly.

Don't feel bad. The blood tests are for Celiac Disease. That is different from gluten intolerance. The main way, right now, to test for gluten intolerance is to stop eating it & see if you feel better. You feel better off gluten? Then the "test" results are psotitive. There just not blood tests.

speedy2056 Apprentice
speedy2056
Posted
  • Author

Don't feel bad. The blood tests are for Celiac Disease. That is different from gluten intolerance. The main way, right now, to test for gluten intolerance is to stop eating it & see if you feel better. You feel better off gluten? Then the "test" results are psotitive. There just not blood tests.

Absolutely, I feel better. My life's changed dramatically!

Poppi Enthusiast
Poppi
Posted

Absolutely, I feel better. My life's changed dramatically!

There's your positive test results then.

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speedy2056 Apprentice
speedy2056
Posted
  • Author

Thanks for restoring faith in me, guys! :)

Jestgar Rising Star
Jestgar
Posted

Absolutely, I feel better. My life's changed dramatically!

There's your positive test results then.

Yep, you aren't lying. Food testing proved gluten intolerance.

Poppi Enthusiast
Poppi
Posted

Yep, you aren't lying. Food testing proved gluten intolerance.

I wouldn't even give as much detail to people. Just say "Yes, I tested positive for celiac".

I never had any testing because I went gluten free before I knew you had to be on gluten to get tested. After 6 weeks I decided that it would be good to get tested. My gluten challenge lasted half a day and I was miserable. It took almost 3 weeks to feel great again. So I know for sure I have a gluten intolerance, in fact I have been glutened by such trace amounts that I know I have a very severe gluten intolerance. I won't ever know for sure if I have actual Celiac but I tell people I do because they take celiac more seriously than an intolerance.

Skylark Collaborator
Skylark
Posted

Yep. There is no test more accurate than an elimination diet for non-celiac gluten intolerance. Glad you figured it out and are feeling better.

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