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My Gi Doc Is Amazing!


mamabear272

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mamabear272 Explorer

I am in Toledo, OH and my GI doc is amazing! Dr. Reddy at the Toledo Clinic. The first time I went to her, she order blood work and within a week I had the results and a positive diagnosis! Not months or years of misdiagnosis. One visit! I am feeling much better and getting healthier every day! I had an endoscopy after the blood test where she did a biopsy of my small intestine which confirmed the diagnosis. I went back to her today and she is ordering more tests. Bone density and vitamin and mineral levels (as they tend to run low in celiac patients). I am back to losing weight again and I am doing well! Love her!


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ravenwoodglass Mentor

Great to hear that you are feeling better and have a really good doctor. They can be hard to find. Thanks for letting folks who live near you how well things have gone.

  • 2 weeks later...
Bubba's Mom Enthusiast

I'm in Toledo too! After many trips to my PCP with a laundry list of symptoms, he gave me a RX for anxiety med and ordered an ultrasound for the stabbing pain in my belly. It came back "fine" and he told me to eat Tums.

I continued to get sicker and was losing weight, not able to eat. He ordered a CT scan and found enlarged lymph nodes. He said "something must be going on" and said maybe I should find a GI specialist?

I found Dr Reddy on my own and got an appointment within a week.

She listened to me as I told her my symptoms, asked a few questions, and repeated back to me what I said so I knew she heard me.

She ordered a list of bloodwork, stomach emptying study, and an endoscope. She said we'd get some answers. My first 2 tests were done within a week of my first visit. The scope 10days from first visit.

She DXed Celiac Sprue during the scope but took biopsies anyway. The office called with results a week later. I met with her again and she ordered more blood tests and a bone density test, which is scheduled for tomorrow.

I'm VERY impressed with her "get to the bottom of this" approach.

The only thing she told me as far as treatment was "don't eat gluten". I went online on my own to learn as much as I could. I'm so thankful to finally be taken seriously. I even had colon cancer 8 years ago. When I went back to the surgeon afterwards and said something was still wrong he said "it's nothing. Eat a low fiber diet".

Best wishes to you for a fast recovery! :)

mamabear272 Explorer

Glad you found her too! I love that she actually LISTENS! I happened to be in St. Anne's with diverticulitis when I got the call from her office about the celiac. They were super nice and printed out a TON of in for for me. That's where they did my endoscopy and she answered all of my hubby's questions. When I went back for my follow up she sat and talked to me and answered all of my questions.

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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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