Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scheduled For Colonoscopy

ozzy2650

Recommended Posts

ozzy2650 Newbie
ozzy2650
Posted

Will they be able to get a celiac diagonis from a colonoscopy or is it a waste for time and money (insurance only pays 1/2). I am scheduled for one on July 6 because I have pain in my upper left quad of my abdomen and pepcid 20mg is not helping. I have had negative blood test for celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

I'm not saying it's a waste of money, but they cannot diagnose celiac disease from a colonoscopy. You need an endoscopy with biopsies for celiac. Even with an endoscopy, sometimes the results are negative if the damage is patchy and the biopsies are not taken in a damaged area.

Some people here have had both negative blood tests and a negative endoscopy but still feel a whole lot better on a strict gluten-free diet. Hopefully others will chime in with their experiences with the type of pain you are describing.

Welcome to the forum!

Lisa Mentor
Lisa
Posted

Will they be able to get a celiac diagonis from a colonoscopy or is it a waste for time and money (insurance only pays 1/2). I am scheduled for one on July 6 because I have pain in my upper left quad of my abdomen and pepcid 20mg is not helping. I have had negative blood test for celiac.

Celiac Disease is detected in the small intestines and tested/biopsies through an endoscopy exam. A colonoscopy tests the large intestines for other issues.

love2travel Mentor
love2travel
Posted

Plus for an endoscopy you need to be eating the equivalent of 4 pieces of bread each day for 3 months. I had both scopes done at the same time but here in Canada we are covered for that, thankfully.

beachbirdie Contributor
beachbirdie
Posted

Will they be able to get a celiac diagonis from a colonoscopy or is it a waste for time and money (insurance only pays 1/2). I am scheduled for one on July 6 because I have pain in my upper left quad of my abdomen and pepcid 20mg is not helping. I have had negative blood test for celiac.

How old are you? A colonoscopy is not necessarily a waste of time, but it won't give you a celiac diagnosis. As Sylvia said, that test is done from the other end, they go down through your stomach to the beginning of your small intestine.

Do you have other symptoms besides upper left quadrant pain?

They will also be wanting to rule out colitis/inflammatory bowel disease, look for polyps, diverticulosis.

beachbirdie

ozzy2650 Newbie
ozzy2650
Posted
  • Author

How old are you? A colonoscopy is not necessarily a waste of time, but it won't give you a celiac diagnosis. As Sylvia said, that test is done from the other end, they go down through your stomach to the beginning of your small intestine.

Do you have other symptoms besides upper left quadrant pain?

They will also be wanting to rule out colitis/inflammatory bowel disease, look for polyps, diverticulosis.

beachbirdie

I am 32. I have the pain in the upper quad and diarrhea every morning. Unexplained weight loss. I notice that if I do not have a meal with gluten in it I have less pain then if I was having gluten. I have not completely omitted gluten but I have been staying away from it in a little experiement that I have been doing to see if that is what is causing the pain.

CarolinaKip Community Regular
CarolinaKip
Posted

I am 32. I have the pain in the upper quad and diarrhea every morning. Unexplained weight loss. I notice that if I do not have a meal with gluten in it I have less pain then if I was having gluten. I have not completely omitted gluten but I have been staying away from it in a little experiement that I have been doing to see if that is what is causing the pain.

I would see if your DR would do an endoscopy at the same time! If your insurance could handle it. I had the colonoscopy done first. No answers to my pain, then 2 months later after a positive blood test I had the endo done. My DR looked at me and asked why we didn't do the endo when we did the colonoscopy? I said "talk to you physician assistant!" She kept telling me my only problem was IBS. At your age, I vote for the endoscopy too if possible with several biopies taken.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,948
    • Most Online (within 30 mins)
      7,748
    Stephanie94
    Newest Member
    Stephanie94
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.